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    Old 08-31-2007, 09:00 PM   #1
    sparkadoodle
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    Anteriorly Dislocated Disc Without Recapture

    Hi all,

    Has anyone else received this diagnosis? If so, would you be willing to share:
    a. What type of treatment you're undergoing; b. How successful the treatments have been; c. How long you've been under treatment; d. What kind of doctor you see (or would recommend seeing); e. Anything else you think it would be useful for a newbie to know.

    Thanks!

     
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    Old 09-01-2007, 11:12 AM   #2
    MalAlPal6
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    Re: Anteriorly Dislocated Disc Without Recapture

    Hi,

    I am pretty new to this TMJ thing, about 3 months into it. My diagnosis that I just got last week, was very similiar to your own. My left disc is anteriorly displaced, and my right disc is in the early stages of displacement. I am currently seeing a TMJ specialist who, I guess, would be considered a pain specialistl, not a dentist.

    According to my TMJ specialist, as long as the joints are stabilized when the most pressure is normally on it(for me that would be at night as I am a clencher/grinder), the joints should form "pseudo-discs" that will allow the displaced discs to glide back into position upon opening and closing of the mouth instead of the popping which is caused when the discs hit the top of the condoyle head while trying to slip back into place. (it causes some resistance against the disc as it trys to squeeze back into place, causing the popping or clicking sound) Once this "pseudo-disc" is formed, most if not all of the symptoms should resolve. He said that many people live with displaced discs and don't even know they have them bc they are pain free, yet they normally still have the popping sounds bc after all they still have a displaced disc. My specialist was actually trained under Parker E Mahan, the author of one of the first TMJ books published, so I hope he is right. He was very confident that in 6 months, I should be feeling much better...please God, don't let him be wrong.

    I hope something that I have said has helped you or at least given you some hope.

     
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    Old 09-03-2007, 03:55 PM   #3
    sparkadoodle
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    Re: Anteriorly Dislocated Disc Without Recapture

    Thanks so much for your response MalAlPal6....yes this info does help some, I always feel the more info the better.

    Sorry to hear that you have the issue on *both* sides. That must be really rough! Are you having a lot of problems eating? Sounds as though you have problems with popping or clicking....Strangely I don't think I've experienced any popping or clicking. But my MRI does show irritation to a few surrounding bone areas and probably some fluid (due to the irritation). I guess that was what was causing the severe chewing pain I experienced initially. My doctor put me on short term treatment with prednisone and a soft diet and that did seem to help improve the chewing pain a bit.

    Best of luck to you, please keep us posted as your treatment progesses. If I get any additional helpful info when I meet with the specialist I'll be sure to share it with you.

    Thanks again.

     
    Old 09-04-2007, 10:47 PM   #4
    MalAlPal6
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    Re: Anteriorly Dislocated Disc Without Recapture

    Hey thanks sparkadoodle,

    My doctor didn't really explain what an anteriorly displaced disc without recapture is, so I did some research on it since I left this post, and I think that my displacement may be "with recapture," as I am pretty sure the popping and clicking sounds are made when the disc is being "recaptured." ie like when I'm closing my mouth Correct me if I'm wrong, but if this is true, then you wouldn't have any popping and/or clicking right? So what is your long-term treatment plan, and has your short-term treatment plan been helping you at all? You mentioned that you have a lot of pain when you are chewing, but my pain is all the time. A lot of muscular pain in the temples and masseter muscles, with swelling and stiffness near or at the joints. Do you only have the pain when you are chewing? Its strange that we both have displaced discs, but totally different symptoms. This TMJ thing is just a bit ridiculous if you ask me...

    Good luck when you go see your specialist..I hope they will have good news for you!

     
    Old 09-07-2007, 08:09 PM   #5
    sparkadoodle
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    Re: Anteriorly Dislocated Disc Without Recapture

    Hi MalAlPal6,

    So sorry I didn't respond sooner....have been busy, and mistakenly thought I had already responded.

    To answer your question, I really don't have a plan yet because, although I've received my MRI results, I don't see the TMJ specialist until next week. The ENT doctor who ordered the MRIs mentioned that treatment would likely involve (splints?) night AND day, possible cortisone injections in the jaw, and surgery only if all else failed....but I don't know if he was mentioning those as standard TMJ treatments, or because he thought they were the solution to my specific problem.

    As far as my symptoms, yes, I guess I'm really fortunate that I don't have pain all the time as you do, or headaches, etc. the way many people seem to. I do experience pain in my jaw, and sometimes discomfort in my ear, when i chew. I do experience a diffuse tenderness, mostly under my chin, especially if I've eaten something crunchy. I stick mostly to a soft diet and try not to force my mouth open too wide. I also have what I think may be slightly swollen lymph nodes (?) at the top of my neck (maybe due to the inflammation the MRI shows?).

    I'm sorry to hear that not only do you have the problem on both sides, but that it hurts constantly. What kind of treatment plan is your TMJ specialist recommending, and when do you begin? Are you eating a soft diet?

    I'll let you know what I find out when I go to the specialist in a few days....

     
    Old 09-16-2007, 12:39 PM   #6
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    Re: Anteriorly Dislocated Disc Without Recapture

    Hi,

    Here's the update I promised. I saw the TMJ specialist, and from what I can tell, his plan seems pretty standard. He's recommended that I continue with a soft diet and take NSAIDs for a few weeks in an attempt to reduce inflammation. At the end of that period, if there is is insufficient improvement in my pain and mobility levels, the next step will be pivotal splint therapy. If splint therapy is unsuccessful, we will discuss surgical treatments.

    My question is this: has anyone else had success with pivotal splint therapy for this problem??? I'm concerned, because it seems as though pivotal splints may fall into the category of "repositioning," rather than "stablization" splints. I've read that when internal derangement reaches "stage 3" (closed lock), repositioning rather than stabilization splints are used, so I guess I shouldn't be that surprised. It's just that the idea of a repositioning splint makes me nervous....

    Thanks in advance for any input anyone can give!

     
    Old 09-26-2007, 12:45 PM   #7
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    Re: Anteriorly Dislocated Disc Without Recapture

    I am sorry that to here that you are going down the road of lets try this and see. Been there for a while now. I am 20 years old and have been in and out of nuerologists offices, chiropractor, and oral surgeons plus a few in between, for over five years now. I have a splint that i've been using for about four years. It helped very little and didn't slow down the progression. I was told at 16 or 17 that I needed surgery. (By the way my left joint is anteriorly dislocated disc without recapture, my right isn't I can't remember what its problem is.) I will be getting surgery on both sides once my family and I can figure out a way to pay for it. My insurance company is denying coverage for TMJD. I've done physical therapy which made it worse. I've been on naproxen, relafen, flexeril, robaxin, and more. The only thing that helps is narcotic pain killers like hydrocodone. They are hesitant to give me it because of my age. I am in severe pain everyday and am told to live with it and get over it. I really hope the splint works for you and wish you the best of luck.

    stephgirl

     
    Old 09-27-2007, 08:56 PM   #8
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    Re: Anteriorly Dislocated Disc Without Recapture

    Hi Stephgirl,

    Thanks for your response. Am so sorry to hear about how difficult it has been for you, and especially at such a young age. Just a couple of thoughts in response to what you wrote:

    Do you have any idea why the splints didn't work for you? Had you had the problem for a long time prior to beginning splint therapy? The reason I ask is that my doctor told me that once you've developed adhesions in the inflamed areas surrounding the disc, splint therapy will probably not be effective. At that point, it sounds as though the only remedy is surgery. For that reason, he said that if I'd been experiencing symptoms for over a year, he would have recommended surgery rather than splint therapy. My MRIs definitely show inflammation, but apparently adhesions are not visible on MRIs, so I won't really know if I have adhesions until I've given the splint therapy a try.

    Re: your insurance company's refusal to cover you for TMJD, I have the same problem, and I think a lot of people do. But did you check to see if they will cover you for TMJD surgery specifically? The reason I ask is that when I called my (medical) insurance company they said that they don't cover me for TMJD treatment. But when I rephrased the question and asked them if there was anything they cover for my diagnositic codes they said they cover physical therapy and surgery. It's worth a try.

    I do hope your pain levels decrease....Please keep us posted.

    Best of luck!

     
    Old 09-28-2007, 03:22 PM   #9
    alorcoy
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    Re: Anteriorly Dislocated Disc Without Recapture

    Sorry to hear about the troubles ... this is a nasty disorder and so little is known about it.

    Sparkadoodle, I thought what you wrote was really interesting:
    "Do you have any idea why the splints didn't work for you? Had you had the problem for a long time prior to beginning splint therapy? The reason I ask is that my doctor told me that once you've developed adhesions in the inflamed areas surrounding the disc, splint therapy will probably not be effective. At that point, it sounds as though the only remedy is surgery. For that reason, he said that if I'd been experiencing symptoms for over a year, he would have recommended surgery rather than splint therapy. My MRIs definitely show inflammation, but apparently adhesions are not visible on MRIs, so I won't really know if I have adhesions until I've given the splint therapy a try."

    I have had TMJ problems for years and splint therapy helps a little, but I'm still in pain. I've had my new splint for 6 months, and part of me thinks that I need to move on to an oral surgeon that can just do surgery if needed. I wonder if I have these lesions. Anything else your doc said about them, anywhere to read anything that you know of?

    Thanks,
    alorcoy

     
    Old 09-30-2007, 01:03 PM   #10
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    Re: Anteriorly Dislocated Disc Without Recapture

    Hi alorcoy,

    Sorry to hear that this has been going on so long for you, and that the splints have not been effective. I have the feeling I may be headed in the same direction. In my case, although I've only been aware of the problem for the last few months--I don't remember any pain before recently and have never experienced any clicking--it must have been going on for awhile to have reached this stage.

    Offhand I can't think of anything else my doctor said that might be of interest to you, but if I can think of anything else I'll be sure to post again. Also, when I have the opportunity to do a little more research, if I come up with anything I think you might be interested in, I'll let you know.

    Best of luck, and pls. stay in touch to let us know how things go for you. Also, I'd be interested in hearing what any other doctors you consult with have to say.

     
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