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    Old 02-03-2008, 06:09 AM   #1
    gorgee
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    having a bad day with tmj

    good morning, I have tmjd, and I was wondering if anybody out there has good and bad days? It is not only my tmjd that has flared up but my whole body too. My body just hurts when I move, and when I got up this morning I had to take it very slow walking down the stairs, I was so sore. Last night, I felt horrible, I now feel like it was my warning that today was going to be rough. I have taken my normal medcines this morning and still feel horrible. It feels like my upper teeth/jaw are inflammed,shifting, and painful throbbing. It hurts to talk and eat today. My joints in my body, knees, ankles, fingers are all sore too. I have had days like this before, and I was hopeful that with a medication change, and my life not being so stressful, the whole body thing would go away, but it has not. Do this sound like I have the beginnings of fibro/ or arthritis? I am waiting for insurance approval for surgery for my tmj. My left side disc is almost gone and the right is on the way. Does anybody else go through this, and what helps you cope? I see my dr, who treats my tmjd and does manipulation, on Tuesday, and I feel like something else is wrong, or is all my tmj wreaking havoc. I live in Maine, and the weather here is cloudy and cold, sometimes I know my pain is made worse by the weather. Does anybody else have this, or any suggestions? I do not want anybody to ever go through this pain, but sometimes reading other people's stories make me feel not so alone. Thank you.

     
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    Old 02-03-2008, 07:31 AM   #2
    MissHeadache
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    Re: having a bad day with tmj

    I have good days and bad days. On a good day I can forget about my jaw completely but on a bad day I really know about it. On a bad day I have an awful headache, my back, neck and shoulders ache, my jaw is sore and tired, I get numb fingertips especially if I carry shopping bags back from the supermarket. I feel so down and miserable and can't face going to work or socialising. I clench my teeth so hard in my sleep that I wake up with aching teeth and have dreams where all my teeth fall out. TMJ really can affect your whole body. What type of surgery are you waiting for? Have you tried splint therapy, it helps a lotof people? You might need to try some different medication - have you tried asking for prescription meds instead of over the counter ones? The antidepressant amytriptyline is often prescribed along with painkillers for people with TMJ as it helps you to relax and alters the way your nerves respond to pain signals. If you are worried about other conditions such as arthritis you should see your regular (not TMJ) doctor. Good luck.

    Last edited by MissHeadache; 02-03-2008 at 07:39 AM. Reason: spelling

     
    Old 02-03-2008, 10:01 AM   #3
    gorgee
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    Re: having a bad day with tmj

    Thank you for writing me back. I see my regular doctor to care for my tmj right now. The surgeon that I saw in Boston is 4-5 hours away, and I am waiting for arthroscopic surgery. I take rx meds, and have had tmjd for over 7 years. I have had flare ups off and on and were able to take care of them with heat,cold, and otc meds. Then in September, it was horrible, and it stayed. I have had xrays and mri all show abnormalties. I suffer everyday, and some are better than others. I have not tried splint therapy, officially. My dentist will not fit me for one because she feels I need surgery. Also, I find in Maine it is hard to help. I am also a stay at home mom of 2 boys, and it gets hard going to doctors appt, dentists, physical therapy etc every week. So we will see what the ins. says on Tuesday, I have my official appeal. Thanks again for writing me back, and I love any suggestions.

     
    Old 02-03-2008, 01:00 PM   #4
    Thelma-Louise
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    Re: having a bad day with tmj

    If possible try and find a chiro-kinesiologist. The body pain generally results from the structural alignment issues the tmj can cause. I am on my 3rd chiro now and finally am getting some relief with the overall body pain after suffering with it for almost 4 yrs - even though I am still having tmj or jaw imblance and dysfunction issues. I would have many bad days and then "BAD" days where I couldn't move the pain was so intense all over - it felt like my whole body had been pummeled or beaten - joints, muscles, bones - it all just hurt to the touch - so walking, sitting, moving around just become such an effort. My sleeping was disturbed by frequent body jerking - arms, hands, feet, etc.

    I know the surgery sounds like it may be the cure-all to end all - but if your body structure from the c-spine down has been altered due to the TMJ I am not so certain surgery to correct the jaw or tm joints will automatically correct that - so you still may need some type of post-surgery alternative therapy afterwards.

    Also you may want to look into trying chondrotin. glucosamine and MSM and magesium and maganese as supplements. Sometimes these can help. I am thinking about trying the lyrica I have seen advertised on tv - I see my PCP in a couple weeks and will ask if he thinks it may help.

     
    Old 02-03-2008, 05:35 PM   #5
    gorgee
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    Re: having a bad day with tmj

    Thank you for your input. It sounds like we have a lot of the same symptoms. The new ones I have lately are temporarily lhearing loss in my left ear, and at night when I am laying down my legs and arms jerk randomly. It scares me, but having you talk about it makes me feel better. I know that surgery will not fix it all, but it feels like bone on bone, and my talking is impaired, and hurts so badly. I mean come one, talking! I know that I will need physical therapy after. What do you think about Fibromaylgia? I have read that tmjd and fibromyalgia go hand in hand. I just need help, and it seems so hard to find the right people. I had a great appt. that I was lucky to get the other day with a surgeon here in the town I live in. I was so excited I cried. A surgeon, that could help me, was going to see me! The next day 20 min. before the appt. they called and said that the surgeon wanted to see me in 2 weeks, because maybe my tmjd was just flared up. I explained to the receptionist, who we know and who got me in, that I have had chronic tmjd since September. She said she understood but still 2 weeks. I cried. This is not going away, but talking to other people helps so much. Thank you. If you don't mind my asking what meds work for you? Thanks again, Kassandra

     
    Old 02-03-2008, 10:41 PM   #6
    Thelma-Louise
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    Re: having a bad day with tmj

    I have tried various meds over the the last few years - vicodin, celebrex, bextra, morphine, darvocette, diflusinal,flexeril, skeleaxin - to name a few and then went to a pain mgmt clinic at a dental university and was prescribed Triavil (perpha****ne + amitripyline) and baclofen so I stick with them since all the others either did nothing or caused other side affects - plus I take naproxen as well. But I am always groggy, sleepy, etc. with these as well. I tend to agree that the fibro is a result or another symptom of the tmj - my PCP does not even feel fibro is a "real" condition - but again just a symptom of some other ailment - but then again - he doesn't think tmj can cause the symptoms I have either - he's real old school.

    Although I know you are eager to have this resolved, try not to get overly optimistic about your upcoming appt. Often many patients wait and wait for an appt with "the" specialist only to be told to give it more time, to try other non-surgical approaches and treatments first, etc. Many come away very disappointed. Surgery brings with it its own risks and problems and does not always eliminate all the pain and symptoms.

    But do be prepared to discuss with the surgeon the problems (symptoms, pain, etc) you are having, your previous dental history and bring previous x-rays if you have them - it will save you some time and money. A good surgeon will do an extensive Q&A with you, a thorough examination of your teeth and bite, jaws, neck, temples (where the joints are), check the lateral mobility and opening of your mouth and possibly do some pressure point testing using your arms or legs and should request a tomogram or MRI or CT scan of your jaws.

    In the mean time you should try applying warm moist compresses to your face, neck and head quite often, especially before retiring at night and doing some neck rolls or stretching exercises which can sometimes help the muscles relax a bit.

    PS the hearing loss is fairly common too - tmj can cause some really odd things - when you only get a few symptoms - most tend to shrug them off unless they start to interfere with daily life - but when you start getting the whole "shabang" it can be quite scary.

    Good luck and let us know how your appt goes.

     
    Old 02-04-2008, 06:14 AM   #7
    gorgee
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    Re: having a bad day with tmj

    Well i have many appts. coming up. I have my appeal with my ins comp. tomorrow over the phone, I have my reg check up with my doc. also tomorrow, and then on Thursday I meet with a new surgeon in Portland. Hopefully my arthroscopic surgery will be approved tomorrow, it has been a battle for 5 months, that surgery is at Mass General, but I would like it to be here in Maine. I would like to find a surgeon in Portland or Bangor. I have been living with mutiple symptoms everyday, and it is old. I am scared that I am going to deal with this for awhile. This is not a flare-up. The medicines I am on are not as effective now, and unfortunately, I just dont feel good, and it has changed my quality of life. My boys, 2 and 4, are really good, and they understand that mommy has good days and bad days. I want to get this under control and have at least 1 more child. Currently, I am on flexerill,ultram er, vicoprofen, diazepam, and lexapro.
    I have learned not to get my hopes up that this person will help me, but it is hard. I am praying everyday, and other people are too, that I can get on the right path and find help to start feeling better and getting this condition under control. I do feel that the discs, or lack of, have a major part in my face pain, and therefore my whole body is off. Thank you for taking the time to write to me. I will let you know how my appt. go.

     
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