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    Old 02-03-2010, 06:59 AM   #1
    delders77
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    Exclamation Can anybody help me? (UK TMJ sufferer)

    Hi all,

    Can anybody help me? I am a 32 year old lady living in the West Midlands and for the past 10 years I have been suffering with terrible headaches, jaw pain-popping and clicking, ear-ache, sinus pain & facial pain.
    My GP referred me to see a Neurologist. My Consultant performed an MRI scan on my head & Neck & Nerve Conduction Studies. The results for all where normal?

    I googled my symptons and it kept coming up with TMJ and this is what I believe I must have?

    Can anybody advise on what I need to do about it and where I need to go for treatment, etc? Do I tell my GP?

    Any help would be most appreciated as I am in extreme pain and want this sorted out as soon as possible.

    Thank you

    Delders

     
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    Old 02-03-2010, 08:44 AM   #2
    Amanda6
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    Re: UK TMJ sufferers! Please help me (and each other) out.

    Hi Delders,

    You could tell your GP about your jaw clicking, and ask to be referred to see a Maxillofacial consultant, or Dental hospital. Alternatively you could see your dentist about the TMJ, and ask the dentist to refer you to a Maxillofacial consultant or dental hospital. Another option would be to find a private dentist who specialises in TMJ treatment, who could diagnose and treat TMJ dysfunction. That would be a much quicker option, but there are not many TMJ specialists in UK, and it isn’t cheap. I wouldn’t advise to accept any surgery, no matter how much pain you are in, I would try much less invasive treatments such as splint therapy. I didn’t get any help from the NHS Maxillofacial departments, so I am currently having treatment with a TMJ dentist.

     
    Old 03-03-2010, 02:48 AM   #3
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    Wink Re: Can anybody help me? (UK TMJ sufferer)

    Hi I am also in the UK (Essex) and have been seeing a maxillary-facial surgeon privately (3 visits so far) as I didnt want to wait 6 weeks or so to be seen on the Nhs. However I will be running out of money soon, and I am now thinking this may turn out to be a longer term problem. The guy I have seen is making me a night-guard to stop teeth grinding (didnt know I did that and still not convinced). After that I will probably have to transfer to a max-facs person on the Nhs. What symptoms do you have. I mainly have horrible toothache type pain at the back of my mouth where I had a tooth extracted 7 weeks ago. My neck and shoulder are also stiff and sometimes I get numbness in the face.

     
    Old 07-21-2010, 07:48 AM   #4
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    Re: Can anybody help me? (UK TMJ sufferer)

    Hi I am also a TMJ sufferer living in Telford Shropshire. I am 48 yrs old and the past few years have experienced jaw, head and facial pain , Dry sore eyes too. and also dizziness that feels similar to vertigo maybe. I saw a Maxillo Facial consultant that said my jaw was out of alignment due to grinding. He made a nightguard to prevent me doing this. I do still manage to bite my cheek in my sleep somehow. I also have pain in my chest and stomach which I am sure is stress.
    Yesterday I went back to the consultant and he has referred me to a neurologist as he feels it is nerve problems! I have 2 active boys aged 12 and 14 and desperately want to be well and enjoy life without being scared and in constant pain. I will let you know how I get on. I am trying to be positive and hope to be pain free very soon. x

     
    Old 07-22-2010, 03:13 AM   #5
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    Re: Can anybody help me? (UK TMJ sufferer)

    Hi There I am from Shropshire and have suffered from TMJ for about 5 years or so on and off. My maxillo facial consultant has now referred me to a neurologist as he says the referred pain to other parts of my body could be nerve endings. I too am going to pay private for the initial consultation just to be seen quicker. Fingers crossed. Good luck to you. You may want to try facial exercises where you rest the roof of your tongue on the soft palet of your mouth as far back as you can go and then slowly open your mouth whilst keeping your tongue in position and keep open for a count of 5 seconds. Repat this for about 5 minutes twice a day. I do it whilst driving to and from work to try and help keep my jaw supple. Good Luck x

     
    Old 07-23-2010, 06:23 AM   #6
    Tashie026
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    Re: Can anybody help me? (UK TMJ sufferer)

    Hi,

    This is my story. I am a 35 year old lady and have suffered from bruxism for about 10 years. As a result I have got TMJ disorder. I get very nausous and unbalanced (where it feels like I am on a boat all the time). My sinuses are also very inflammed and I have a lack of smell and tastebuds. It feels like my eustation tubes are blocked and I have really bad fluidy blocked ears. I also get very bad headaches, neck, jaw and shoulder pain. I have had brain scans, tests from ENT and visits to maxiofacial dentists where they said breaking my jaw would only be a 35% success rate and could leave parts of my face paralysed. This was not a route I wanted to go down.

    I am currently seeing a neuromuscular dentist in the UK, as she said that once my bite is fixed it should help my other problems. I sure as hell hope so cause some days I feel so alone and frustrated that I am getting these symptoms. I am thinking of seeing a chiropractor who specialises in TMJ, does anyone have any advice or similar stories they would like to share with me, cause I would love to hear from you.

     
    Old 07-23-2010, 01:00 PM   #7
    Jill 227
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    Re: Can anybody help me? (UK TMJ sufferer)

    HEy there----Just curious.....How did they fabricate your orthodic? If the doc. is neuromuscular, what tests did she run to make the orthodic? Also, how long have you been wearing it, and do you wear it 24/7, even while eating?
    As far as the dizziness goes, I would definitely see if you have cranial misalignments that need to be addressed, and upper cervical misalignments. If your atlas is rotated, and the cranial bones have shifted due to the tmd, you need to seek out either an osteopathic doc. that does orthopedic manipulations, and craniosacral therapy, or a chiro. that can help you. Either an Atlas orthoganist chiro, or a SOT chiro. Also, see if your NM dentist can check the balance on the orthodic with an EMG test. They should put you on the tens first, then check to see how the muscles are functioning with the orthodic in place. From there, they can tell you if your orthodic needs adjustment or not, or if you need more vertical dimension added to the thing. Make sure that your dentist does Functional Jaw Orthodontics as well.
    Hang in there....there is so much info that I could tell you, I thought that would be a good start. jill.

     
    Old 07-23-2010, 06:25 PM   #8
    Fi189
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    Re: Can anybody help me? (UK TMJ sufferer)

    Hi there.
    I'm 20 and have suffered with jaw pain and clicking since I was at primary school. When I visited my GP I was referred straight away to an NHS (Ayrshire & Arran) maxillo-facial clinic. After a few appointments, I had impressions taken of my teeth to make up a flexible plastic shield to wear (overnight and any time where eating/speaking is not necessary). I have only had the shield for a week but I feel it has made some difference in preventing the teeth clenching/grinding which was worsening my jaw pain.
    If I were you, I would tell your GP your suspicions about TMJ and ask to be referred to a maxillo-facial unit. Also, I have been doing exercises similiar to those suggested by Lily Mae above for about six months and they really seem to help.
    Try not to stress too much, I did this and was told it makes the problem much worse. According to the maxillo-facial specialist I saw, 9/10 people with TMJ find that it eases itself over time with tricks like the exercises etc. so fingers crossed for everyone here.
    Good luck

    Fi

     
    Old 07-24-2010, 05:26 PM   #9
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    Re: Can anybody help me? (UK TMJ sufferer)

    Quote:
    Originally Posted by delders77 View Post
    Hi all,

    Can anybody help me? I am a 32 year old lady living in the West Midlands and for the past 10 years I have been suffering with terrible headaches, jaw pain-popping and clicking, ear-ache, sinus pain & facial pain.
    My GP referred me to see a Neurologist. My Consultant performed an MRI scan on my head & Neck & Nerve Conduction Studies. The results for all where normal?

    I googled my symptons and it kept coming up with TMJ and this is what I believe I must have?

    Can anybody advise on what I need to do about it and where I need to go for treatment, etc? Do I tell my GP?

    Any help would be most appreciated as I am in extreme pain and want this sorted out as soon as possible.

    Thank you

    Delders
    After years of TMJ problems, and the last year severe TMJ problems, I was diagnosed with very low Vitamin D. After only taking 50,000 IU of Vitamin D for four weeks, my TMJ is 90% better. Too big a coincidence to not be related. Get checked for D

     
    Old 07-25-2010, 08:29 AM   #10
    Amanda6
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    Re: Can anybody help me? (UK TMJ sufferer)

    Hi Tashie026,

    I'd be interested in hearing more about your Neuromuscular dentist. I am having treatment with a TMJ dentist in the UK, but I don't think he's using much of a neuromuscular approach.
    Did your dentist use an EMG on you before making your splint? What is your splint like. And who is the dentist you are having treatment with?

     
    Old 08-04-2010, 06:51 PM   #11
    Rawspice
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    Re: Can anybody help me? (UK TMJ sufferer)

    I'm from the UK, if anyone thinks they have tmj then tell your GP and he/she will refer you to the hospital. If you can't be bothered to wait and have money you could go private, Patrick Grossman seems to get mentioned quite a bit.

    Quote:
    Originally Posted by Ueber View Post
    After years of TMJ problems, and the last year severe TMJ problems, I was diagnosed with very low Vitamin D. After only taking 50,000 IU of Vitamin D for four weeks, my TMJ is 90% better. Too big a coincidence to not be related. Get checked for D
    I was recently diagnosed with low Vitamin D and a B12 deficiency, and you can see from my old posts that I've suffered greatly with TMJ. I had no idea of a connection between tmj and low Vitamin D, thanks for posting.

     
    Old 08-05-2010, 05:32 AM   #12
    Amanda6
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    Re: Can anybody help me? (UK TMJ sufferer)

    Hi Rawspice,

    Have you yourself tried the private route? Or the NHS.
    I am undergoing treatment with a private dentist. I saw consultants with the NHS before that, but they didn't have much they could do to help.

     
    Old 08-05-2010, 10:58 PM   #13
    Rawspice
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    Re: Can anybody help me? (UK TMJ sufferer)

    Hi Amanda6,

    I couldn't afford to go private. I was seen on the NHS for quite some time but I wasn't impressed, everyone on here seemed to be more knowledgeable on tmj than the so called specialists I was seeing lol. Have you found private care to be more helpful?

     
    Old 08-06-2010, 06:43 AM   #14
    Amanda6
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    Re: Can anybody help me? (UK TMJ sufferer)

    I had a TMJ MRI done privately, so at least I have a proper diagnosis of what is wrong with my TMJ, which I didn't get from the NHS. The treatment for it with splints and dental correction of the bite is not something the NHS do. One NHS maxillofacial department made me a nightguard to wear but it was nothing like the 24/7 splint that I have privately.
    The nightguard I had from the NHS was 10 years ago, so whether they have changed them at all since then I don't know. I saw another NHS maxillofacial consultant 3 years ago who said my jaw clicking was caused by laxity of the joint, and the pain management dept should be able to help me, so all that was said with no XRay, no MRI and I wasn't offered a night guard then. It was at that stage I went to see a private dentist.

     
    Old 08-06-2010, 09:47 PM   #15
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    Re: Can anybody help me? (UK TMJ sufferer)

    You have also had tmj many years then, have you only gone private quite recently? Do you think this new treatment is helping or is it still too early to say? Wow, how can they make a diagnosis without even an x-ray. Were you not even given an x-ray when seen by the NHS first time round? I was given a few x-rays over the years and they said my tmj was muscular in nature. I had a couple of mouthguards made, I did ask for an MRI later on but was refused.

    Last edited by Rawspice; 08-06-2010 at 09:52 PM.

     
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