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TMJ Disorder -TemporoMandibular Joint Message Board

how accurate is this info?

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Old 07-26-2005, 07:15 AM   #1
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chloebell HB User
how accurate is this info?

I spent a lot of time searching the web yesterday and found a seemingly reliable sight dedicated to tmj. I don't think I am allowed to tell you what sight because of the board rules. There is a ton of info about tmj there and a lot of it is very disturbing. According the what I read, there is no such thing as a tmj specialist. There are drs that call themselves tmj specialists but they are not recognized by the AMA because there is no such thing as a tmj specialist. They said there is not enough research on what actually cures tmj or even helps it get better so there can not be a dr who specializes in it. Drs who call themselves tmj specialists are actually drs that treat tmj based on past practice and their own ideas of what works. This sight also said that splints should never move your jaw because more often that not they only cause more damage in the long run, and even stabalizing splints should not be worn for more than 6 months. I read that insurance companies are not wanting to pay for treatment because it is too expensive and proven not to work effectively so companies are tired of being burned. Basically this sight states that if you have tmj there is no treatment that is guarenteed to work and no set standards for treating you. Most of your dr bills will be out of pocket and treatments will not work. Is this accurate? It does not state that the dr can not cure you, just that it is likely he will not be able to. The sight says that there is not enough medical research to support any treatment of tmj and that it does not look like the situation is getting any better. So I guess I am asking...what do you guys think?

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Old 07-26-2005, 11:05 AM   #2
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Join Date: Jul 2003
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saaraah HB User
Re: how accurate is this info?

i'm pretty sure i know which site you're referring to, and what you've written is true. there is no training to become a "TMJD specialist". health professionals haven't even agreed on what to call TMJ problems - some use TMD, TMJ, TMJD, etc.

what i got out of that site is that they want to warn patients to not be overly trusing of so-called professionals. it's up to us, the patient, to research various treatments, get the pros and cons, associated risks, and make the decision ourselves about what to do.

i do think, tho, that it is overly simplistic of that site to say that nothing works because that leaves us nowhere - we cannot *not* treat our problems. there are risks and things haven't been researched properly, but it's also important to realize that there is a lot of politics going on behind the scenes between various types of treatments.

- saaraah.

Old 07-26-2005, 03:57 PM   #3
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Join Date: Feb 2005
Posts: 228
GoodThings HB User
Re: how accurate is this info?

I agree with some of the things the site stated. True, every dr can call him or herself a tmj specialist by just having studied one or two courses. And, also true, there is not a standard in treating tmj. There is however a group out there that is trying to change this: creating a standard in treating tmj patients.
It is false when the site stated that there is not a cure for tmj. And it is false that moving your jaw will cause more damage in the long run. Yes it will cause more damage in the hands of a dr that knows nothing about treating tmj. But in the hands of a doctor that has the expertise, splint treatment is the first step in getting better. i know that there is a cure because i have seen cases after cases of people getting better. And these people are now living a pain free life.


Old 07-27-2005, 04:50 PM   #4
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chloebell HB User
Re: how accurate is this info?

Well, I am glad to hear that some people disagree with the site. When I sat down and read some of the things on there, I started to panic. I know they are trying to be informative, but it seems like they are using scare tactics there.

Old 08-20-2005, 02:01 PM   #5
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Location: St. Augustine, Florida
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maggiejean HB User
Re: how accurate is this info?

You need to be leary but there, but on a good note I can tell you my insurance paid for 50% of my surgery costs and 95% of my physical therapy/rehab after my surgery. The doctor I saw does not accept insurance but will provide everything you need to submit the claim yourself. I would call him a specialist because that is all he does. I know the American Board of Oral and Maxillo-facial Surgery is working to change many rules but its a slow process. Some companys and doctors still consider TMJ Disorder as a mental illness!!!!!

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