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  • Please help! New tmj diagnosis horrible pain!!!!

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    Old 01-06-2009, 06:15 PM   #1
    4fourlegs
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    Please help! New tmj diagnosis horrible pain!!!!

    I was diagnosed with TMJ about 6 months ago following a broken tooth being repaired. At that time the pain only lasted 4 or five days and was relieved with muscle relaxers and soft diet. However, about 8 weeks ago i started having sharp pains in the right side of my head followed by ear pain and a horrible headache. after 2 days i went to the doctor and they said i had a sinus infection and gave me antibiotics and a decongestant. After the ten day meds i was feeling better for about three days then it happened all over again...the Dr. said the sinus infection must be worse or had recurred. Another 10 days of the same meds was prescribed. Three days into the meds my headache was getting worse, at that point they put me on steriods and still no relief, although my sinus were very clear! I already had an appointment with a TMJ specialist but did not think that the headache was caused by tmj as i have had no real issues with my jaw unless having dental work. They took x-rays and it turns out that i have complete subluxations on each side upon opening my mouth, also my muscles were all contracted throughout my head. the tmj guy said that all of my head pain was due to TMJ and that i needed muscle relaxers, a splint and physical therapy. I agreed but was then put off when they said that they wouldn't treat me at all without a signed treatment agreement. the treatment was coved by my insurance so i don't think it was a monetary concern and it sort of made me think that the recommended treatment was a little hokey so i didn't sign anything and decided to do some more research first. I spoke with my dentist and after reading the report he agreed on the treatment recommended with the exception of physical therapy. He gave me Robaxin (muscle relaxers) and is fitting me for a splint tomorrow. My real concern is that i haven't seen any posts from people having the head pain that i am having and i am afraid that there is something else i should be looking for as the cause. It has now been eight and a half weeks with horrible pain and i don't know that i have any hope that a splint is going to help me.

    Can anyone help me feel reassured that this will get better with tmj treatment?

    Does anyone else have a daily headache with occasional sharp stabbing pain?

    Any information would be greatly appreciated!!
    Thanks
    -JMB

     
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    Old 01-06-2009, 07:13 PM   #2
    cobiagirl
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    I have a daily headache with daily sharp stabbing pain. I havent been able to eat any solid foods since April 2008. I also have a splint that I wear everynight, I grind my teath really bad. I have grinded down the acrylic. I really can't give you any good news, hopefully someone else can do that for me. I can't even go see my doctor until April 2009 because of Pre-existing with my insurance and I cant afford it without it. But I wanted you to know that you arent the only person having severe pain.

     
    Old 01-06-2009, 09:05 PM   #3
    4fourlegs
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    thank you so much for responding to me. i am going to get fitted in the morning for my splint. i not going to the tmj specialist because while i liked the doctor, they wanted me to agree to physical therapy before they would do anything and i just haven't seen any evidence that PT works for TMJ. all of the reports i have read are 50/50.
    I was out of my robaxin for three days and grinded my teeth so badly that i chipped three in two nights....great another dentist bill!
    I am sorry to hear that you feel the same as i do but at least neither one of us feel like it's only us!
    i will write after my appointment tomorrow.
    BTW the Robaxin really helps me during the day, although i think that i need something stronger for night time when i am doing the most damage.

    do you also have ear and throat pain...my ears have been terrible but after being off the roxaxin for three days now my throat and tongue muscles are so painful.

     
    Old 01-06-2009, 10:09 PM   #4
    Thelma-Louise
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    Head pain - including migraines, stabbing or shooting pain in the head or around the ears and neck, tingling or numbness, etc is pretty common with tmj and so is what the tmj specialist recommended including the PT, which I might add should be covered by most medical insurances. Most PT for tmj (it should be done by a therapist trained in treating tmj or one who specializes in sport injuries) includes warm moist compresses, massage, ultra sound and use of a tens unit and even manual palpitation of the oral and facial muscles. Doing PT while undergoing splint therapy provides the most optimal and quickest relief as it helps the muscles return to their normal relaxed position and functioning - which is necessary for the splint to work as it should as well.

    Good luck with your appt tomorrow.

    Last edited by Thelma-Louise; 01-06-2009 at 10:11 PM.

     
    Old 01-07-2009, 06:54 AM   #5
    cobiagirl
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    Yeah, I have problems with my ears hurting. Mine feels like I have a severe ear infection all the time, but of course I don't. When I go to the doctor they always check my ears like they dont believe me or something. But I hope your appointment went well this morning.

     
    Old 01-08-2009, 05:34 PM   #6
    4fourlegs
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    i am sorry that they don't believe you, keep trying to find someone who does. it took me three doctors to have someone realize that my pain in my ears was real.

    My appointment went well. they took impressions which was really painful, but will be worth it when i the the NTI device. they also said that getting braces will be a great long term solution for me since a lot of my problem is my bite. he also gave me Soma, a stronger muscle relaxer to take at night and last night was a much better night than i have had in a long time. I actually slept all night and woke up with less muscle tension but still a headache. I was feeling better most of the day but actually got a full blown migraine about 2 this afternoon i think that has more to do with my birth control than anything else.

    You should try to find a new doctor, if there was nothing wrong than you wouldn't feel bad...Keep trying!!!! i know there is help out there for us it just take time.

     
    Old 01-08-2009, 05:45 PM   #7
    4fourlegs
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    Quote:
    Originally Posted by Thelma-Louise View Post
    Head pain - including migraines, stabbing or shooting pain in the head or around the ears and neck, tingling or numbness, etc is pretty common with tmj and so is what the tmj specialist recommended including the PT, which I might add should be covered by most medical insurances. Most PT for tmj (it should be done by a therapist trained in treating tmj or one who specializes in sport injuries) includes warm moist compresses, massage, ultra sound and use of a tens unit and even manual palpitation of the oral and facial muscles. Doing PT while undergoing splint therapy provides the most optimal and quickest relief as it helps the muscles return to their normal relaxed position and functioning - which is necessary for the splint to work as it should as well.

    Good luck with your appt tomorrow.
    I know that there are reports out there that PT works but i have found just as many that is does not. and though it is covered by my insurance, there is only one place in the area that does this treatment and they are unavailable when i am - taking time off work twice a week is not feasible for me, i am not sure that anyone would have the ability to do that and still keep their job. I am going the biofeedback route with the NTI device and they recommend braces to correct the underlying problems with my bite. They also changed my medication to Soma and i already see a difference although i can not take it during the day.
    BTW getting impressions for the mouth piece....NOT FUN!!!

    Also, will i ever be able to eat again without pain? I am down a total of 13 pounds to date and i was already a bit thin to start, i am afraid that part of my headache is because i am malnourished.

     
    Old 01-08-2009, 08:48 PM   #8
    Thelma-Louise
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    I didn't mean to suggest or imply that PT works to "cure" or "fix" tmj merely that is often used in conjunction with dental treatments which should actually correct the source or root problem - appropriate PT (or other alternative therapies such as chiro, cranial sacral, acupuncture, etc) for tmj can often help the muscles relax and regain their proper functioning quicker than wearing an NTI or any orthotic appliance alone, but of course it is not a necessary or required treatment nor is it right for everyone. I wish you the best of luck with your treatment and a speedy a recovery.

     
    Old 01-09-2009, 07:18 AM   #9
    cobiagirl
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    Glad your appointment went well. Yeah, I hated getting those impressions simply for the fact that it was VERY painful for me too!!! I had to get braces in middle school for the same reason, but I have joint dysfunction and deterioration so the braces didn't help me, but dont make that change your mind, everything helps people in different ways, I just got the bad end of the deal with TMJ. Before my 1st and 2nd surgery in 2006/2007 I had lost a total of 40 lbs. I wasnt a big girl but I had baby fat on me. Since my last surgery and since I have been having problems again, I have lost like 20 lbs. I have to get smoothies from places with protein. You should try that. I cant suck through a straw because it hurts to bad so I drink it either just with the cup or with a small spoon. I have to do something like that because now I am pretty skinny and if you didnt know me and didnt know what was going on with me not able to eat anything but soup and mashed potatoes they would think i was anorexic... however you spell that... But I keep looking for a doctor that will do something for me that will help. I have flexeril but it makes me to grogy in the mornings so i cant take it. Every doctor I go to trys to prescribe that to me and when I tell them i cant take it they just kinda ingore that i ever said it and continously keep trying to push it on me. KIT

     
    Old 01-10-2009, 04:59 AM   #10
    luvtocamp
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    cobiagirl- skelaxtin is a muscle relaxer that doesn't make one sleepy, and also I take soma sometimes at night and am not sleepy in the morning.

    I think one of the problems with this disorder is we don't get our nutrients either as it affects our food intake. make sure your taking a good daily MVI, I use a liquid vitamin, and I find magnesium helps with the muscles. I also do the whey protein if my protein intake that day is low, and of course lot of water.

     
    Old 01-12-2009, 04:20 PM   #11
    4fourlegs
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    Quote:
    Originally Posted by cobiagirl View Post
    Glad your appointment went well. Yeah, I hated getting those impressions simply for the fact that it was VERY painful for me too!!! I had to get braces in middle school for the same reason, but I have joint dysfunction and deterioration so the braces didn't help me, but dont make that change your mind, everything helps people in different ways, I just got the bad end of the deal with TMJ. Before my 1st and 2nd surgery in 2006/2007 I had lost a total of 40 lbs. I wasnt a big girl but I had baby fat on me. Since my last surgery and since I have been having problems again, I have lost like 20 lbs. I have to get smoothies from places with protein. You should try that. I cant suck through a straw because it hurts to bad so I drink it either just with the cup or with a small spoon. I have to do something like that because now I am pretty skinny and if you didnt know me and didnt know what was going on with me not able to eat anything but soup and mashed potatoes they would think i was anorexic... however you spell that... But I keep looking for a doctor that will do something for me that will help. I have flexeril but it makes me to grogy in the mornings so i cant take it. Every doctor I go to trys to prescribe that to me and when I tell them i cant take it they just kinda ingore that i ever said it and continously keep trying to push it on me. KIT
    thanks! i have been taking Soma at bedtime for the past week and WHAT A DIFFERENCE!! i had almost no headache for the past three days and have slept very well. my NTI should be in this week so i am waiting for that to fix the four teeth i have broken over the past two months while sleeping.

     
    Old 01-12-2009, 04:21 PM   #12
    4fourlegs
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    Quote:
    Originally Posted by Thelma-Louise View Post
    I didn't mean to suggest or imply that PT works to "cure" or "fix" tmj merely that is often used in conjunction with dental treatments which should actually correct the source or root problem - appropriate PT (or other alternative therapies such as chiro, cranial sacral, acupuncture, etc) for tmj can often help the muscles relax and regain their proper functioning quicker than wearing an NTI or any orthotic appliance alone, but of course it is not a necessary or required treatment nor is it right for everyone. I wish you the best of luck with your treatment and a speedy a recovery.
    How often does this tend to relapse? I have been doing really well since starting the Soma but i am wondering what will happen when i stop taking it. I feel like i am doing well enough to stop taking meds soon, is that wise?

     
    Old 01-12-2009, 04:23 PM   #13
    4fourlegs
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    Re: Please help! New tmj diagnosis horrible pain!!!!

    Quote:
    Originally Posted by luvtocamp View Post
    cobiagirl- skelaxtin is a muscle relaxer that doesn't make one sleepy, and also I take soma sometimes at night and am not sleepy in the morning.

    I think one of the problems with this disorder is we don't get our nutrients either as it affects our food intake. make sure your taking a good daily MVI, I use a liquid vitamin, and I find magnesium helps with the muscles. I also do the whey protein if my protein intake that day is low, and of course lot of water.
    thanks for the ideas, i will try them!!

     
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