3 surgeries, 7 years of treatment and now joint is getting worse – Wilkes stage 4

05-26-2009, 02:17 AM

To staffjam: How exciting that you are moving to Mexico City, or maybe not. I didn't know it was the largest city in the world, but they certainly should be known for the dirtiest air. I speak fluent Spanish and assume you do too. When I first read your post, my "gut" feeling was too many surgeries and maybe one of them screwed up your TMJ even more. I don't know what Wilkes - Stage 4 is but I assume it is some kind of joint degeneration. If prolo can help generative disc, hip, knee disease, etc. maybe it can help you too. Please let us know how you are doing. I hope to visit my best friend in San Miguel de Allende in Sept.

05-26-2009, 06:09 AM

Angelica1- I have to say you are one of the few on this board who have found relief and it was with the prolo.

I believe in prolo also. After my NCR if symptoms persist that will be my next plan, as I have a prolo guy near me. I do believe the tm joints follow the temporal bones so if they are uneven due to the sphenoid and shifted occiput, symptoms will persist, so in my book cranial first, then prolo.

Were you sore after your shots for a few days and have a stiff jaw? He did prolo both sides didn't he and did he do your neck?

I just feel my cranium needs to be corrected first before the prolo, you probably didn't have the cranial problems issues.

05-26-2009, 01:34 PM

You have received some excellent information from the people on this forum. I guess what it boils down to now is Dr. Stack or prolotherapy. I will ask my prolotherapy dr. on Thursday about someone in Mexico City. He teaches prolo in the U.S. and really keeps up on the latest.

05-28-2009, 01:27 PM

Angelica1 - i think you're right about the surgeries - one of them really didn't go too well and now a lot of the muscles have died/wilted on the left hand side.
I'll see what Dr stack recommends - but ill definately check prolo out.
If you can find out about someone in mexico that would be great.

05-28-2009, 03:49 PM

My prolo dr. didn't know anyone in Mexico City but suggested I google in Mexico City Prolotherapy. I found two leads: Dr. R. F. Amos Carras Quedo and associates and a Dr. Ongley. You'll have to check these out. I don't have any info on them. Just make sure they have a lot of experience. Mine here in AZ has 20+ years and he just taught a Stage 4 Prolo class (the most advanced) in Oregon. I am so blessed to have someone so good and so experienced. Hope you can find the same in Mexico City.

06-02-2009, 04:33 PM

Quote:

Originally Posted by Staffjam

Luvtocamp – Yes I’ve seen loads of Cranial Osteopaths, Craniosacral therapists, Acupuncture, Chiropracters, Physios, Bowen therapists (I think over the last 10 yrs I’ve been single handedly supporting the alternative therapy community in London.)

Angelica1 – I’m going to look up prolotherapy as soon as I’ve finished typing this – to be honest I’m willing to give anything a try.

StillHope – yes it’s bite adjustments to the splint I’m wearing. I’ve been through all the braces and having the teeth moved – sadly when they did all the dental work it got bad again and so I started from afresh with the splint. (this was not with Patrick Grossman – it’s only recently I have been seeing him and he inherited quite a bad case.)
Thanks for your encouragement – I’ll probably go and see Dr Stack, who seems to have a very good reputation on this forum and on the net as a whole.

Hi there--curious about Dr. Stack. What have you heard of him? I've been doing tons of research online, and know of one family that is using him currently for their daughter's care.. What is your overall opinion of him and what have you found out about his treatments? Please share...J.

06-03-2009, 10:30 AM

The prolo shots into the TMJ points seem to hurt more than other areas, but they all do hurt, but for a very short time. Yes, he did do my neck too. I have had a total of three rounds on the TMJ; some people need more, some less. I always find it best to wait 3 weeks or so between treatments. Just make sure you have a well experienced prolo guy. There are several new types out now; one is with one's own Platelet Enriched Plasma. Mine have been just regular prolo with procaine, dextrose, B-12, and a homeopathic substance. There is also "Prolozone"; my dr. says if prolo is done correctly, the addition of ozone shouldn't be any better.

06-04-2009, 10:12 AM

jmitchell - I've done quite a bit of research on Dr Stack and the vast majority seems to be very positive. My previous specialist in London (Patrick Grossman) - believes him to be the Man to go to for TMJ - i've had this confirmed by 2 other specialists in the UK as well. I will be booking an appointment with him shortly.
Good luck.

3 surgeries, 7 years of treatment and now joint is getting worse – Wilkes stage 4

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