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Cfs & Tmj?

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Old 09-22-2007, 08:38 PM   #1
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ponygirl1975 HB User
Cfs & Tmj?

I have been diagnosed with chronic fatigue syndrome and TMJ, my doctor said they are connected. Anyone else?
My life is a mess!
I had a misalignment on my left side, with face pain and numbness (still do). For 2 years I worn a hard upper acrylic type splint pretty much 24/7. Plus trigger-point injections and a arthrocentesis procedure. Still HORRIBLE headaches and face pain, I don't get much jaw pain just cheek and head.
I finally saw a neurologist. He found nothing!
All that money spend on a tmj specialist plus other doctors and still no relief, so I went to another TMJ doctor and he made me a soft night guard for my bottom teeth. Now 6 months later still not much relief. Sometime I can go weeks without much pain them bam hit again!
Now I am seeing a pain management doctor! What a cycle> plus I need dental work but my jaw is so lock up my dentist can't get into my mouth! I had a cleaning last week and my jaw is still shaking!
I did have one filling in the front, my dentist used some kind of mouth piece I could bite down on to rest my jaw.
Not even sure what I am asking, been through so many treatments, just wondering if anyone can relate?

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Old 09-24-2007, 08:09 AM   #2
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Join Date: Apr 2004
Location: Rockland County, NY
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Thelma-Louise HB UserThelma-Louise HB UserThelma-Louise HB User
Re: Cfs & Tmj?

Most definitely - I have chronic body pain that seems to flare up whenever I exert myself to do more than the minimal daily things. Raking leaves or emptying the china cabinet to wash everything leaves me immoblized for several days. I also went to several neuros and had several neurological tests done with all having "inconclusive" results meaning they found nothing significant but the body pain (I initially had muscle twitching as well) started when I started with the facial and jaw pain and my jaws became out of alignment. I do feel there is a relationship to the tmj and CFS.

Old 12-29-2007, 06:55 PM   #3
Join Date: Jun 2003
Location: Arizona
Posts: 94
Stphanie1 HB User
Re: Cfs & Tmj?

I had a cleaning last week and my jaw is still shaking!
Can you explain to me what you mean by this please? I think I might have that too. At least when I get work done on my teeth and I have to hold open my mouth too long my bottom jaw--lips shake (quiver) uncontroably.

Can anyone explain what that is??

Thank you I am just searching until I find out what is wrong with me and what is causing my pain.

Last edited by Stphanie1; 12-29-2007 at 06:56 PM.

Old 12-31-2007, 12:44 AM   #4
Join Date: Sep 2005
Location: chicago,usa
Posts: 77
mooaa HB User
Re: Cfs & Tmj?

hi ,i have fibromyalgia (it similar to cfs)and tmj too so i am suffring a lot and tried six splints and diffrent night guard with no reliefe actully i got worse so they told me your tmj is connected to the fibromylgia that was their answer becuse they could not help me at all and i stopped trying anything also i spent a lot of mony i hope to be healed by a mirale from the god and of course for you and all of us .

Old 12-31-2007, 06:36 PM   #5
Join Date: Jun 2003
Location: Arizona
Posts: 94
Stphanie1 HB User
Re: Cfs & Tmj?

Do you have any of my listed symtoms? If so what do you do for relief for each one as I am in such pain?

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