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juulie - are you out there?

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Old 05-16-2005, 06:59 PM   #1
Join Date: Feb 2005
Posts: 84
pwc HB User
juulie - are you out there?

hey juulie,

i wanted to know if you did anymore research on how you are planning to proceed with your jaw? did you get any other opinions or have all your specialists and yourself come to a conclusion? i was hoping you were in a stasis of some sort and were feeling well enough where you were able to put off anything invasive. hope springs eternal, right. let me know how you are doing. i'm slowly recovering - recovering from all the damage the surgeon did, that is. pwc

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Old 05-17-2005, 11:01 AM   #2
Join Date: May 2004
Posts: 93
juulie HB User
Re: juulie - are you out there?

Hi pwc, how nice of you to think about me. I'm glad to hear you are slowing starting the recovery. I guess at this point,that's the best you can hope for.

I had a fourth surgical opinion a couple weeks ago from a Dr. at the Mayo Clinic in Scottsdale. He is the only one that is not recommending joint surgery at this point. I have a bad open bite and a midline shift and he said that because my main complaint is excruiating headaches (not joint pain), he suggested botox in the masseters and temporalis muscles and a change in my splints. I had LOTS of botox on April 29 (3 vials) and it should be working by now but hasn't touched the headaches. This is actually my second round of botox... I had the first in January. My regular TMJ doc, whom I've been seeing for 2 years, is convinced the problem is coming from the joint. He actually called the Mayo doctor and they talked. My splints were changed two weeks ago but no relief. I have a headache today that is so bad no amount of muscle relaxers or pain med's are touching it. And to top it off, I have meetings today so I have to be on my best behavior and can't go home.

I see my regular TMJ doctor this afternoon so I am sure he will have some insight. He believes that arthroscopy (which is what another surgeon wants to do next) will be a waste of time and $$ and that I need a disectomy without replacement. The Christensen implant has been offered to me but I don't want it. So I am trying to decide what to do. As you know there is no easy solution. I can honestly say that I have tried EVERY OPTION at this point and surgery is my only other option. I don't want to do it and have resisted for quite some time. But I am only 32 and can't live the rest of my life this way. I can't believe I have been able to work through the pain but I need the health insurance and the money. My husband has taken the brunt of it as I pretty much go to work then come home and sleep. I think I will have to take a chance on surgery.

I'll let you know what my doc says today. Thanks again and take care of youself.


Old 05-17-2005, 01:16 PM   #3
Join Date: Feb 2005
Posts: 84
pwc HB User
Re: juulie - are you out there?

hi juulie,

sounds as if you are weighing your options very carefully. i'm glad to hear that. i was hoping you were coasting right now and would be able to make any other decisions later on in the future. maybe the botox will give you some relief. at least it is conservative along with the change in the splints. you never know - the botox along with the splint change may buy you some more time. keep me posted. good luck.

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