It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Transplants Message Board

Liver Transplant Survivor

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 08-26-2011, 09:05 PM   #1
Mary Skelton
Join Date: Aug 2011
Location: Roanoke, VA USA
Posts: 2
Mary Skelton HB User
Smile Liver Transplant Survivor

I received a Liver on Jan. 27 2010. I would like to know how recovery was for you after your transplant.

Sponsors Lightbulb
Old 08-27-2011, 11:48 AM   #2
Senior Veteran
Join Date: Jan 2005
Location: Canada
Posts: 2,874
Cora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB User
Re: Liver Transplant Survivor

Congratulations on your new liver. I had a kidney transplant from my cousin in 2002 and a pancreas from a cadaveric donor in 2008. As for recovery, everyone has a different timeline. Sometimes it can take quite a while to hit your peak once you've had the surgery and gotten used to the drugs. It took me a couple of years after the kidney before I finally hit my stride.
Dxd T1 1966, 2001 dialysis, 2002 kidney transplant, 2003 insulin pump, 2008 pancreas transplant

Old 09-02-2011, 06:33 AM   #3
Join Date: Aug 2011
Location: Maryland USA
Posts: 4
AbbieBean HB User
Re: Liver Transplant Survivor

Congrats to all who have gone through the transplant experience. I had my liver transplant in 2001 so I am 10 years out from mine and am grateful every day to just be alive. My tx was due to Hepatitis C, which I got in 1979 after my son was born and I received quite a bit of blood transfused. This was before the blood supply here was considered "safe". In 1992 the blood supply here in the US was considered to be safe here in the US.
My daughter was born in 1980. I did not know I had Hep C when she was born, and she and I did not find out we BOTH had hep C until 1998, when she was 17 yrs old.
My daughter had a healthy childhood, with the exception of frequent nosebleeds.
In 2009 we discovered my daughters liver was being compromised due to the Hep C and she was placed on a transplant list at John's Hopkins in Baltimore.
Sept 16, 2010 she received her lifesaving liver transplant.
Both of our transplant experiences were similar in some ways but very different also. Many things had changed in the transplant world from 2001 to 2010, I discovered. Having gone through it myself and almost not making it back due to many problems both pre and post op, including a 3 month long coma, I was terrified watching my daughter go through it too. It brought back many bad memories for me all through her sickness and transplant and recovery.

My daughter is now going through treatment as the hep invaded her new liver with full force not long after her transplant. She is not quite 1 year out and is enduring the ribovirin and Interferon, I don't know how she does it but she does. All while being a great mom to her daughters who are 9 and 4 years old.

I am not a candidate for treatment anymore, as I have tried it 4 times and am a non-responder. The new drug teleprevir (hope I spelled it right) cannot be prescribed to post transplant patients. It has not been tested by the FDA for safe use in transplant patients.

I became very involved with my local consortium and for Donate Life America. I support organ donation (of course) and speak to large groups about organ donation and organ transplants. It's my way of "giving back", since I am not in a financial position to donate money to the many organizations I like to support. I am considered disabled due to the many other diagnosis' that I have, most of which came from the transplant and the long period of time I was in a coma. So I am a reluctantly retired, now. I sure do miss that income...

Last edited by Administrator; 09-06-2011 at 11:31 PM.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
My Dad Just Had a Liver Transplant, I Have Some Questions ambientenergy Transplants 2 08-28-2011 01:19 PM
Liver Transplant as a Baby bpsurviver Transplants 0 11-27-2010 10:38 PM
Future kidney transplant writeleft Transplants 2 04-01-2010 12:34 PM
Kidney Transplant question kttn86 Transplants 3 08-10-2009 11:48 PM
Heart Transplant karencap62 Transplants 7 09-23-2008 04:08 AM
How do you pay for your personal expenses awaiting a lung transplant? aipforum Transplants 0 09-09-2008 09:26 AM
kidney transplant causing liver problems.... MissyB Transplants 1 02-28-2006 06:03 AM
Kidney Transplant And Diabetes health-junkie Transplants 1 07-26-2005 07:51 PM
help kidney transplant not working ldd8 Transplants 1 05-23-2004 08:43 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 02:12 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!