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    Old 01-13-2009, 03:54 PM   #1
    baseballguy
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    The thread for young people with TMJ

    Hi!

    I injured my jaw eating. My jaw slipped sideways when I ate a cough drop and I have had bad jaw pains and all the symptoms typical for TMJ for 1,5 years now and they never seem to go away. In the beginning I thought they would but now I have realized probably they wont go away and there is no good way to fix it. I can study almost anything and I will start to study in the fall but I absolutely don't feel enthusiastic because sometimes my jaw just lock itself and I can not talk at all and everyone will believe I am a psycho. And my parents believe I have developed into a psycho even though I tell them about all the problems I have and I were completely normal before I injured my jaw. The best dentist in my town say his neck pops when he goes jogging and therefore I should not care if my jaw pop every time I say one letter and if my ears sounds terribly. Doctors are incredibly rude and they say I should go to a shrink but there is no reason I should. I know a lot of people have these problems that not even doctors or family understand most of the time so it would be great if someone pretty young want to talk with me about this. Someone that understand. So we can find a good balance between living as normal as possible and still don't make our TMJD worse. And learn how to make people understand our problems.

    Last edited by moderator2; 01-13-2009 at 04:42 PM. Reason: posted contact info

     
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    Old 01-13-2009, 06:08 PM   #2
    CaydenJ
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    Re: The thread for young people with TMJ

    I'm sorry to hear what you're going through. I myself went through something similar from doctors telling me my symptoms were all in my head or telling me it was something it wasn't to my family thinking that I was making excuses and just too lazy to go out into the real world...... right. Are your symptoms fluctuating or has it remained static for 1.5 years?

    If there's a local tmj clinic, I would suggest getting some x-rays done, but before you go, I suggest you equip yourself with some TMJ knowledge just so you don't get duped. Most dentists aren't fully aware of this joint dysfunction and treating this is fairly new and not much research has been done on it. This epidemic is fairly recent so you're not oging to get a stgraight answer or even the same answer from 2 different tmj specialists/dentists but hearing what they have to say would be a good start.

    Sadly, I don't think anyone will fully understand what we're going through unless they've been there themselves. The only way is to get concrete evidence through x-rays and consults and the like.

     
    Old 01-16-2009, 06:47 AM   #3
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    Re: The thread for young people with TMJ

    thank you for the answer! Yeah my parents say I am lazy too even though I were as hard working as anyone could be before.
    Of course the symptoms are fluctuating but I have never been totally fine for 1,5 years. Actually the first 2,5 months was pretty OK but then it got worse. I have not been able to say one letter for 13 months without my jaw popping and I am just worried eventually the discs will be totally worn out. The terrible thing is that talking make it worse. Actuallt mostly I can eat and it dont pop when I eat mostly but always when I speak.

    I have been to ear and jaw specialists where I live and they say "just live like normal and stop worrying." But sometimes I get really dizzy, this have given me tinnitus, locked ears, when I move my head it sounds like you slam a door and the same when I swallow. Sometimes my face start moving without doing anything and much, much more. How can I go to a university and live like normal when suddenly my jaw locks. People will not exactly see me as normal then.

     
    Old 01-16-2009, 07:48 PM   #4
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    Re: The thread for young people with TMJ

    hey honey,

    Firstly welcome to the tmj board!!!

    i am also a young person with tmj , i am twenty , turning twenty one in the next 6 months however my jaw has never locked and all the symptoms you have i dont have. If you read my other posts i suffer tremendously with earaches. Do you also have these?

    You're medical practitioners sound horrible. No one has ever doubted my pain but they all believe i have a low pain threshold .. very easy for them to say! I wont go into my whole history of tmj as i have that in my other posts but basically i developed tmj when was 14 went on for two years , vanished by itself then began January 2007 until present. I am on splint therapy , upper and lower for almost a year now.

    I had a jaw displacement which the splint fixed but now i have muscle spasms which cause earaches.. so frustrating!!! But i would like to know if you also have earaches?

    Because i suffer incredibly from them! Tell me more about how you're symptoms are and tell you're parents NO you are not crazy and show them websites regarding tmj!!!

    Hope to hear from you soon and once again welcome!

     
    Old 01-17-2009, 04:48 AM   #5
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    Re: The thread for young people with TMJ

    Do you have any jaw symptoms? Like clicking? If you dont, how do you then know it is TMJD?

    Here is a summary of my ear troubles:
    Around New Year 07/08 my jaw started clicking every time I said something and I got a locked/clogged feeling in my ears. Especially my left ear and that is the side I had most clicking/popping on. My left ear was locked for 6-7 months, every day. I went to the hospital and they looked at them and said something was wrong but they did not know exactly what. They gave me a referral to a ear specialist but it took like 6 months until I got there and then the problems with the ears was not the same. Since New Year 07/08 it sounds in the ear every time I swallow and when I move my head in different ways or when I yawn. It sounds more in the left ear and I have also noticed that if my right jaw joint pop more for a while that ear get worse and vice versa. During the 6 months with locked ears I had pain in the ear a lot of the time but not always.

    Do you have any of the ear symptoms I have?
    Does "you are on splint therapy" mean you wear mouth guards while sleeping? I wear one mouth guard when I sleep. I dont know if it help because of how I injured my jaw. The normal thing to do with people with clicking is to give them mouth guards because most people with popping are people with bruxism.

    I have spent more than a year trying to tell my parents and they dont understand at all. I have given up on them. I just hope one day I will meet a dentist or doctor who understand. I dont mean they have to fix it but at least understand and dont be rude. At least it is great you understand and I must tell you I dont think your pain threshold is low because to have functioning ears when you are 20 is not too much to ask for. The best dentist in my town on jaws say his neck pops when he goes jogging so popping is something you got to live with. But he is like 60 and I dont think he use the neck to communicate on job interviews, dates etc. And if I just say A, B, C my jaw pop at least 3 times and I think sooner or later the discs will break into two.

    Sometimes I have dizziness also. It can be really bad. And I have had tinnitus since the other ear problems started

    Last edited by baseballguy; 01-17-2009 at 04:49 AM.

     
    Old 01-22-2009, 06:49 AM   #6
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    Re: The thread for young people with TMJ

    hey honey,

    how are you going at the moment?!

    Yes i do have jaw clicking... i am pretty sure its tmj now because i have the tell tale signs like my jaw does click when i move it side to side, at the moment its on the right hand side and thats the side my ear hurts

    my splint therapy is a upper one i wear and also a lower one .. so annoying hey, I've worn it since last may!

    How did you injure your jaw?

    Maybe you need a splint you wear 24/7 like me .. have you got any displacements?? Whats x -ray results show???

    Hope to hear from you soon!

    Hang in there champ, we can beat this terrible illness and you have us here!

    I understand you and you're parents will too , you need to show them all the things on the internet.. what do they say when you tell them you are in pain???

    Hope to hear from you. Big hug

     
    Old 01-25-2009, 04:47 PM   #7
    baseballguy
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    Re: The thread for young people with TMJ

    Well the last weeks have been worse than normal but it goes up and down so soon it will hopefully go up.

    Does you jaw click when you talk or eat?

    For me it click when I talk but only when I eat when it is really bad. Almost never that is.

    I have worn splints since early december two years ago. So that is about 14 months. Okay, you wear them all the time. What does people say then when they see you? Are you in school or anything? I must say that every day when I wake up my jaw is pretty fine and it always get worse and worse throughout the day. Maybe it is because I wear the splint at night. But I think mostly or at least partially that is because I rest my jaw and whole body while sleeping.

    Well I decided I wanted to chew/break/crush the pastille I was sucking on after dinner and the pastille slided and my mouth slided sidewards. Do you understand? I think I can explain better if you dont

    I know it seems silly but I immediately felt a bad pain and I have heard about lots of people destroying their jaw with for example just one bad yawn.

    I have not taken any X-rays. My dentists dont let me but two times ago we talked about it. They said even if the X-rays showed something they rarely operate on people and operations rarely make peoples jaws better. I agree with this but if they could see something wrong at least they and my parents would stop treating me like a hypochondriac which I have never been before.

    What exactly do you mean with "displacements". My jaw have locked a couple of times.

    When I say I am in pain and that my ear rings my mother say I am a hypochondriac and that I have become unsocial. I am really not unsocial but of course if my jaw hurts more by talking I dont want to talk too much. Before she could sometimes leave me alone for like 1-2 days but now she knock on the door to my room a lot and she yell I got to come talk with her. Just as if she think I am a psycho and that I need to meet and communicate with more people - herself. My dad just ignore me but he did that before also.
    She ask DO you wanna take a walk?
    Do you wanna watch TV with me?
    Do you wanna play cards?
    and a lot of questions like that

    Thanks for the encouragement!

    Last edited by baseballguy; 01-25-2009 at 04:51 PM. Reason: spelling

     
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