It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

TMJ Disorder -TemporoMandibular Joint Message Board

Total tmj joint replacement @ 29yrs

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-17-2009, 01:43 AM   #1
Join Date: Jun 2001
Location: Australia
Posts: 101
Carey HB User
Smile Total tmj joint replacement @ 29yrs

I was hoping to hear from anyone who has had a total jaw joint replacement by TMJ CONCEPTS? and what experiences did you have?

I used to be member here a long long time ago but havn't been back in a while.
I live in Australia and my tmj problems began 10 years ago when I was 19. since then I have had my left tmj disc removed 6 years ago as it was damaged beyond repair and it is now fused as a result of having bone on bone for 10 yrs. i only have an opening of 10 mm Because of this my right tmj has been compensating for the left side and doing double the work for this whole time. I have lived with chronic pain as well as trigeminal neuralgia and am on a cocktail of meds that now do not provide me with any relief as my system has become tolerant to them (over a span of 10 years). My oral surgeon has recommended a total left joint replacement as this is the last resort.

My right tmj is now dislocating more and more each day but since i have to get my tmj prosthesis custom made in America from tmj concepts, it comes at a price. It will cost me around $15,000 Australian dollars, which no insurance covers, and money I don't have, plus due to insurance constraints I cannot have the surgery for another 12 months. I am worried that having to wait this long my right side is going to deteriorate rapidly. my surgeon doesn't really want to touch my right side (do any surgery) as he is hoping once my left joint replacement is done, the right will settle down and return to "normal" function.

I am just hoping to hear from those out there who have had tmj total joint replacements and the experiences that you have had, as well as ANY advice.

Sponsors Lightbulb
Old 12-09-2010, 08:06 AM   #2
Jill 227
Senior Veteran
Join Date: May 2009
Location: Illinois
Posts: 735
Jill 227 HB UserJill 227 HB UserJill 227 HB UserJill 227 HB UserJill 227 HB UserJill 227 HB User
Re: Total tmj joint replacement @ 29yrs

carey....sorry to hear what you are going through...look on the great tmj doctors threads to see if there is a NM dentist in your area...they may be able to help...other than going the surgery route. It's worth a shot, IMO. I am so sorry to hear the pain that you are in. I hope you get relief soon!

Old 12-26-2010, 08:56 AM   #3
Join Date: Dec 2010
Location: New Mexico
Posts: 6
akshirey HB User
Re: Total tmj joint replacement @ 29yrs

Stumbled on this site today after a Google search on TM Joint replacement and pain.

I had a total replacement (with a TMJ Concepts product) three years ago, by Dr. Wolford. I have never regained range of motion since surgery, and still clench/grind at night. I had several complications post-surgery and spent over a month in Dallas before I was cleared medically to leave. I also have numbness in right side of my lower lip (like it never "woke up" after the surgery).

The past month or so, I have had a tremendous amount of cheek pain on the right side of my face at the implant site, getting increasingly worse, as well as numbness and tingling all over that side of my face. In the past, when I have contacted Dr. Wolford's office to let them know that I am experiencing pain, the response has always been, "That's impossible." End of story. Well, it may be impossible, but that doesn't mean it isn't happening, or getting worse. Does anyone have any similar experiences or advice? I am particularly interested in hearing from Karen, if possible, since she also went to Dr. Wolford. Thank you.

Old 12-26-2010, 10:06 AM   #4
Join Date: Dec 2009
Posts: 85
rocckyd HB Userrocckyd HB Userrocckyd HB User
Re: Total tmj joint replacement @ 29yrs

The one thing my dr. made sure I understood before surgery was that it was not for pain. In fact, the pain could be the same, or even worse after the fact. The bilateral replacement was purely for function. My bones were fusing together and eventually the whole jaw would be fused shut. Feeding tubes were not an option-I chose the surgery.

I hate that your surgeons weren't more upfront with you and that they are not helping you now. The fact that a surgeon would say "That's impossible" is crazy. We all heal differently. If you feel that you need to file a complaint-I would do so. Hopefully that will let your surgeon know that you mean business and you want him to take you seriously.

For me, the surgery was the best thing I could have done. It was done over 2 surgeries-one was 6hrs, one was 9hrs. I am still in the middle of rehab(stage 2 was done in Aug). I have an autoimmune disorder which is what made the surgery necessasry in the first place. Still have pain, but I have pain elsewhere so I see a pain management dr which helps. I hope you guys find some relief. Jaw pain bites!

Old 12-26-2010, 12:04 PM   #5
Join Date: Dec 2010
Location: New Mexico
Posts: 6
akshirey HB User
Exclamation Re: Total tmj joint replacement @ 29yrs

Here's an interesting twist: In doing further online research about this today, I ran across a site which poses the question about the potential cancer link between TM replacements and salivary gland cancer. Does anyone know anything?? I have a large lump in my neck, on the right side, just under my jaw. I saw an ENT, who thought it was a salivary gland infection. An infection was ruled out, however, and I am waiting further testing (I have an MRI scheduled for early January). I am trying not to worry too much, but the lump in conjunction with the increase in facial numbness/tingling, and increased pain has me jumping out of my skin. These things could all be coincidences, but stil...

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Need advice for faster recovery after Total Hip Replacement surgery Al5261 Knee & Hip Problems 6 02-22-2011 08:56 PM
Total Knee Replacement Recovery mtb1218 Knee & Hip Problems 371 05-30-2010 05:52 AM
Total Joint Replacement Surgery - What to expect? Yes? No? tlovesb TMJ Disorder -TemporoMandibular Joint 3 05-06-2010 01:14 PM
Total Ankle Replacement (TAR) Options Elmo151 Foot & Ankle Problems 13 02-12-2010 12:48 AM
Total Knee Replacement: Recovery - Things I wish I knew! tiredbeinsick Knee & Hip Problems 544 10-27-2009 07:04 PM
Agility Total Ankle Replacement sleeplessohio Arthritis 1 08-25-2005 07:35 PM
In line for a total joint replacement meditation TMJ Disorder -TemporoMandibular Joint 6 05-11-2005 03:58 PM
Total joint replacement...HELP meditation TMJ Disorder -TemporoMandibular Joint 4 05-04-2005 05:42 PM
Joint Replacement Elaine TMJ Disorder -TemporoMandibular Joint 22 02-12-2004 12:56 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 07:14 AM.

Site owned and operated by™
© 1998-2018™ All rights reserved.
Do not copy or redistribute in any form!