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TMJ Disorder -TemporoMandibular Joint Message Board

TMJD surgery master

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Old 09-30-2008, 09:00 PM   #1
Join Date: Sep 2008
Location: Fremont, CA, USA
Posts: 1
Quasi HB User
Unhappy TMJD surgery master

Hello, I have been trying to find others in my situation, it seems I finally have.
So over the last 10 years I have had 5 surgery's and am now lined up to have another on Oct 17th and the BIG one, bi-lateral joint replacement. I am the youngest patient to have this surgery from this doctor, by 6 years. This is the 4th opinion I have had, they are all the same.
I am dreading this and I am excited and hopeful. To just reduce the pain a little and it will be a success. I would like to talk with anyone who has had this surgery.. I have questions

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Old 10-06-2008, 09:27 PM   #2
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Join Date: Jun 2004
Location: The Sunshine State
Posts: 223
meditation HB User
Re: TMJD surgery master

While not new to this board, I haven't been on for quite a while. My story is a long one, one which has left me an essential loner....

I felt compelled by your post, to come online and talk to you about one of my 14 TMJ surgeries, the one I had on my 31st birthday.

I had the exact surgery that you will be undergoing next week. I am not here to change your mind. We all have to make the best decisions for ourselves.

I think one of the main reasons I felt like I had to respond is because... I hope and pray this surgery will reduce your pain. I truly do. But, this surgery is not the end all be all......

PLEASE give yourself a lot of time to rest and recuperate. I had to take 3 months off from work..and, was told by my doc I really needed to take 6 months (as I am a college professor whose mouth is her life line).

Just rest. Take it easy.

As I stated, I had my bilateral total joint replacement done on my 31 birthday...That was almost 3 years ago. I have been told my pain will never go away. To this day, I am on countless medications (including narcotics) to get through the day. My hearing and vision go out (something I never had issues with before). The bone that is remaining on my mandible can not be touched on either side....or, the floodgate of tears opens up.

The one thing that I matter what...ask whatever questions you feel are pertinent...I had a list of questions, some of them my surgeon thought were stupid. He even laughed at me. For instance, I asked him about getting my teeth cleaned. He just relayed, "Go to the dentist". Well, no dentist will touch me...because they are afraid of the liability...which, I can not really blame them. I asked him about childbirth, should I want children later... Though I have never had children, I can understand the pressure put on the jaw....especially one that is fake in nature.

Again, I don't want to dissuade you. I just felt compelled to tell you my story. Because, the pain I feel, the neurological issues I have (passing out from the pain, now), the depression I feel, the isolation from the medical community........... I just don't want anyone else to go through this.

Regardless, you will be in my thoughts next week. Though the surgery is a long one, I truly believe you will be fine. And, I pray for a speedy recovery for you.


Old 10-14-2008, 09:26 PM   #3
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Join Date: Oct 2005
Location: spokane,Wa
Posts: 44
realtydog HB User
Hey Meditation!!!

I am a 34 yr. old female. I have had several open joint jaw surgeries that failed. As a last resort, I had total joint replacements in 1997. The implants at that time were cobalt chrome. Within two years of the implants I was in pain again and no doctor could tell me why. Finally, in 2004, my surgeon agreed to open my face to see what was wrong inside. Much to all of our surprise I had reacted to the metal and the inside of my face had of dead, black bone, a.k.a. metalosis. I had the implants removed immediately. Currently, I am in a debilitating amount of pain and just wondering if anyone else has had implants removed and how they are feeling? Any feedback would be helpful! Thanks!

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