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    Old 11-30-2005, 02:39 PM   #1
    bonib
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    1st visit with Tmj specialist

    Hi everyone,

    I am currently wearing a lower splint 24/7 my denstist made for me. It helped the first week but now I am having symptoms again. My dentist really made the splint as a favor to me with the understanding that it was considered diagnostic and he wanted me to see a tmj specialist .

    Splint helped the first week and then symptoms came back and I finally gave in to see specialist.(money was an issue since insurance does not pay for tmd problems) I went to an orthodontist last year who "specializes in tmd". She took my $1200.00 and ran. Didn't due adjustments just made me an inferior splint and said see you in a couple of months. After that experience I thought nothing could be done for my symptoms and was a little cautious about another specialist.

    New specialist asked me questions about pain level and location (s) of pain. He then put his fingers on my jaw and had me open and close mouth with/without splint. He then surprised me and said he wanted me to have an mri because he thinks there is a very high possibility that my jaw is dislocated. It wasn't closing right at all. I asked him which side and he said both.

    He stopped the consultation at that point and wrote me a script for test so I can have a facility close to home for test.. I was prepared to pay $151.00 for todays consultation but he wouldn't charge me anything. He said lets wait and see what we are dealing with and do the consultation on next visit after mri.

    Has anyone else had experience with a dislocated jaw or is this something you always have with tmd. I know this will sound strange, but I feel relieved he found something tangible. I am glad he is taking this to another level and not just jumping into something until he sees results.

    So at this point I am cautiously optomistic. What do you guys think is there finally a light at the end of my tunnel? Thanks and take care.

    Bonnie

     
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    Old 12-02-2005, 01:34 PM   #2
    GoodThings
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    Re: 1st visit with Tmj specialist

    Hello,
    Seems like your current doc is pretty honest and willing to help. He didn't take your money for the consult which says a lot. And he asked for MRI. I'd stick with him and see what he says and ask for a written diagnose. Then go from there. good luck. GT

     
    Old 12-02-2005, 08:15 PM   #3
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    Re: 1st visit with Tmj specialist

    Quote:
    Originally Posted by bonib
    Hi everyone,

    I am currently wearing a lower splint 24/7 my denstist made for me. It helped the first week but now I am having symptoms again. My dentist really made the splint as a favor to me with the understanding that it was considered diagnostic and he wanted me to see a tmj specialist .

    Splint helped the first week and then symptoms came back and I finally gave in to see specialist.(money was an issue since insurance does not pay for tmd problems) I went to an orthodontist last year who "specializes in tmd". She took my $1200.00 and ran. Didn't due adjustments just made me an inferior splint and said see you in a couple of months. After that experience I thought nothing could be done for my symptoms and was a little cautious about another specialist.

    New specialist asked me questions about pain level and location (s) of pain. He then put his fingers on my jaw and had me open and close mouth with/without splint. He then surprised me and said he wanted me to have an mri because he thinks there is a very high possibility that my jaw is dislocated. It wasn't closing right at all. I asked him which side and he said both.

    He stopped the consultation at that point and wrote me a script for test so I can have a facility close to home for test.. I was prepared to pay $151.00 for todays consultation but he wouldn't charge me anything. He said lets wait and see what we are dealing with and do the consultation on next visit after mri.

    Has anyone else had experience with a dislocated jaw or is this something you always have with tmd. I know this will sound strange, but I feel relieved he found something tangible. I am glad he is taking this to another level and not just jumping into something until he sees results.

    So at this point I am cautiously optomistic. What do you guys think is there finally a light at the end of my tunnel? Thanks and take care.

    Bonnie
    Hi Bonnie:
    I'm glad to hear you finally found someone with some morals who didn't just want to rip you off. It's a sad thing but with so many specialists when they see TMJ they see only $$$$$$$$$$$$ flashing in front of their eyes. It's good that he has ordered an MRI because it's a good diagnostic tool. As far as displaced discs go, they are very common with TMJ. My left disc is displaced and I have been through splint therapy and through phase ll which for me was a retainer to move my lower front teeth back just far enough to keep them from hitting the back side of my upper front teeth when I closed my mouth. I still have a lower splint that I wear at night and an upper retainer. I would like to caution you that if this specialists does find you have a displaced disc and if he right away starts talking about surgery, I would at that point run. It's always best to start with conservative therapies such as splints, PT, massage..etc. Often times you will go through many different splints before you find the one that works well for you. TMJ is a costly disorder. I also wanted to suggest that if you can get this specialist to bill your insurance with the diagnosis of MPD (Myofacial Pain Dysfunction) rather than TMJ many times insurance will pay for your treatment. Many people have been able to get their treatment paid for by their insurance by having their specialist put their diagnosis as MPD rather than TMJ. It's worth a try anyway. It does sound like this person is on the right track though and it gives you hope that they are good and not just out to rip you off. I hope it works out for you. If you have any other questions please feel free to ask. I'd be more than happy to answer any that I can.
    Tiffany

     
    Old 12-02-2005, 10:26 PM   #4
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    Re: 1st visit with Tmj specialist

    Thank you GT and Tiffany Ann,

    I appreciate your input. As I am new to this , I have a couple of questions to ask both of you. Gt You wrote to get a written Diagnosis, what is the purpose for this? And do you mean a report in writing? I hope you are right and he is honest.

    Tiffany Ann how are you responding to your therapy now? I am also curious if you don't mind my asking what type of symptoms did/do you have? Did either of you have any problems with your eyes? How long did you guys have symptoms before you found out tmd was your problem. Mine have been going on for a couple of years now. I have had many test including mri of head and spinal tap(ouch!) trying to figure it out.

    I did tell my specialist about insurance. He had already written script for mri technician to look at tmj. He then changed the order to as follows. Mri of the pre-auricular region needed to evaluate the status of that region. So I am hoping this will work. I will also discuss the mpd with Doc next time I go. I will also watch for the word surgery. This guy came highly recommended by my Dentist whom I have been going to for years.

    I am sorry that you both have had to go through this. But I'm going to be selfish here and tell you that it is great to have someone to discuss this with that have been through it. Thank you for sharing and I look forward to hearing from you.

    Bonnie

     
    Old 12-03-2005, 08:11 PM   #5
    TiffanyAnn
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    Re: 1st visit with Tmj specialist

    Quote:
    Originally Posted by bonib
    Thank you GT and Tiffany Ann,


    Tiffany Ann how are you responding to your therapy now? I am also curious if you don't mind my asking what type of symptoms did/do you have? Did either of you have any problems with your eyes? How long did you guys have symptoms before you found out tmd was your problem. Mine have been going on for a couple of years now. I have had many test including mri of head and spinal tap(ouch!) trying to figure it out.

    I did tell my specialist about insurance. He had already written script for mri technician to look at tmj. He then changed the order to as follows. Mri of the pre-auricular region needed to evaluate the status of that region. So I am hoping this will work. I will also discuss the mpd with Doc next time I go. I will also watch for the word surgery. This guy came highly recommended by my Dentist whom I have been going to for years.

    I am sorry that you both have had to go through this. But I'm going to be selfish here and tell you that it is great to have someone to discuss this with that have been through it. Thank you for sharing and I look forward to hearing from you.

    Bonnie
    Hi Bonnie:
    I had alot of symptoms. I had horrible headaches, I mean so bad I thought my head was going to explode right off my shoulders. I had blurring vision, clicking, popping and locking in my left jaw. I had dizziness, ringing in my ears, pain down my jaw and swelling in my glands around my jaw. Oh wow, I had TMJ for years before I actually found out what it was. I have known for about 18 years that my problem is TMJ. My treatment has included an MRI which showed I have a displaced left disc. I have been through 6 splints before I found the one that worked for me. I finished phase l and phase ll and I am currently using a lower splint at night and an upper retainer 24/7. My pain is greatly reduced, to a managable level. My ears only ring ocassionaly, the headaches have stopped so I feel that my treatment is succesful even though my disc was not recaptured. I have had several dentists and my orthodontist suggest surgery to me but I flatly refuse to have surgery. Of all the people I know who have had surgery 99% of them are not better and once they have one surgery they have other surgeries after that first one. If the surgery is so succesful why do these people have 3, 5, 15 surgeries on their TMJ. Surgery is often not succesful with TMJ. I am not willing to pay out all that money, suffer all that pain and run that risk so I refuse to have surgery and my treatment has been more sucessful than many who agree to surgery. I just do not believe that surgery works with TMJ. I hope I have answered all your questions. If you have other questions please feel free to ask and I will do my best to answer.
    Tiffany

     
    Old 12-04-2005, 03:16 PM   #6
    GoodThings
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    Re: 1st visit with Tmj specialist

    Quote:
    Originally Posted by bonib
    Thank you GT and Tiffany Ann,

    I appreciate your input. As I am new to this , I have a couple of questions to ask both of you. Gt You wrote to get a written Diagnosis, what is the purpose for this? And do you mean a report in writing? I hope you are right and he is honest.

    Tiffany Ann how are you responding to your therapy now? I am also curious if you don't mind my asking what type of symptoms did/do you have? Did either of you have any problems with your eyes? How long did you guys have symptoms before you found out tmd was your problem. Mine have been going on for a couple of years now. I have had many test including mri of head and spinal tap(ouch!) trying to figure it out.

    I did tell my specialist about insurance. He had already written script for mri technician to look at tmj. He then changed the order to as follows. Mri of the pre-auricular region needed to evaluate the status of that region. So I am hoping this will work. I will also discuss the mpd with Doc next time I go. I will also watch for the word surgery. This guy came highly recommended by my Dentist whom I have been going to for years.

    I am sorry that you both have had to go through this. But I'm going to be selfish here and tell you that it is great to have someone to discuss this with that have been through it. Thank you for sharing and I look forward to hearing from you.

    Bonnie
    Hello,
    I've had this damn thing for almost 3 years now. Very annoying. It all started when i broke a second left bottom molar (no wisdoms). Yes just one back molar will cause your muscles to pull your jaw up. So basically i was lacking "vertical dimension" on the left side.
    I noticed the muscle pull almost immediately. I was in perfect health so i knew this molar caused all this. My symptoms were headaches (muscle induced), eye twitching, felt like i couldn't open my right eye, and stiff neck. I knew the headaches were muscular because my head hurt when i chewed. I also had a tomogram of my joints which confirmed that my joints weren't sitting back there.
    After getting a crown, for some reason the dentist thought that the crown was contacting too high so she filled it down, my headaches disappeared, the eye twitching disappeared, oh forgot to mention that i also have blurring vision, that is still there along with stiff neck. My chief concern now is the stiff neck and the blurring vision, somedays are ok somedays are not.
    Thi is why i advocate having a second molar on my previous posts because without it your muscles will pull.
    Yes, get a written diagnosis. It is for your benefit and you'll know what's wrong with you. If the dentist can't tell you what's wrong with you, why bother with him/her? And ask how he/she is going to fix you. But make sure the treatmnet you get makes SENSE. good luck.

    GT

    Last edited by GoodThings; 12-04-2005 at 03:32 PM.

     
    Old 12-05-2005, 07:44 PM   #7
    bonib
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    Re: 1st visit with Tmj specialist

    Thanks everyone for all your great advice. I feel I am going in with a little more knowlege. GT I must tell you my molars were extracted when I was younger so I'm sure that is contributing to my problem. Like an idiot I kept making excuses to not replace them. Now I am paying the price.

    I hope you don't mind I'm going to list my symptoms. See what you think looks familiar.

    Earache pain & pressure in right ear
    Ears itches
    pulsatile tinnitus at times & regular tinnitus most of the time
    tightnessin head from back of neck over head to forhead on right side
    squeezing sensation on top of headalso on side of head down to neck( sometimes feels like something is pressing down on head) also feel this in temples on both sides and goes down side of head
    slight pins and needles sensatin in head
    right eye feels like it is strained and waters
    nastagmus- my visual field seems to slowly move at all times (nothing found on brain mri)
    occular migraines just started in last year
    neck & shoulder pain and at times arm pain
    tingling
    pain from base ear down side to front of neck
    pain in jaw in front of ear
    At time I have a feeling of motion (like you are floating in a boat) I know that sounds strange but I'm throwing it in there just to see what you all think
    a sense of being off balanced at time
    trouble swallowing, food seems to take a long time going down(have had a normal endoscopy)
    numb like sensation on lower right side of face where lower bottom teeth are located.
    I don't have clicking or popping I have more of a sound you hear when a muscle is being stretched.

    Sorry for the length of post. I have never written them all down before, didn't realize there where so many. I am really curious to see how many of these symptoms can be correlated to tmjd. I have my mri in a.m. I will let you know how it turns out and what Dr. suggests. Thanks for your time and patience.

    Bonnie

     
    Old 12-09-2005, 03:18 PM   #8
    GoodThings
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    Re: 1st visit with Tmj specialist

    Hello,
    Most of the symptoms seem familiar. Ear itch and nastagmus, i am not quite sure of. You have to understand that many people have very different symptoms. My experience is that if one of your joints is off by just a little bit, you can develop symptoms. So, in my opinion, two people that have "tmj" problems with just a slight difference in joint dislocation will develop different symptoms. But one thing that's common in both of these people, if they developed severe "tmj," is HEADACHES.
    "Trouble swallowing" i have experience with. It seems that when my left joint is pulled up, my esophagus (left side) has become a bit tight when i swallow while my right side feels normal. That's my experience.

    GT

     
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