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  • Questions about TMJ for my mom

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    Old 08-03-2016, 06:29 PM   #1
    Vhee0829
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    Unhappy Questions about TMJ for my mom

    My mom suffers from chronic pain all the time up the right side of her face, her throat, neck, under her ear, in the ear and her jaw of course. She has been using a heating pad every night and the pain in her jaw has gotten a little better. She suffers in awful pain and it has been going on for months.

    The dentist said TMJ, but the primary doctor said an ear infection and she took an antibiotic but it didn't help the pain.

    So back to square one for TMJ. She also has sinus troubles and her glands are swollen.

    I'm just asking what can be done here? She wears dentures so she can't grind any teeth but she does clench her jaw at night so what can she do to stop that when she has no teeth?

    We are at a loss here and honestly my family is full of health problems, with me having lupus and my dad having cancer, so if anyone can help I'd greatly appreciate it

    Last edited by Administrator; 08-03-2016 at 06:43 PM.

     
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    Old 08-15-2016, 07:42 AM   #2
    F3410
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    Re: Questions about TMJ for my mom

    I'm sorry about your mom, TMD is a horrible thing to go through and I wish I had answers for you
    I have 3 appointments lined up to discuss what can be done with specialists that have TMJ training
    I would start researching dentists, orofacial or neuromuscular doctors that have proven to be successful in treating TMJ and make the appointments to get your mom evaluated
    One thing I have learned and can't stress enough is don't just take their word for it and start treatment right away with the first person you see - all dentists have some TMJ training but many others have exceeded training and made it their speciality and they all have different opinions on how to treat so do your homework and ask many questions
    Good luck to you and your mom

     
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    Old 08-15-2016, 08:45 PM   #3
    Vhee0829
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    Re: Questions about TMJ for my mom

    Thanks so much...because my mom is freaking out thinking she has a brain tumor or ear cancer...she gets so upset about this.

    Also, the pain lessens when she blows her nose so what if she has a sinus problem on top of this?

    Best of luck to you too

     
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    Old 09-20-2016, 07:38 PM   #4
    Vhee0829
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    Re: Questions about TMJ for my mom

    My mother is in severe pain...does anyone else have TMJ like this? where the whole side of your face hurts?

     
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    Old 09-22-2016, 09:07 AM   #5
    ladybud
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    Re: Questions about TMJ for my mom

    It does sound like sinus infection should be considered and a CT scan of sinuses is best way to diagnose that. Also, has anyone considered the possibility of trigeminal neuralgia, a nerve pain that is severe and affects one side or the other. A neurologist would be best to rule that out. Good luck, I hope she gets some relief.

     
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    Old 10-10-2016, 09:02 PM   #6
    Crisv
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    Re: Questions about TMJ for my mom

    Quote:
    Originally Posted by Vhee0829 View Post
    My mother is in severe pain...does anyone else have TMJ like this? where the whole side of your face hurts?
    Hi there,
    Sorry I don't have any answers for your mom but rest assured she is not alone. I have had severe pain in my throat and ears since July. The throat pain has eased up a bit but the ears are the worst. Just as you describe it, sharp stabbing pain I BOTH ears. Started with just the left but now the right has joined the party 😂 I've been tested for everything under the sun. Had 3 MRIs and a CT scan in the last 3 months. No infection, ears are clear. Just today I went in to see my 3rd ENT and he told me TMJ. Honestly, not sure if I buy it. How can this severe pain in my ears be due to TMJ? I'm now on a mission to find a tmj expert in my area, just let ur mom know she is not alone. Best wishes❤

     
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    Old 10-11-2016, 09:46 PM   #7
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    Re: Questions about TMJ for my mom

    TMJ can cause severe ear pain along with neck, head, eye, facial and back pain
    It can mimic ear infections, cause dizziness, off balance feeling, it can even mimic a tooth abscess
    If antibiotics were taken and it didn't clear it up and have been told you have TMJ chances are you DO
    In the past couple of months I have been to 6 so called specialists, have received 6 different prognosis and treatment plans with 6 completely different price structures
    This is just my experience but I feel I have learned so much in the past several months and TMJ in my opinion is not something to mess with or worth waiting around to see if it gets better or goes away, if there is damage to the joint that can never be undone but continuing in pain without treatment can cause more damage in the long run
    The very last Doctor I went to was the one that made the most sense to me and he was the longest wait to get into
    In my 2 hour consult he explained everything to me in a way I actually understood what could be happening with my jaw and that he could not and would not diagnose or treat me without an MRI- very very important - the MRI has to be ordered for TMJ to get all the pictures needed of how the joint and muscles work together biting on a series of different width sticks for several minutes at a time- this makes a animated video of you actually opening and closing your mouth and showing the condition and placement of the joint itself along with all the muscles and the tendon
    In review of my MRI I fortunately am not severe and it was explained to me why my pain is so severe....there is only 1 pocket of nerves and blood cells behind the jaw joint- the rest is all muscle, cartilage and tendon- my jaw locks back into that pocket which causes extreme shooting pain which is within centimeters of the ear and causes all kinds of radiating throbbing and pain then when it moves back out in not in severe pain but the inflammation is still there so there is always soreness and discomfort
    He makes many orthodics for all different cases and the theory behind them is to position your jaw where it should be to keep it out of that pocket
    My right side is at 12:00 which is where it should be and my left side is at 10:00- my right side gets sore from overuse staying off the left where I have most of the discomfort
    I will have one for night, 1 for work use that is clear and you can talk with it and 1 for athletics that is soft
    After I am stable for a very long time I may need mild orthodontics to keep me in place but that is a long road away
    It was explained to me that moist heat is the best for pain- key here is moist....use a rice bag heated in the microwave and wrap it with a hot wet towel- the heat cannot be dry (heating pad)
    I strongly recommend seeking a doctor your comfortable with that has the credentials to treat a joint problem along with dental - this guy I am going with is a dentist with a degree in orthopedics and dedicates most of his practice to TMJ seeing people from surrounding states and has an associate that does most of the dental work
    I finally after way to long of wait will be fitted for my orthodics and going home with them the 26 of this month

     
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    Old 11-05-2016, 04:37 PM   #8
    Novella1121
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    Re: Questions about TMJ for my mom

    Hi you mentioned important to get Mri. This dentist ordered mrid if the bargain I wish she ordered mri of the jaw at the same time. Is this what you are referring. I have been suffering for several months and I still do not have an answer

     
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    Old 11-06-2016, 07:23 AM   #9
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    Re: Questions about TMJ for my mom

    I don't know what a mrid is
    I had a MRI of the jaws for TMJ pain
    This order told them what was needed in the test - I had to bite down on a series of popsicle sticks that varied in width for several pictures so he could see the joint in each stage of opening my mouth the widest I could stand
    It was very important inwas told before hand by the doctor to open as wide as I could and then slowly bite down on each stick- not to just open enough for the stick.....so he could see the positions he was looking for
    Hope that helps - and It can't hurt to ask your doctor to re-order the test for what you want to be able to take it to specialists for a accurate diagnosis

     
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    Old 11-24-2016, 02:03 PM   #10
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    Re: Questions about TMJ for my mom

    Was.trigeminal neuralgia and/or geniculate neuralgia ever mentioned as a possibility? Tmj and neuralgia can have similar symptoms

     
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    Old 12-01-2016, 07:12 PM   #11
    Hopefulgurl1
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    Re: Questions about TMJ for my mom

    Yes! When I first got tmjd in march of 2016 my whole face hurt and I felt I would die of pain! So yes it can

    Last edited by Hopefulgurl1; 12-01-2016 at 07:13 PM.

     
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    Old 12-01-2016, 07:31 PM   #12
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    Re: Questions about TMJ for my mom

    Ok I would have that check as a possibility also (trigeminal neuralgia).
    When I fist began having excruciating facial pain my first thought was my jaw as I do grind my.teeth so I went to the orthodontist who told me I have tmj and fit me for 2 mouth guards. Time shortly passed and my pain kept getting worse. It wasnt until more tests were done that they found out I have neuralgia and not tmj.

     
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