It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



TMJ Disorder -TemporoMandibular Joint Message Board

  • Help with questions on TMJ Surgery and relocation of both jaws

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 01-12-2004, 10:01 PM   #1
    tzty
    Inactive
     
    Join Date: Aug 2003
    Location: USA
    Posts: 136
    tzty HB User
    Question Help with questions on TMJ Surgery and relocation of both jaws

    I have had it suggested that I have my jaws redone. I was told they would put a piece in the lower jaw on both sides to extend it outward more and then take a piece of the top jaws out. I was told they would reposition my bite and that my jaws would be wired shut for about 6 weeks total but they would give me more space each week. It is to be a 16 hour surgery with 2 surgeons and up to a 2 day stay in the hospital from the surgery. Has anyone else been given these suggestions or is this a new one to you???

    I have fluid behind my left ear and it is always popping. My regular dentist feels that I can have this corrected with just a partial plate for my teeth. Lately the pain has been so bad I have a constant earache and constant pain. I take Mucinex to get the fluid dried up but it is taking its good old time going away. I have both eustachian(sp) that are remaining open due to the TMJ.

    I used to get injection in my neck because my face would freeze on me and it was very painful. I could not turn my head or tilt it. I can't do that any longer as the dentist I saw has died and I hate the thought of running up huge dental bills with a specialist who may or may not help me.

    If you have any suggestions I am open to them. I would be most greatful for any and all the help I can get.
    Thanks, Joyshow

    Last edited by moderator2; 01-13-2004 at 06:37 AM. Reason: Please carefully read, know and follow the board guidelines and posting policy. Thank you.

     
    Sponsors Lightbulb
       
    Old 01-12-2004, 10:10 PM   #2
    Arleen
    Senior Veteran
     
    Arleen's Avatar
     
    Join Date: May 2003
    Location: Toronto
    Posts: 625
    Arleen HB User
    Re: Help with questions on TMJ Surgery and relocation of both jaws

    Hi Joyshow:

    There has been A LOT of discussion on this board about surgery - most of it negative. In most cases, those who've had surgery end up MUCH worse than when they started, and often in more pain and with more damage to their jaw.

    You might want to do a search on this board, typing in the word "surgery." It should bring up a lot of information. It's hard to know what to do, and when you're in pain, you just want to grab anything that you feel can help. But, you're best off to start with non-invasive, reversible things, like splint therapy than something that can't be changed back if it doesn't work.

    You asked on another post about the ear tubes. Several of my brother's kids had them done for earaches, etc. They didn't seem to do much. Depending on your situation, sometimes cutting milk/dairy products from your diet can make a difference.

    Take care
    __________________
    Arleen

     
    Old 01-13-2004, 04:29 AM   #3
    Cymy Sue
    Senior Veteran
     
    Cymy Sue's Avatar
     
    Join Date: Oct 2002
    Location: Alabama
    Posts: 1,021
    Cymy Sue HB User
    Re: Help with questions on TMJ Surgery and relocation of both jaws

    Hello,

    This type surgery has been around for quite a while. They are normally called Orthognathic Surgeries or Procedures. There are different variations and degrees of restructuring according to the problems you have.
    They were doing these 20 years ago (or close) to cure TMJD. They do not cure TMJ problems. They can and do make existing problems worse.

    They are to restructure bone and correct severe abnormalities, deformities and bites or occlusion that are so bad, they can not be corrected otherwise.

    These procedures are extremely invasive and carry many risks. Some of the complications that can and do occur regularly are listed on the surgery consent forms. (There's very little information otherwise as to the problems that can occur.)

    You didn't elaborate on your condition as to why such an extreme procedure has been proposed. Please research this as much as possible before you make a decision. Using the term Orthognathic or even Sagittal Splits. (this is when the mandibles are altered) This should give you a lot of information. There have been several discussions on this Forum regarding these procedures as Arleen mentioned.

    Also, I'll post one of the standard Consent Forms to give you an idea of the complications that are possible during surgery and the possible ongoing treatments you might need afterwards.

    I had 2 of these procedures in 1988, lower jaw only. I had about a 1mm difference in mandible length, no structural abnormalities, but I had symtoms of TMJ and a very slight overbite and this was the treatment.

    The first one was to extend my lower jaw several mm's and correct the 1 mm difference. I had almost all of the complications during the surgery, plus my left condlye pulled loose, which is not uncommon.
    The second surgery was to try and correct some of the damage, restore my facial structure that had been completely distorted and try and relocate the condyle. With extra precautions taken, I suffered the same complications, unusual bleeding, swelling during the procedure that interfered with breathing and the list goes on. The condyle would not relocate exactly back into it's normal postion and remains a little lower than the right still.

    Once the incredible swelling subsided, my face was so distorted, it appeared that I had suffered a stroke. I had nerve, bone and muscle damage that is irreversible.

    I did have a good surgeon, both procedures just went terribly wrong. A few months later, MRI's became available and I was found to have abnormal joint structure and deteriorated disc. I assume having unstable joints and bad disc may have contributed to some of the problems. No one really knows.
    They do know that these surgeries were done needlessly, the bottom half of my face was permanently altered, my TMJ problems escalated unbelieveably due to the trauma and I will never be completely normal again.

    I did have other surgeries to try and correct the actual problem and they failed. I had disc replacements and then a Discectomy 6 years ago.

    I have (just) in the last year gotten better due to splint therapy designed for the mess I was in. My face has straightened out a great deal, My very limited opening has increased and I have very few problems anymore.

    The majority of problems I do have are related to the very damaging Orthognathic surgeries. The last 16 years have seemed like an eternity of pain and problems that would never end. Happily, most of the worst is under control.

    I'm sorry not to be able to give you some hope with this, especially if you do have some type of deformity that can only be helped with this procedure.
    There are many like me, who did not do well with these.

    I believe there are most likely successful procedures done and I would think the techniques have been improved. Hopefully, the failures and mistakes have helped to make these procedures safer.

    Do your research on this and make very sure it is something you need badly enough for the risks involved.

    Good Luck with whatever you decide,
    Cymy Sue

    Last edited by Cymy Sue; 01-13-2004 at 04:58 AM.

     
    Old 01-13-2004, 06:05 PM   #4
    tzty
    Inactive
     
    Join Date: Aug 2003
    Location: USA
    Posts: 136
    tzty HB User
    Re: Help with questions on TMJ Surgery and relocation of both jaws

    Quote:
    Originally Posted by Cymy Sue
    Hello,

    This type surgery has been around for quite a while. They are normally called Orthognathic Surgeries or Procedures. There are different variations and degrees of restructuring according to the problems you have.
    They were doing these 20 years ago (or close) to cure TMJD. They do not cure TMJ problems. They can and do make existing problems worse.

    They are to restructure bone and correct severe abnormalities, deformities and bites or occlusion that are so bad, they can not be corrected otherwise.

    These procedures are extremely invasive and carry many risks. Some of the complications that can and do occur regularly are listed on the surgery consent forms. (There's very little information otherwise as to the problems that can occur.)

    You didn't elaborate on your condition as to why such an extreme procedure has been proposed. Please research this as much as possible before you make a decision. Using the term Orthognathic or even Sagittal Splits. (this is when the mandibles are altered) This should give you a lot of information. There have been several discussions on this Forum regarding these procedures as Arleen mentioned.

    Also, I'll post one of the standard Consent Forms to give you an idea of the complications that are possible during surgery and the possible ongoing treatments you might need afterwards.

    I had 2 of these procedures in 1988, lower jaw only. I had about a 1mm difference in mandible length, no structural abnormalities, but I had symtoms of TMJ and a very slight overbite and this was the treatment.

    The first one was to extend my lower jaw several mm's and correct the 1 mm difference. I had almost all of the complications during the surgery, plus my left condlye pulled loose, which is not uncommon.
    The second surgery was to try and correct some of the damage, restore my facial structure that had been completely distorted and try and relocate the condyle. With extra precautions taken, I suffered the same complications, unusual bleeding, swelling during the procedure that interfered with breathing and the list goes on. The condyle would not relocate exactly back into it's normal postion and remains a little lower than the right still.

    Once the incredible swelling subsided, my face was so distorted, it appeared that I had suffered a stroke. I had nerve, bone and muscle damage that is irreversible.

    I did have a good surgeon, both procedures just went terribly wrong. A few months later, MRI's became available and I was found to have abnormal joint structure and deteriorated disc. I assume having unstable joints and bad disc may have contributed to some of the problems. No one really knows.
    They do know that these surgeries were done needlessly, the bottom half of my face was permanently altered, my TMJ problems escalated unbelieveably due to the trauma and I will never be completely normal again.

    I did have other surgeries to try and correct the actual problem and they failed. I had disc replacements and then a Discectomy 6 years ago.

    I have (just) in the last year gotten better due to splint therapy designed for the mess I was in. My face has straightened out a great deal, My very limited opening has increased and I have very few problems anymore.

    The majority of problems I do have are related to the very damaging Orthognathic surgeries. The last 16 years have seemed like an eternity of pain and problems that would never end. Happily, most of the worst is under control.

    I'm sorry not to be able to give you some hope with this, especially if you do have some type of deformity that can only be helped with this procedure.
    There are many like me, who did not do well with these.

    I believe there are most likely successful procedures done and I would think the techniques have been improved. Hopefully, the failures and mistakes have helped to make these procedures safer.

    Do your research on this and make very sure it is something you need badly enough for the risks involved.

    Good Luck with whatever you decide,
    Cymy Sue

    Dear Arleen and Cymy Sue,
    Thanks for the information. I will research and look at as much as I can find.
    Cymy Sue, you mentioned deformed structure. That is what they told me. My jaw is like Carol Burnette's used to be. I have a thumb widths overbite and it makes eating and chewing horrible. That is why they told me two surgeons and a 16 hour surgery. I am seeing a TMJ dentist the beginning of Feb. so I will keep you posted and let you know. Big Hugs to you both, Joyshow

     
    Old 01-14-2004, 01:15 AM   #5
    mdla
    Veteran
     
    mdla's Avatar
     
    Join Date: Jul 2003
    Location: CA, USA
    Posts: 462
    mdla HB User
    Re: Help with questions on TMJ Surgery and relocation of both jaws

    Joyshow,

    I cant believe it, my situation is almost exactly like yours, I have fluid in the left inner ear, and fluid in the left joint space. The right condylar is returded with internal derangment of the articular disk.

    I have done a 1-1/2 of shots, pain meds, my ear hurts so bad I want to die. It pops all the time. I had some home with a neuro spilnt, but the joints continue to ache constantly.
    __________________
    m.s.

     
    Old 01-14-2004, 05:01 PM   #6
    tzty
    Inactive
     
    Join Date: Aug 2003
    Location: USA
    Posts: 136
    tzty HB User
    Re: Help with questions on TMJ Surgery and relocation of both jaws

    Quote:
    Originally Posted by mdla
    Joyshow,

    I cant believe it, my situation is almost exactly like yours, I have fluid in the left inner ear, and fluid in the left joint space. The right condylar is returded with internal derangment of the articular disk.

    I have done a 1-1/2 of shots, pain meds, my ear hurts so bad I want to die. It pops all the time. I had some home with a neuro spilnt, but the joints continue to ache constantly.

    Hi mdla,
    Isn't it odd that so many of us have it yet they can't figure out a way to operate and not have it end up better then worse. I do not understand it. They can put a man on the moon but they can't fix our TMJ right......LOL.
    I finally broke down and made arrangements to see a specialist in TMJ. I am having trouble eating. Every so often my bite goes off when eating somnething and I end up biting my cheek. I have a sore that never gets a chance to clear up the whole way. No sooner does it start to heal and I miss on the bite again.
    I am having a CAT of the jaw area prior to going to see him too. I feel that I am not paying their higher rates then the hospital has. This way he has it all in front of him when I walk through the door. I will take the CAT views right along with me when I go.
    Take care.....and keep in touch.

     
    Old 01-17-2004, 03:30 PM   #7
    tzty
    Inactive
     
    Join Date: Aug 2003
    Location: USA
    Posts: 136
    tzty HB User
    Re: Help with questions on TMJ Surgery and relocation of both jaws

    Thanks Arleen for the reply. I am allergic to dairy products so I avoid them. My jaw is actually deformed so that is why they are suggesting surgery. I took your advice on looking under surgery and found nothing but I am searching the web daily. (((Hugs))))

     
    Old 01-17-2004, 07:38 PM   #8
    mdla
    Veteran
     
    mdla's Avatar
     
    Join Date: Jul 2003
    Location: CA, USA
    Posts: 462
    mdla HB User
    Re: Help with questions on TMJ Surgery and relocation of both jaws

    Hi joyshow

    I know what you mean, I have had to redo my entire diet/way of eating since getting the severe TMJ. I can't really eat with others, its most embarrasing to me. I put all my food in the food processor, except things like apple sauce, oatmeal and ice cream. I have taken a liking to smoothies, fruit, protien mix, I like atkins or theres one other you don't have to put in milk and can look for a mix that is dairy free. Sweet potatos are good too.

    Did you have your Cat scan yet? Who ordered it for you? A TMJ surgeon or your regular doctor.
    __________________
    m.s.

     
    Old 01-17-2004, 09:16 PM   #9
    tzty
    Inactive
     
    Join Date: Aug 2003
    Location: USA
    Posts: 136
    tzty HB User
    Re: Help with questions on TMJ Surgery and relocation of both jaws

    Dear Mdla, The family doc is going to order the CAT scan and I am getting her to order a MRI of my right shoulder too. But that is another health issue. The first CAT they did of my sinus they all panicked and thought I had cancer of the face it was that bad. Now I am wondering if it is worse or not. Hubby will have a fit but I have to do something. This fluid that stays behind my ear and both of my estauchian(sp) tubes remain open at all times. They are not to do that and yet they do. So, I hope this time someone can help me out or tell me what to do. If not I will keep searching. Will keep you posted on this. (((MDLA))) ^;;^)))))~~~

     
    Old 01-18-2004, 06:19 AM   #10
    Cymy Sue
    Senior Veteran
     
    Cymy Sue's Avatar
     
    Join Date: Oct 2002
    Location: Alabama
    Posts: 1,021
    Cymy Sue HB User
    Re: Help with questions on TMJ Surgery and relocation of both jaws

    Hi ,

    There are many discussions on surgery. Sometimes it takes figuring out the phrase or word the board wants. Most of us have a little trouble to start with.

    Go to the "Search" button at the top right of the page, next to home and click.
    Type in Orthognathic surgery, TMJ surgery, Jaw surgery or different variations in the first space on the left. May sure the pull down menu on the right is on the TMJ listing. This should work to pull up these discussions. There could be a simpler way, but with the new format, this is how I search and it works well.


    Cymy Sue

    P.S. I just checked to make sure I had told you the right way. There is a page of threads when you type in Orthognathic surgery and 200 topics with threads if you type in TMJ surgery.

    Last edited by Cymy Sue; 01-18-2004 at 06:31 AM.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    TMJ Surgery Gone Bad Sandradee19 Open to All Other Health Topics 1 03-04-2009 11:29 PM
    Severe case of sleep apnea!!! HELP!!!!! evaudio Sleep Disorders 20 11-03-2007 05:48 AM
    need help please ellenk TMJ Disorder -TemporoMandibular Joint 29 10-02-2007 06:19 PM
    Sulphur Burps & Vomiting-HELP! Tory Digestive Disorders 16 12-10-2006 01:36 PM
    Burping rotten eggs/sulfur, PLEASE HELP Leigh25 Digestive Disorders 35 03-04-2006 12:26 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 07:22 AM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!