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Tingling / Aches around left temple


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Old 10-12-2005, 01:27 PM   #1
CBarrett
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Tingling / Aches around left temple

Hi,
Last year I started having some tingling feelings or "fullness/tightness" around my left temple. I saw a neurologist who said my neurological examination was perfect, and sometimes you can have some over stimulation of the nerves, he gave me some sample medication to try if it became bothersome, but that was that.
About a month ago, the tingling and feelings of fullness, and just plain out funny feelings around my temple have gotten much worse, they are usually always their (I'm having them right now), and I went back to see him.
Last week I had an MRI of my brain, and it showed I had a small cyst in my brain I was probably born with, and I had sinuitis. The doctor called to tell me this, but still tells me not to be concerned, he said that it didnt' show any tumors, mass's, or growths, and nothing pushing on any nerves.
But this is becoming almost like a disability, sometimes I feel like somethings under my skin, around my left eye, eyebrow, temple, etc. I'm only 24 years old and I've never had any head trauma to sustain this. On friday I see him for a follow up to go over some treatment options and get an explanation for all of this. Plus, to top things off tommorow I'm getting braces put on, to help straighten my teeth (obviously) but also to help align my jaw as I've had some TMJ problems with my left ear.
If anyone knows anything or can help out at all please just post. I am so scared and dissapointed and depressed its been really difficult to get through all of this.
Chris

 
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Old 10-12-2005, 03:47 PM   #2
TiffanyAnn
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Re: Tingling / Aches around left temple

Hi Chris:
Have you addressed the TMJ before starting braces? Because if you have not addressed the TMJ problems before starting braces the braces will only make the TMJ worse. The symptoms you described can be caused by TMJ. Of course so could other things but since you stated that you do have TMJ they can most certainly be from the TMJ. But it's most important that you deal with the TMJ problems before starting braces, if you don't you will in all likelihood make your TMJ worse.
Tiffany

 
Old 10-12-2005, 06:57 PM   #3
Catswold
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Re: Tingling / Aches around left temple

Hi Chris,
The tingling, fullness and aches around your left temple are very common symptoms of TMJ and since you have been having problems with your left TMJ, that only reinforces my impressions that this is part of TMJ. But I'm not a specialist (unless you consider a long-time sufferer of TMJ a specialist ).

What have you done about your TMJ? What have your symptoms been like? Have you been taking an anti-inflammatory (ibuprofen) for your TMJ and/or temple pain? The stuffiness or fullness could be swelling or inflammation of the tissue in that area of your face, which is all closely related. Also, have you tried ice or moist heat on the temple that has been hurting? Is there anyway you can ask your orthodontists some more serious questions about TMJ before the braces are put on?

I would hesitate to have braces until the TMJ has been addressed by your doctors, especially if you are in pain. Have you and the ortho tried anything else to resolve the TMJ issue? Unfortunately, I just don't know enough of your TMJ history to give too much more advice. I probably have said too much. I just would hesitate to have braces until the TMJ has been addressed by your doctors, especially if you are in pain.

Another reason I don't know what to do about advising you about getting braces right now is because that is exactly what happened to me and I was only 2 years older than you. Braces were put on my teeth because my bite was off and I was having TMJ issues and pain. That was 25 years ago when they claimed that TMJ was "new." The braces turned out to be a big mistake because they never took away the pain. I know now that I should have tried bite splints or something, anything else. I still have pain and have lived with pain ranging from 1 to 9 out of a 10 scale for 25 years.

Chris, just be careful and make sure that all your questions have been answered. Also, ask the ortho what he thinks about the temple pain.

Let me know how you are doing. My prayers are with you.
God bless...
Carol

 
Old 10-12-2005, 11:16 PM   #4
CBarrett
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Re: Tingling / Aches around left temple

THanks for your responses,
I'm really freaking out now. My ortho will be extremely upset if i cancel on her tommorow, regardless of the reason, as I've done it before.
Neway, over the course of my life I've noticed that if i bite all the way down i have this slight feeling of pressure in my left ear. Over the past few years I saw numerous ENT's who eventually found a small nasopharyngeal mass (behind the nose) which was removed and came to be benign, besides that I see one now for a nasal fracture which occured a few months ago, and when i mention the pressue in my left ear or pain on occasion (it really isn't that bad from my ear) he mentioned TMJ and told me it could be because your teeth aren't aligned. I told him i needed braces, and he said well their you go and gave me a pamphlet on it.
I never really thought all of this could be from TMJ until reading your posts, thats why I'm so concerned about it. I thought of this to be more of a neurological problem as I'm really not in a lot of pain, but more discomfort. This feeling of "fullness", "tingling" and a "tightening" or "ache" is almost always their, around my temple, eyebrow, or sometimes running down my cheek. So I never thought the TMJ can cause all of this.
Today I called my ENT to inform him of what the MRI said, and infomred the office I was scheduled to get braces on, the same with my neurologist. The nuerologist or ENT doctors never called me back, I think I will hear from them tommorow, but from speaking with the receptionist at my neurologists office she said to go ahead and get the braces and see him on monday, the doctor won't tell me not to get the braces on, its probably irrelevant as to what it has to do with this.
As for my ENT he probably knows better, and i will call them both in the morning to get their clearance before seeing my ortho at 2pm for the braces fitting.
When and if i do finally get their, i will inform my ortho of whats been happeneing before getting the braces on.
When you guys talk about has your TMJ been treated before or get it treated before braces. What do you mean? How is it treated?

THanks again.
Chris

 
Old 10-13-2005, 05:47 AM   #5
Catswold
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Re: Tingling / Aches around left temple

I wish things weren't happening at the last minute like this. I have to get to work and don't have the time I need. Your temple situation sounds exactly like I am feeling right now and I have TMJ. If you are not in pain with your jaw or temple, braces would be the logical next step. Just don't do it if you have pain.

The problem I was talking about is if you are in pain and they put braces on you. Not good because the pain hasn't been addressed. Pain needs to go away first (bite splints are the best way). If no pain, braces.

Tell you ortho that you think you have TMJ and how does he treat it? If he only says braces, you might want to find a dentist more specialist.

But, IF NO PAIN, go for it and it really sure work out okay. TMJ is curable.
Let me know what Ortho says.

Gotta go. Work I didn't check my typing so there are probably lots of errors. Sorry.
God bless,
Carol

 
Old 10-13-2005, 07:46 AM   #6
CBarrett
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Re: Tingling / Aches around left temple

Thats okay,
the only pain i experience is an ache, or a feeling of tightness. It feels like almost a muscle tightening, and then it goes away. If i ever do experience pain, its a headache, but only for a split second, then its gone.
This feeling of "tightening" or "fullness" is almost always around my left eye, on the left of it, my temple, or my top left forehead. sometimes it runs down my cheek. But i never have pain in my jaw, or temple.
Its 9:41am, and i just called the ENT who is out on the jewish holiday. I am supposed to call the physcians assistant to make sure its okay to get braces.
i also called the nuerologist and they said he would call me back before 2pm.
i want to make sure he says its okay.
i will discuss the problem with the ortho when i see her.
chris

 
Old 10-13-2005, 07:55 AM   #7
CBarrett
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Re: Tingling / Aches around left temple

My nuerologist just called.
He said he doubts its TMJ and he thinks its more of a facial neuraliga then TMJ. He said most of the symptoms I have is pain in the facial area. I told him its not really a pain, but these wierd feelings of "tightness" or an ache. He told me that TMJ is more specialized around the jaw, ear, or TMJ joint. and he doesn't feel that it could cause these sensory problems around my eye, forhead or temple. He said its fine to go ahead and get the braces. But discuss it with my ortho when i see her, as she will have a better understanding of TMJ.
Chris

 
Old 10-13-2005, 12:51 PM   #8
Catswold
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Re: Tingling / Aches around left temple

Sheesh, I wish someone would have told my face, temple, forehead and eyes that they weren't symptoms of TMJ. I'm only fooling with you Chris. It's probably a good idea that you are getting braces since you are not in pain and it sounds like your bite needs to be fixed. Many moons ago, I probably still would have had braces like I did, but I sure wish the pain had been calmed down first. The continuous excruicating pain for 3 years almost killed me and did a large amount of damage to my jaws. (It didn't help my mental well being either.) I can't be "cured" now, but you can be.

You are in a good position by having a neurologist, ENT and orthodontist. I hope you won't mind one more piece of advice - don't let the orthodontist pull any of your teeth to fix your bite. Yes, your wisdom teeth can be pulled but even then, precautions need to be taken not to have your mouth open too long and too far open. Baby your mouth and jaw.

I'll be curious to follow your progress throughout your braces if you can remember to contact me through here (or however else is possible) occasionally. Braces have changed so drastically since my sweet and innocent years, cough, cough. I sure hope and pray that all goes well for you. And, keep your sense of humor alive and well. Write anytime you need a little pep talk or whatever.

God bless...
Carol

 
Old 10-13-2005, 02:49 PM   #9
CBarrett
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Re: Tingling / Aches around left temple

Here's a breif description of what happened today. Honestly I do hope this problem turns out to be TMJ rather than facial neuralgia, which would mean life long medication and possible further pain and nerve problems all over my face (and I thought the decision to get braces was a tough one), tomorrow I see the neurologist who clearly doubts it being TMJ, then next week the ENT to get his opinion, and then finally this guy that my ortho referred me too. Then, I can finally get the braces, if my health permits.

(Just to recap - the feeling i experience, is everywhere from in from of the ear on the TMJ joint, to an inch an a half above the ear - tingling, tightness, and then in front of my temple, on the left of my left eye, and sometimes on top of my eyebrow, and on my top left forehead, the feelings are almost always their now, where as over the past year, they would come and go, and it would just tingle, over th course of the day, the "tightening" has gotten worse, and sometimes it almost feels like its burning.

Here's a breif description of what each of them said when i spoke with them TODAY -


(Neurologist)Spoke with Dr. Ismail. Asked him if the problem I'm having could be related to TMJ. He said he doubts it, and said that I'm having mostly facial pain, which substitues facial neuralgia. He said its fine with him to go ahead and get the braces. He couldn't say whether it would make the problem any worse or not, he said that sometimes when people get braces and there is pressure on their jaw then they have headaches, but he didn't think it was TMJ, and asked that I check with my orthodontist.

ENT physician assitant - Spoke with Dr. Morse's physician's assistant. I informed her of the neurological problem I had been having, and the mri that was faxed over yesterday. I told her that it showed sinusitis and if that could substitute the problems I have been having, I also informed her I was due to have braces put in within the next half hour, and wanted to be sure before getting them in.She checked my chart/MRI and told me the sinusitis that showed up is so mild that she doubts that it would be giving me this much of a problem. She said they would need to see the films to see exactly which sinus was inflamed, but from the report it said it was only one of the sinus cavities and it was right inbetween my eyebrows above the nose. She says from what I'm telling her, since my teeth aren't properly aligned, and my jaw is off, plus with the fact it gives me some slight pressure in the ear, it's TMJ. She said not only can TMJ cause pain in the temple, but it can also cause these funny sensations since it stimulates all the nerve fibers in the surrounding area. She said getting braces is usually not only to straighten teeth (obviously) but also to correct TMJ and have the muscles relax. She said to discuss it with my orthodontist and let her know what happened, or just tell them when I see Dr. Morse next week.

Visit with Orthodontist - Met with Dr. for input of braces. The staff informed me that they do not do clear braces on the bottom, 1250 only covers clear on the top.
I informed Dr. A that I had had an MRI last week, and some neurological problems over the last year. I told her how recently it had gotten worse (especially within the past few days) and that I had spoken with my neurologist and ENT assistant earlier in the day to inform them I'm getting braces and if it would make it worse. I also asked her if it could be anything related to TMJ. She checked my jaw, and told me that on the left side, I am showing a little big of a fuller jaw, which means its slightly un-aligned, but TMJ is when the joint actually deteriorates and the bone pops and gives a multitude of problems. This is not the case, shes never heard of it giving these types of sensations, she agreed with the facial neuralgia perspective. I told her how upset I was, that it was something I would have to deal with for perhaps the rest of my life. She told me she had a friend who was a TMJ and facial pain specialist, and taught at Nova Southeastern University. She said that his specialization was to diagnose and treat certain types of TMJ disorders and nerve disorders around the temple and head, she said it would be worthwhile seeing him to get a 2nd opinion and obtain clearance for orthodontic treatment. She also said it would be best for me to see my neurologist (tommorow) and have him fax something over to her office (a note stating that I am okay to start treatment), and also see her friend, and the ENT so that everything is clear prior to starting treatment. As there is no point in taking a risk, and if in the event I do need another MRI the entire braces would have to be removed in order to have it done. She told me to call her to re-scheudle the braces fitting, but its better to have it checked out first.


THanks for all of your help Carol,
Chris

 
Old 10-13-2005, 07:03 PM   #10
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Re: Tingling / Aches around left temple

Actually, even though the day sounds like it was stressing and confusing, I think it's great that you are seeing that specialist/friend of your orthodontist. Your doctors are all taking you seriously and appear to have your interests at heart. That's great!! I think you will end up making the right decision because you have some good, supporting, smart people working with you. I am really happy for you.

Let me know what the new specialist says. Out of curiosity, will you ask him/her if there is such a thing as a bite splint that can be worn with braces to help stop clenching and/or grinding? Hang in there. You are on right track.
God bless...
Carol

 
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