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  • I have been suffering from a vestibular "disorder".

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    Old 03-02-2010, 04:43 PM   #1
    Rambo95's Avatar
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    Post I have been suffering from a vestibular "disorder".

    I have been suffering from a vestibular "disorder" for over 3 motnhs now and its ruining my life. I just started having jaw pain / "fullness in the ear" and slight tinittus a few days ago ( never really had it much before )

    So I saw a dentist today and he said that i definitely have signs of TMJ and he is starting the therapy for me. Im not entirely convinced all my balance issues are TMJ related though ( although i really reallllly wish it was )

    I had an ENG test done 2 months ago, everything was more or less ok except when they blew air in my left ear ( caloric testing ), it didnt respond strongly. So they're was a vestibular issue, but i really really hope its _still_ TMJ related.

    Thanks again, all the best
    - Rob

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    Old 03-02-2010, 09:18 PM   #2
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    Re: I have been suffering from a vestibular "disorder".

    You might want to also pursue other testing of the ear if you are not totally convinced its tmj - maybe see a ENT or hearing dr - my sis developed something recently which started from a cold - plugged ear, pain in and around the ear and some jaw pain - but then it advanced to her sense of balance and finally a 75% hearing loss in one ear and eventually she went to a ear specialist and found out she had negative ear pressure (the ear drum inverted) and a buildup of fluid behind the ear drum. Right now tubes have been inserted to drain the fluid - they fell out on their own - and had to be replaced again - but she got back 25% hearing and the pain is a bit less. The point being if you don't need tmj treatment I wouldn't start it just becasue you have some signs of tmj - almost everyone has signs of some form of tmj - and of course this depends exactly on what one means by tmj therapy as well - but any changes to the bite or teeth or jaw position should be avoided until more extensive examination and testing is done by a trained tmj dr.

    Old 03-03-2010, 11:10 AM   #3
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    Re: I have been suffering from a vestibular "disorder".

    Hey Rob! I just saw your post, and can totally relate to what you are going through.

    I just wanted to say that I have dizziness and the occasional fullness in the ear caused by TMJ. In my experience, I went to 3 different ENT's, the first thought I had a neurological problem and wouldn't treat me any further until I saw a neurologist, which I did, and she couldn't diagnose me with really anything either; he sent me to have the ENG done, and there really wasn't any significant findings, except for I had spontaneous nystagmus in all directions. So, I went to another ENT, and he put me on Flonase and Allegra, which wasn't helping, and one day I was having a real bad episode, and they were able to squeeze me in that day - I had pressure and fullness in my cheek area, and he just kind of looked at me and said he was not sure what was going on, so with that response, I never went back. After seeing this ENT, a neurologist, going to the ER a couple of times, and even an opthamologist (because I have visual disturbances too-blurriness and sensitivity to light but only on the side I have TMJ on), I thought I was going off my rocker. Anyhow, I found a great ENT, who scoped my nose (because I was thinking something was up in there from all the weird pressure), and he was the only one who checked out my jaw, and told me I had TMJ. I didn't realize that I was literally having muscle spasms in my face, which was affecting my inner ear, and was causing my dizziness.

    If you really think it's something other than TMJ, I would definitely get checked out by the ENT, just to rule out anything else. And, if it is definitely TMJ, please find a doc who is from the ICCMO (International College of Cranial Mandibular Orthopedics), who also practices FJO (functional jaw orthopedics). The docs are listed on their website. BTW, because of TMJ, I thought just by getting braces it would realign my bite and my jaw, I was totally wrong. I just had my braces off in July 09, and I am still a mess! I was also given two splints - and they both make it worse. But, I am going to be seeing an ICCMO doc next week.

    Good luck to you. Let us know how it goes.

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