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left sided trigeminal neuropathy

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Old 05-27-2010, 07:07 PM   #1
Join Date: May 2010
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neuralgia HB User
left sided trigeminal neuropathy

I have left sided trigeminal neuropathy. I take Neurontin which helps sometimes, but when the pain gets to levels 8,9 an 20, I have to take opioids to even be able to function. I have had this for 15 years. (due to maxillectomy(.

Last edited by Administrator; 06-24-2010 at 06:29 PM.

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Old 05-30-2010, 06:09 PM   #2
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Join Date: Jan 2010
Posts: 101
islandjohnny HB User
Re: trigeminal neuropathy - scared !!!!

Iíve heard of Trigeminal neuralgia which is a very sharp pain on one side of the face. Commonly starts near one side of the mouth, then toward the ear, eye, or nostril on the same side of the face. A very good friend of mine has recently been diagnosed with this.

I've been told that Trigeminal neuralgia affects women more often than men, but treatment using medication has proven to be helpful. She was telling me that surgery may be needed if a structural problem (a blood vessel pressing on the trigeminal nerve) is found to be the cause.

Wishing you the best in health............

Old 05-31-2010, 06:40 AM   #3
Join Date: Apr 2005
Location: Birmingham, AL
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Re: trigeminal neuropathy - scared !!!!

My sister had TN and had the vascular decompression surgery. It worked beautifully. She had it at Presbyterian Hospital at the U of Pittsburgh where the procedure was invented by Dr Genera (sp?). The facial pain society has a list of approved TN docs in each state. They are a great resource. My sister volunteers with them now.

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