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  • Wrongly diagnosed UTI???

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    Old 07-05-2006, 01:38 AM   #1
    shefishstarfish
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    Wrongly diagnosed UTI???

    I am an otherwise healthy 22 year old female and am not currently on any medications whatsoever. I am not pregnant, have not sustained any serious injuries and have been told by doctors that I am not at an immediate risk of diabetes.

    About a year ago, (whilst on the pill) I suffered from urgency and frequency of urine, I was almost completely incontinent, and eventually wet the bed. There was absolutely no pain, no burning, itching, or discomfort other than the discomfort caused by the incontinence. I was diagnosed with a UTI and was placed on antibiotics, which did not seem to fix the problem until a long while after the course of antibiotics was completed.

    Now, a year on, (No longer on the pill) I have exactly the same symptoms, and still without any pain, burning or itching. This time, results of urine tests etc have shown it isnt bacterial so my doctor has ruled out a UTI, even though what I am experiencing is no different at all from what happened last year.

    The urine has looked completely normal both times, no blood, cloudiness or discolouration. I havnt experienced any other abnormal symptoms that Ive noticed over the past year. Test results indicated there is no STI involved.

    Is this likely to be Interstitial cystitis when I feel no irritation or pain at all? Is there anything else that could cause this aside from MS or bladder cancer?
    Very worried, any thoughts would be greatly appreciated!!!

     
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    Old 07-05-2006, 11:55 PM   #2
    shefishstarfish
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    Re: Wrongly diagnosed UTI???

    Bump! Please help! *freaking out*

     
    Old 07-11-2006, 09:15 PM   #3
    meems
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    Re: Wrongly diagnosed UTI???

    First off..bladder cancer generally has blood in the urine, so mark that off your list!

    How is your caffeine intake? It makes a huge difference in my frequency.

     
    Old 07-15-2006, 03:03 AM   #4
    shefishstarfish
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    Re: Wrongly diagnosed UTI???

    Thanks so much for that!! So probably not bladder cancer, thats very relieving.

    My caffine intake is pretty minimal, I have a coffee in the morning about 3 days a week (the days I have uni!!) and some weeks less than that. This week for example, Ive had no coffee at all. I have the odd cup of tea, maybe twice a week, but thats about all the caffine I would have had over the last couple of months...?

    Im going for a pelvic ultrasound in a couple of days so if no conclusion from that, Ill post again.

    Thanks Meems.

     
    Old 07-21-2006, 11:24 AM   #5
    mgreenw
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    Re: Wrongly diagnosed UTI???

    The past two times I went in with urinary frequency and urgency, I was told I had bacterial vaginosis, and give medicine for that and also Cypro for urethritis. The second time, nothing helped. The doc tried everything, including Detrol LA for overactive bladder. When I went in today, the doc said there was no bacteria, so she suggested maybe it was interstitial cystitis. I also have a pelvic ultrasound first thing Monday morning, so maybe then I'll have some answers.

    I've never had any pain or bleeding either.

     
    Old 07-23-2006, 04:32 PM   #6
    twells
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    Re: Wrongly diagnosed UTI???

    I've probably done a little too much surfing online, but I read something online the other day that said endometriosis can be on the bladder and even somehow make it's way into the bladder in extreme cases, and it can mimic the symptoms of a UTI or IC.

     
    Old 07-24-2006, 09:33 AM   #7
    sonic
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    Re: Wrongly diagnosed UTI???

    Yes, endo can be on the bladder..I have endo & i have IC. But i dont really want to have a Lap just to find out.
    If you think you may have IC...go to a Urologist & have him do a cystoscopy.

     
    Old 08-03-2006, 09:15 PM   #8
    jtiegs
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    Re: Wrongly diagnosed UTI???

    I've got this too. I've had this frequency/urgency feeling for 7 plus weeks now. Urinalysis comes up negative. I've been on four types of antibiotics. I am no doc, but one thing to note is that ureaplasma and micoplasma don't culture easily so they can't see them without very special testing apparently. And despite what you see on the net, they aren't necessarily sexually transmitted, but they can be. They naturally exist in most sexually active adults bodies, but sometimes they colonize and make trouble apparently. And they respond to a few types of antibiotics because of their structural nature. So mention that to your doc just in case as mine didn't seem to come up with that on his own. I've had a cystoscopy (normal), IVP (normal), and full exam (normal). Right now I am holding out hope that my latest antibiotic is going to work. Meanwhile, it's a real pain. My sister had very similar symptoms last year and as a last ditch effort the docs decided to try Erythromycin and tetracycline (the two types of antibiotics that can knock out the above mentioned bacteria). Now, if this isn't mycoplasma or ureaplasma, I don't know what...anyone have any ideas??? My doc said that interstital cystitis usually has pain involved that is relieved upon urination. I have no pain. He doesn't think that's what I have.

     
    Old 08-03-2006, 09:24 PM   #9
    jtiegs
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    Re: Wrongly diagnosed UTI???

    Quote:
    Originally Posted by shefishstarfish
    I am an otherwise healthy 22 year old female and am not currently on any medications whatsoever. I am not pregnant, have not sustained any serious injuries and have been told by doctors that I am not at an immediate risk of diabetes.

    About a year ago, (whilst on the pill) I suffered from urgency and frequency of urine, I was almost completely incontinent, and eventually wet the bed. There was absolutely no pain, no burning, itching, or discomfort other than the discomfort caused by the incontinence. I was diagnosed with a UTI and was placed on antibiotics, which did not seem to fix the problem until a long while after the course of antibiotics was completed.

    Now, a year on, (No longer on the pill) I have exactly the same symptoms, and still without any pain, burning or itching. This time, results of urine tests etc have shown it isnt bacterial so my doctor has ruled out a UTI, even though what I am experiencing is no different at all from what happened last year.

    The urine has looked completely normal both times, no blood, cloudiness or discolouration. I havnt experienced any other abnormal symptoms that Ive noticed over the past year. Test results indicated there is no STI involved.

    Is this likely to be Interstitial cystitis when I feel no irritation or pain at all? Is there anything else that could cause this aside from MS or bladder cancer?
    Very worried, any thoughts would be greatly appreciated!!!

    I forgot to comment on one thing. You mentioned the pill. For me, this all started when I was taking a ten day course of progesterone to attempt to regulate my periods. It's a three month treatment of ten days each. When I started the progesterone, a few days into it this urgency started. Then about a week of being off of it and I felt quite a bit better. Then I started a new round of progesterone for my next month and three days into it the symptoms came back full force. Now I am off for a while (about two weeks) and they have backed off again. I'll start a new round in a few days. If the symptoms come back, I'll be convinced the progesterone is a player in this. My doc can see no reason what this would be the case, nor can I find anything about it on the net. Maybe it's just a coincidence, but I thought it odd after you mentioned the pill in your post too. Anyone else have any thoughts?

     
    Old 08-16-2006, 01:22 AM   #10
    shefishstarfish
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    Re: Wrongly diagnosed UTI???

    Ok, Ive had a lot of blood tests, more urinalysis and a full pelvic ultra sound since my last post. They found that I have Polysistic Ovarian Syndrome. They said I dont have Endometriosis. They also said that the Syndrome does not explain any of the symtoms Ive had with urge incontinence, so I am unfortunately still at a loss. My doc has referred me to a gynacologist who I am seeing in 2 weeks, the screen he will perform involves cathedas and what not so not looking forward to it at all

    Jtiegs - Im not sure that this has any connection with the pill, at least my doc didnt seem to think so. It was definately on my mind, although the first time I had the problem I was on the pill, and now I have the problem again but Im not on the pill at all. What youre saying about ureaplasma and microplasma is interesting, especially as it seems as though my problem improves a little after anti biotics but then comes back a while after the course has finished.

    Will post after the appointment with the specialist when Ive found out more.

     
    Old 08-16-2006, 06:48 AM   #11
    jtiegs
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    Re: Wrongly diagnosed UTI???

    Interesting, what you've found out. I don't know what to make of it. Does the doctor have a solution? I was told my ovaries are a normal size, but that I do have thickening on my uterus. I have a new theory that there's some endrometrial growth somewhere it shouldn't be that they haven't found yet. And that that is pressing on my bladder or urethra. I wouldn't doubt for a minute that something about your female issues are related to that urgency. I am convinced it's related. Think about when one is pregnant. Even FAR before the baby is large enough to press on any organs, there is a sensation of urgency. I recall having this within weeks of becoming pregnant. It's got to be hormones or something. I did see something about progesterone softening slackening the urethra when pregnant. I'm grasping at straws, but still....

    As for me, I started my third course of progesterone and within three days my serious urgency symptoms bloomed into a full bout. I called my OBGYN and she essentially denied the possibility of a correlation. I decided that against her advice I would stop the medication, and within about 4 days of stopping I am back to a manageable level of discomfort. There MUST be a correlation. I am frustrated with the docs thinking I'm nuts.

    Anyway, I have yet to find out what this is. I am still waiting to get a CT.

     
    Old 08-19-2006, 08:19 AM   #12
    twells
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    Re: Wrongly diagnosed UTI???

    To shefishstarfish: Not trying to disrespect a doctor -- they have the degree, I don't -- but endometriosis can only be confirmed or completely ruled out with a laparoscopy. It simply doesn't show up on an ultrasound -- pelvic or vaginal.


    Quote:
    Originally Posted by shefishstarfish
    Ok, Ive had a lot of blood tests, more urinalysis and a full pelvic ultra sound since my last post. They found that I have Polysistic Ovarian Syndrome. They said I dont have Endometriosis. They also said that the Syndrome does not explain any of the symtoms Ive had with urge incontinence, so I am unfortunately still at a loss. My doc has referred me to a gynacologist who I am seeing in 2 weeks, the screen he will perform involves cathedas and what not so not looking forward to it at all

    Jtiegs - Im not sure that this has any connection with the pill, at least my doc didnt seem to think so. It was definately on my mind, although the first time I had the problem I was on the pill, and now I have the problem again but Im not on the pill at all. What youre saying about ureaplasma and microplasma is interesting, especially as it seems as though my problem improves a little after anti biotics but then comes back a while after the course has finished.

    Will post after the appointment with the specialist when Ive found out more.

     
    Old 08-26-2006, 01:05 AM   #13
    shefishstarfish
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    Re: Wrongly diagnosed UTI???

    The gynacologist offered me little to no help at all. He said that my slightly higher than normal level of the hormone Androgen is reaking havoc with me, and suggested I go on a pill thats high in Estrogen. I started taking it today. He seems to think that the incontinence may be fixed by this pill, but I am extremely skeptical.

    jtiegs- I think youre right, there absolutely must be a correlation. My doctor completely ruled out a connection between my problems aswell, but Im also convinced they're related somehow.
    The endometrial growth thing you mentioned sounds logical to me, although it did seem to clear up with the antibiotics... If its a hormonal thing this pill Im on may help...?

    twells- Thats really interesting, albiet alarming... My Doc ruled out Endo purely based on the blood test/hormone count and the ultrasound. Thanks for telling me that. Maybe I should ask my doc about a Laparoscopy?

     
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