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TMJ Disorder -TemporoMandibular Joint Message Board

How did your TMJD start?

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Old 09-20-2009, 02:47 PM   #1
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How did your TMJD start?

Hi everyone,

I do not have TMJD but I do have interstitial cystitis (IC), another chronic pain disorder that some researchers believe is related to TMJD, since many people who have IC also have TMJD (and vice versa).

I have been reading through the posts on this forum, and I feel terrible about the pain and lifestyle limitations TMJD sufferers have to endure. I have noticed a slight ache in my jaw recently, and want to know what I can do to prevent this disease from happening to me, since IC is already difficult enough to live with.

I am interested from hearing from the people on this forum: how did your TMJ symptoms start? Was there any particular event that occurred right before your TMJD began that you suspect might have triggered it?



Last edited by ChrisG2; 09-20-2009 at 02:47 PM.

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Old 09-20-2009, 05:29 PM   #2
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Re: How did your TMJD start?

I am not sure I would classify TMJ/TMD as a disease but more of a condtion -more specifically a cranio facial structural condtion resulting in joint and muscle dysfunction - I guess I tend to think of diseases as needing to be treated with drugs or chemicals and this condition usually requires orthopedic intervention or treatment - although pain meds and muscle relaxants can be used with other forms of treatment or therapy - they do not in and of themselves "cure" or resolve the issue.

My tmj is due to ill fitting crowns and bridges and although I do have an extensive dental history (but was normal though all of it) my problems began immediately after having bridges and crowns replaced by a prosthedontist - despite repeatedly returning to him and complaining of facial muscle fatigue and jaw discomfort and other symptoms he kept putting me off telling me I just needed to get used to them - by the 3rd year I begged him to remove his work and put my older bridges back on and he refused - said I was being overly dramatic - so I started to search for another dentist but never made it to one - within 2 weeks of my last appt with the prosthedontist I had my first cranio facial/cervical spasm and things quickly spiraled out of control after that.

I believe poor dental work tends to be the leading cause of tmj/tmd be it orthodontia or some form of reconstruction, cosmetic or preventative treatment.

Old 09-26-2009, 09:55 PM   #3
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Re: How did your TMJD start?

I don't really know what started mine, but I had severe daily headaches for many years before I dentist told me I was grinding my teeth at night. When I was a kid, I wore braces and they pulled a tooth first. Maybe that messed up my bite enough to cause the grinding and headaches.

Old 09-27-2009, 05:55 PM   #4
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Re: How did your TMJD start?

i had a root canal in march 2006 which was not performed with proper anesthetic or aftercare. i felt everything in the procedure and was sent home with two ibuprofin aside from the usual antibiotics and low dose narcotics. later that evening i was screaming in pain and called the endodontist and he said it was probably an infection and Rx me antibiotics (penicillin). 2 weeks later I was fitted for my crown and seemed to be doing ok with both the crown and other fillings i had received.

For about two months I was fine but then I started having spouts of what I found out was vertigo mixed with anxiety. I didn't know what was happening as I had head pain, ear aches, facial pain, jaw popping, etc. For 6 months I had no idea what was wrong and was seeing specialist after specialist, spent my savings as I have no insurance, sold a lot of things I owned, lost my job.

After many horrible appts with ENTs I did my own research and found out what I had. I have seen two TMJ specialists and I'm seeing one here in Atlanta. My TMJ was caused by a poor bite and my mandible being 5mm to the left of where it should be thus creating 4 muscle spasms in my head, one of the spasms which controls the ear that maintains balance and can give you vertigo.

TMJ is more than likely a bite problem and irritates the nearby muscles.

Old 09-28-2009, 12:15 AM   #5
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Re: How did your TMJD start?

My TMJD started after having my wisdom teeth removed. I don't know if my dentist knew what TMJD was, because he never mentioned (and my jaw was locked, I could barely get a toothbrush between my teeth), he just kept telling me my jaw was weak after the surgery. After 4 years another dentist told me it was TMJ and made me a splint that I was supposed to wear 24/7. I wore this for a while, but it all got really bad two years later. My GP referred me to an OMS who performed a bilateral arthrocentesis, and my jaw has been pretty good since, however I still suffer with the muscular side of TMJ, with headaches and the like.

I have no desire to have another splint made, so I'm on pain medication for the headaches and have been for about 10 months now. It helps, but it doesn't completely take the pain away.

My joints are deteriorating and wearing away the cartilage; but for now, it's not causing me any major problems, but I know it'll flare up again one day, my OMS told me that the arthrocentesis was only a band-aid fix that if it was successful (which it was) it would only last from up to 1 - 7 years. I'm on my 3rd year now.


Old 09-28-2009, 09:15 AM   #6
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Re: How did your TMJD start?

I developed tmjd during my orthodontic (braces) 20yrs. ago. My idiot dentist did not no how to treat it, and just took off my braces after 1.5 yrs. Now I'm in full blown tmjd, muscular spasms in face, neck, upper back, and many more symptoms. My last dentist also damaged my joints with improperly adjusted splints, and also had no clue how to treat me. Now I'm in treatment going into month 2 with a new dentist---very frustrating.
The moral of the story is, if you are going into ortho. work, please go to a Functional Jaw Orthodontist that is well trained, has yrs. of experience, and takes x-rays before, and during your ortho. . There is a way to see if you are pre-dispositioned to tmjd, and the good doctors will be able to see this right away from x-rays and history. Good luck all!!!

Old 09-28-2009, 07:40 PM   #7
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Re: How did your TMJD start?

My TMJD began like Thelma-Louise stated - shotty dental work...and an ill fitting bite. I FINALLY have had my bite fixed in the last few months after begging and pleading (and finding a NEW dentist), but it took lots of time.

I also clench my teeth at night - I do not grind though.

Interestingly enough though, I think a bad mattress may be to blame too. I've had the same mattress for ***gasp*** 12 it's definitely time to look for more support.

By the way, I also have interstitial cystitis. I was diagnosed in March. I have never heard of the connection between the two did you hear of this?

Old 09-29-2009, 12:44 AM   #8
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Re: How did your TMJD start?

hi i have pelvic floor dysfunction and am seeing a uro about mild IC as TMJ is def related to pelvic stuff for sure........
i also stress out and clench at i have had couple operations and they stick the thingy down your throat when you have operations which is not good for jaw!!!

anyway wish it would go away im so over TMJ!!!!!!!!!! give me pelvic issues any day!!!!

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