It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



TMJ Disorder -TemporoMandibular Joint Message Board

Now What? Need advice about ongoing wellness


Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 10-21-2005, 11:17 AM   #1
tina1966
Inactive
 
Join Date: Jul 2003
Location: Gilbertsville, Kentucky, USA
Posts: 139
tina1966 HB User
Now What? Need advice about ongoing wellness

This is tina1966..again..hehe..I have just completed 2 1/2 months of physical therapy and doing so much better...but I still have to watch what I do and pace myself..of course...to those of you who have helped me out with advice...THANKS! But now I would like to know from veteran sufferers "HOW DO I STOP THIS FROM HAPPENING AGAIN?" Most of you may know my story,,I have several posts on here. I have a great book that helps out...and I've heard yoga is great..so I am trying that too...and get this....my therapy is over because insurance won't pay if therapy papers dont show my improving by doing more exercises, etc., I am still not 100% well and probably could use another month of therapy....anyway....I am trying to find a therapist who does myofacial release around here where I live...it helps so much....my current therapist said they might do it for me...but I would have to pay for it myself like once a week or so....I just dont want to go through this agony again. I am 38 ...almost 39 (next week) weeee.....have 2 great kids and a great husband....and all I want is to be a good mother and wife and somehow get back to normal. Any advice is great appreciated!! Tina

 
Sponsors Lightbulb
   
Old 10-21-2005, 03:27 PM   #2
rubato
Veteran
(female)
 
Join Date: Nov 2004
Posts: 497
rubato HB User
Re: Now What? Need advice about ongoing wellness

Hi Tina. I'm glad to hear that things are improving so greatly for you. I know it's not the same for everyone, but here's what I do to get through life. I wear my splint every night. I don't chew gum, ever! About once a week or so, I remember to do my opening exercises from pt. When I'm working out, I have to consiously not clench, because that's what I tend to do. If I go to the dentist to have a filling done or something, I try to stretch it out to 2 trips. Plus, my dentist understands tmj and it's limitations. When I've overdone my eating by having taffy or a bagel or something really chewy, I'll go on liquid the next day because my jaw is so overworked.

The key for me is to remember I will never lead a completely normal life. If I lift too much or eat too much, I will pay for it. It's worth it though to not be in agony every second. Yoga is great. I'm about to start yogalates (sp?) next month which should be interesting. Just keep up the good work.

Tandy

 
Old 10-21-2005, 08:07 PM   #3
tina1966
Inactive
 
Join Date: Jul 2003
Location: Gilbertsville, Kentucky, USA
Posts: 139
tina1966 HB User
Re: Now What? Need advice about ongoing wellness

Hey,
Thanks for your reply! I haven't chewed gum either for over two years now...I miss it so bad. But can gladly do without it to stay out of pain. I am trying to learn yoga at home..bought some books and I do regular stretches every night that helps alot. My therapist found me someone who does myofascial release so I may check them out next week. This whole thing just took me aback because I was doing so well...or so I thought. I have learned my lesson this time for sure. I let myself go..gained alot of weight and wasn't eating right either...so..needless to say...after the past 2 months I have lost alot of weight and am trying to get back in the groove of taking care of myself better. Its so hard when you work and have a family. I haven't been able to work since this started again, and dont know if I even should. Do you work? Hope you don't mind me asking. And..are you female? It just helps to relate to another female about this too. Again..thanks for your reply...It's a lonely world when you have tmj and no one understands the pain it causes. I am trying to get through just day by day and by praying alot. It helps me get through too. Take care and I would like to hear from you again. Tina

 
Old 10-23-2005, 11:31 AM   #4
sereena
Junior Member
(female)
 
Join Date: Oct 2005
Posts: 14
sereena HB User
Re: Now What? Need advice about ongoing wellness

Hi, all this information has been so helpful...good suggestions and helpful to know that other people are experiencing similar symptoms and finding things that help. TMJ for me has been a long and slow progression which I ignored for many, many years. I tried to ask a dentist about it 20 years ago and he shrugged it off because my jaws weren't locked or clicking. Sure wish I would've know then what I know now.

Anyway, I find myself still wondering a couple things: Does anyone experience a swollen, hard, lump-like area directly under the jaw bone, sort of between the jaw and bottom of ear area? I've tried to ask dentist's and dr's about this and I don't seem to get any answers. It comes and goes with TMJ symptoms and at times it is much worse than others. Is this a gland? One dentist said possibly muscle? But it feels round like a lump, how can that be muscle?

The other question is: Has anyone tried Glucosamine, I'm trying this right now, but I guess it takes about 8 weeks to see results. I'm curious if anyone else has done this for TMJ. Thanks, Sereena

 
Old 10-23-2005, 05:05 PM   #5
tina1966
Inactive
 
Join Date: Jul 2003
Location: Gilbertsville, Kentucky, USA
Posts: 139
tina1966 HB User
Re: Now What? Need advice about ongoing wellness

To Serena:
HI! Glad we are helping you out some. To address that lump you feel,,,yes..
its more than likely your muscle...its called a "trigger point" They are tight litttle nodules in your muscles that knot up and cause pain. There are several books out about trigger points...I have one myself..it is amazing what your muscles can do to you. THats why I ended up in physical therapy again...I overdid it and my muscles were in terrible shape and had trigger points in them. Get a book on it or do a search and read for yourself about trigger points AND how to get rid of them. I havent tried the drug you are talking about and not sure what its for. I am just on flexeril right now along with lexapro for the anxiety I am having with this again. Hope I have helped you out and good luck to you! God Bless! Tina

 
Old 10-24-2005, 08:31 PM   #6
sereena
Junior Member
(female)
 
Join Date: Oct 2005
Posts: 14
sereena HB User
Re: Now What? Need advice about ongoing wellness

Hi Tina, Thanks for the info about "trigger points", that explains why they said it might be muscle. Is this a good area for a massage therapist to work on? I'm trying to be cautious because recently I my massage therapist worked on some "pressure points" inside my mouth which actually exacerbated the TMJ inflammation for a couple weeks. I have a dr's appt on the 31st and I'm going to ask for a referral for a physical therapist.

Glucosamine is a substance that is produced naturally by the body. Glucosamine supplements (which are available anywhere that vitamins/supplements are sold) are used to help treat osteoarthritis, because it helps to rebuild/restore cartilage. There appears to be some research out there that supports the use of Glucosamine with Chondroiton for osteoarthritis of the TMJ. So I am trying it. They say it takes about 8 weeks to see any results. But it is affordable and a natural substance, so I thought it wouldn't hurt to try.

My dental insurance doesn't cover TMJ treatment, so I have to experiment on my own. Although I might have to break down and pay out of pocket one of these days to see a specialist and get a splint. Can anyone tell me what is the difference between a splint, nightguard and NTI? Thanks, Sereena

 
Old 10-30-2005, 12:58 PM   #7
tina1966
Inactive
 
Join Date: Jul 2003
Location: Gilbertsville, Kentucky, USA
Posts: 139
tina1966 HB User
Re: Now What? Need advice about ongoing wellness

Hi Serena!
Sorry to me so long to get back on here..been busy...anyway...to answer your questions or concerns....I just went to a therapist who does the cranio sacro massage on jaws, neck and inside the mouth...she didnt hurt me and it helped my jaws to relax..now..she has alot of experience with this..so I think thats a key thing to look for..experience! And myofascial release helps me out tremendously...As for the NTI...it is a custom made device worn only over the two front or bottom teeth and mostly at night...I had one made and just didnt like it...so I went back to wearing a spling...I am still waiting for my new one to come in. As for nightguards..to my knowledge they are just something you can buy at a department store and should never be considered to treat tmj at all. I love my splint...it has totally helped me 100%. They key is, however, to make sure it is adjusted right..if so...you will be pain free in no time. Please feel free to write back and I hope I have helped you out some. God Bless you! Tina

 
Old 10-30-2005, 06:11 PM   #8
sunflower22
Senior Member
(female)
 
Join Date: Apr 2004
Posts: 182
sunflower22 HB User
Re: Now What? Need advice about ongoing wellness

You only want a custum made splint cause if you buy one at a store it can miss things up cause at the dentist it's made to your teeth. My splint helps me alot and I have to wear it 24/7. Which I don't mine cause it keeps me so I don't have much pain at all once in a while my TMJ will flar up and that is normal. I am just happy to have a noraml life back in January it will be a year that I got my splint and got my life back

 
Old 11-06-2005, 07:30 PM   #9
sereena
Junior Member
(female)
 
Join Date: Oct 2005
Posts: 14
sereena HB User
Re: Now What? Need advice about ongoing wellness

Hi Tina,

You have been very helpful! Thank you. How are you doing, I think I read on another thread that you were having a tough time due to overexerting?? Was that you? I find that anytime I try to do any weight bearing exercise, things really flare up. I am trying to find a cranio-sacral therapist in this area, because that sounds encouraging. Sereena

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Your advice didn't work.. what now? Benit General Health 17 12-03-2010 10:17 AM
what your hepatologist won't tell you cjt Liver & Pancreas Disorders 5 04-05-2009 10:21 PM
What to do about selling the house. Gabriel Alzheimer's Disease & Dementia 41 01-27-2009 09:26 PM
What equipment will I need?? Will I put on weight? dijo1963 Back Problems 8 04-06-2008 11:31 AM
What to say to Pain Mgmt. Doc. diamondgirl19 Addiction & Recovery 9 03-11-2008 08:08 PM
what is wrong with me!!!! becca158 Depression 23 07-19-2007 09:57 AM
Pill? or no Pill? Need some serious advice... wishing_well Birth Control 5 03-22-2007 04:04 PM
what supplements? cjjimenez Cancer: Colon 3 03-15-2007 08:21 AM
what #'s are considered high ammonia christine307 Liver & Pancreas Disorders 6 05-21-2006 11:41 AM




Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 03:21 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2017 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!