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    Old 12-25-2004, 08:32 PM   #1
    nc1323
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    TMJ and dizziness?

    Hi, after hours of searching for what might be wrong with me I came across the TMJ disorder on the net. I have had constant dizziness for nearly 7 weeks now. A feeling of tilting and turning and falling whenever I lay down or sit up, and a great sense of imbalance when I walk. Its constant now but in the beginning it just came in spells. B4 the dizziness started my left ear kept popping constantly and my vioce sounded really weird when I talked. I could hear the popping especially when I opened my mouth to talk or when I was chewing gum, which I do alot. The popping continued for a while while I had the dizziness but has now slacked off. Whenever I open my jaw I hear a loud clicking sound everytime which since reading the symptoms of TMJ i have just now started to worry about. I have been to an ENT who first told me it was an inner ear inflammation but after the steriods didnt help and more weeks of dizziness they now say its not an inner ear problem and I am off to see a neurologist next week. My mri came back normal. So now I am stumped. I read vertigo and imbalance can be a symptom of TMJ but would it be a constant feeling like im having??? I havent had any jaw pain, that Ive noticed, and I do have allergies, which the doctor attributed my ear popping noises to sinus drainage, but the ent wouldnt give me an answer as to what the popping sounds were. So could I have tmj, and what kind of doctor could help me figure this out? Anyone had similar symptoms? Thanks to any possible advice!!

     
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    Old 12-25-2004, 09:07 PM   #2
    westin4
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    Re: TMJ and dizziness?

    nc,
    I've had severe tmj problems for about 14 years. One of my worst symptoms is horrible dizziness. I would have to hold on to the wall to walk or just lay down it was so bad. I had periods where it was a constant but never for weeks on end. It does not mean that yours is not going to last for weeks. A dentist who knows alot about tmj is who you should go to. However, anyone can call themselves a tmj specialist.

    Good luck and let us know what is going on.

    Karen

     
    Old 12-25-2004, 09:47 PM   #3
    Princessawa23
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    Re: TMJ and dizziness?

    Angel, when you said your dizziness was sort of an "unreal" feeling, what did you mean by that? Can you describe it better? When I get dizzy, it's more like a spacey feeling. I am feeling it right now. I WAS feeling good, but not for the last 3 days. I have only had this splint for about a month. This should not be happening. It is Christmas day and I am having one big anxiety attack or as they call it, Generalized Anxiety, over this. My heart is racing, and i feel weak and shakey and worried and have sweaty palms. It feels sort of like I have eaten a lot of turkey. I feel sluggish, and tired and spaced out as if I've been drugged and light seems brighter than normal. This feeling feels more severe in dimmer lighting. Is it like that for you? Curious-Sarah in VA

     
    Old 12-26-2004, 09:06 AM   #4
    westin4
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    Re: TMJ and dizziness?

    Sarah,

    I also suffer from anxiety/panic. Having a tmj flare up always triggers an anxiety attack and if I feel that dizzy feeling start I always get an anxiety attack with it.

    The unreal feeling is kind of a spacey, anxiety feeling, I get the sweaty palms, racing heart, the lighting is a sign of a panic attack coming on. It is all very hard and very frustrating and very scary. I understand all of it. I am sorry you are going through this. I think it is just such a vicious cycle.....the anxiety causes tmj....the tmj causes anxiety and so on and so forth.....it just escalates all the symptoms for both.

    Do you take meds for anxiety? They have helped me TREMENDOUSLY, I don't know if I would have survived the anxiety without them.....I was just crippled with it.

    Let me know how you are doing and if I can help you in anyway with answers or advice from my experience with both, I'd be glad to.

    Karen

     
    Old 12-26-2004, 06:46 PM   #5
    nc1323
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    Re: TMJ and dizziness?

    Hi Karen,

    Sorry to hear that you have been having terrible dizziness. I am supposed to talk with my ENT tommorow and I am going to mention the TMJ thing to them since they have no suggestions as to what this might be. Aside from dizziness what were your other symptoms? How do you handle the dizziness? do you take med. for it? Is there no way to cure your dizziness and TMJ?? Im really concerned that I may have tmj now bc of the ear popping thing, and I cannot open my jaw very wide without it hurting badly and making a clicking grinding sound, also for the past two years I have been a chronic gum chewer, and I read chewing gum a lot can cause TMJ, and then of course theres the unexplainable dizziness, I hope my ENT will consider getting me tested for this instead of just passing me off to the neurologist. Anyway hope you get to feeling better.

    NC

     
    Old 12-26-2004, 09:01 PM   #6
    Princessawa23
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    Re: TMJ and dizziness?

    It feels so good to know I am not alone. I don't talk much about my anxiety and I am not seeing anyone anymore as everything has become so expensive and I would rather live my life sweeping that part of me under the rug and wearing a smile. I don't want to pay someone over $100 an hour to just listen. I can talk myself through hard times. I currently take 10 mg of Lexapro every night and it helps for the most part. I'm thinking of increasing my dosage a little bit. (My PCP said that was ok.) I have had GAD (generalized anxiety disorder) since like the third grade. I have been on other meds in the past such as Paxil(for like a week), Effexor, and Prozac. I had been taking Prozac for years and it was working well except for the occasional panic attack, until the tmj started in april. My current doctor took me off of it because that was the first person I went to when I started experiencing all these weird symptoms. He said the tiredness and dizziness was due to too much medicine in my bloodstream, which didn't make any sense to me since I had been taking it for so long. And that didn't explain the headaches or tightness in my temples. He just chose to block out that information. I stopped seeing him because after putting me on several different medications and nothing was working, he basically just gave up on me, so I gave up on him. He even wrote me a prescription for xanax and wanted me to take it every night. Yea no. I never filled the prescription. Everyone I knew told me that was bad news and that not only is it addictive, but that xanax is the sort of medication that you only take to calm your nerves during a bad anxiety attack, not the sort of medicine you're suppossed to take every night. Anywayz, I just want this all to be over. I have lived with the anxiety and OCD for most of my life and I know it can be controlled with positive thinking and reassuring pep talks with myself mentally, but mostly with meds ofcourse. I really can't handle having TMJ on my plate as well. I have had doctors tell me that dizziness and light sensitivity are symtpoms of anxiety and I'm sure that's true for a lot of people. But I know what happens to me when I feel anxiety, and these two symptoms only started last april after I went to the dentist. And they started along side the headaches etc. Hopefully, after wearing this splint all symptoms will subside. I mean, that is the whole purpose of wearing this uncomfortable contraption isn't it? Thankyou for listening and for everyone's support and I hope everyone is feeling ok today.

     
    Old 12-27-2004, 09:54 AM   #7
    westin4
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    Re: TMJ and dizziness?

    nc: I so hope you can find an answer to this, but I have to tell you that if the dizziness and such are related to tmj, it is not going to be a quick fix. I spent years going from ent......to neurologists......to dentists......back to an ent and couldn't get an answer. Now, that I am in with a dentist who "really" knows about tmj, my dizziness is gone. He has me in the right splint and has it fitted correctly. Those are the 2 biggest issues in getting a handle on this.

    I don't really know how I lived with the dizziness for so long. At the time they were thinking I had MS or something more serious and it just over took my life. When everything kept coming back normal it was very hard to be told that because of how sick I felt. It was a neurologist in the end who diagnosed me with severe tmj and then it took me quite a while to get in with a good dentist. Just because you get a splint made does not mean you will be helped. Splints have to be an exact science in the way the are made.......the type that you need........and the way they are fitted. Once those things are met, the dizziness will subside. I have not had any dizziness now for 5 months and it has been wonderful.

    Princess: I totally understand about the anxiety.........I have suffered with it for most of my life, but it just came to a head when all this tmj stuff started and I could get no answers, Tmj and anxiety go hand in hand. I know counseling is expensive but it is so helpful. I ended up finding a good counselor at the state mental health center and they just charge based on your income/bill ratio. We only pay $15 per visit instead of the $120 we were going to have to pay at a psychologist practice, could you check on something like that?

    As far as the Xanax goes, not all the info you got was correct. I have taken it for 8 years now..........same dose, same time of day. Of course it can be addictive, but chances are you are going to have to take it for the rest of your life anyway. Even the Lexapro is not a med you could quit cold turkey. Anti-depressants can be very dangerous to just stop. I tried so many of them and I had horrible side effects from all of them. I take Xanax .5 three times a day. It is a med you take daily that is the only way it works. It is not a med you pop during an attack. You can take one for a panic attack, but you need them on a regular basis to get the full effect. That would be like taking a Lexapro only when you were having a bad day. It wouldn't work. I know Xanax saved me, I was living a tortured life and was pretty much housebound from the anxiety. It gave me my life back. I also take Trazadone at night for sleep. Another thing you might consider......Anti-depressants can cause bruxing and grinding, I wonder if the Lexapro is causing you to clench and grind? Also taking you off the Prozac could have caused you to clench and grind ......getting off anti-d's can cause a rebound of clenching and grinding,

    It sounds like to me you had some bad info from your dr's as well. Nobody should have blown off your symptoms of tightness in your temples. That is really a sign of clenching and grinding. Also, it was silly to say it was caused my too much meds in your system. The Prozac had nothing to do with new symptoms if you had been on it for so long. Alot of times dr's just don't want to take the time to figure out what is wrong if it is not obvious.

    I am sure the lights and dizziness are symptoms of tmj for you and you will have to find a dentist who is going to listen and be willing to help you. The ones that are really knowledgeable about tmj are hard to come by. I wish you the best with all that you are dealing with,

    Karen

     
    Old 12-28-2004, 12:42 PM   #8
    Princessawa23
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    Re: TMJ and dizziness?

    Just out of curiosity, who is your Dr.? And how far is he from me? I live in Northern Virginia.

     
    Old 12-28-2004, 01:44 PM   #9
    westin4
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    Re: TMJ and dizziness?

    I don't think we are allowed to post names.....but I live in Southern Indiana.

    Karen

    [Just some clarification.... Per the posting rules and guidelines, you may describe "a doctor's name w/city/state...just do not post any off-board contact information; again, on-board sharing only." Such contact information that is not permitted would be websites, phone numbers, mailing addresses, and email addresses etc. Thanks for adhering to the guidelines - Well-come Moderator.]

    Last edited by Well-come; 12-28-2004 at 07:52 PM. Reason: Clarification

     
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