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  • My Pelvic Headache: How my UTI turned into a tight, painful muscle issue.

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    Old 02-04-2009, 10:32 AM   #1
    Ottawa77
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    My Pelvic Headache: How my UTI turned into a tight, painful muscle issue.

    I had a UTI over a year ago (Oct 2007), but I continued to have symptoms after the fact even when the cultures came back negative. I’ve read many posts from people about this so far, so I know I’m not the only one, but it took me 6 months to realize I needed to educate myself because my doctors did not seem to have the answers.

    At first, it felt like the pain and burning was mainly in my Urethra, but that grew to a more general pain around my pelvic bone. My family doctor had sent me for an Utrasound to see if I had a cyst since we could fell a small mass behind the urethra after months of treating the first UTI. It turns out there was a small cyst… only 1.2cm, but that’s more then I wanted. Apparently cysts can form if the glands behind the uretha (para-urethral) get infected. I was finally referred to a Urogynecologist but I don’t believe she was educated enough about the problem. I mentioned infected glands and she said she had never heard of this before! Anyhow, despite a painful cystoscopy (the urethra was VERY sensitive) she said I had a healthy bladder, which I was relieved to hear (I think that was a pun )… She then wanted to look for a diverticulum, which incidentally, can form if a cyst ruptures. They did a voiding cysto-urethrography, which is where they place a contrast material in your bladder so they can x-ray before, during and after you urinate. They found nothing wrong. The Urogynecologist told me she had no more ideas. I asked for an MRI… but I’m still waiting for this. My family doctors agreed to treat the cyst as the cause of my symptoms and that’s how I ended up taking cipro for 9 weeks. Cipro is tissue penetrating and good at fighting e.coli (the original UTI was this), but in order to penetrate the gland wall, you need many weeks of treatment. I finished the antibiotics after the cyst felt like it was gone, but my symptoms remained relatively unchanged.

    The one useful insight I got from the specialist I saw was she noticed I had tight muscles. My hyminal ring was really tight, and that was causing some of my pain, which I noticed most often (but not only) during and after intercourse. This was new since I had my annual physical done previously in the same year, and my muscles seemed normal then. The pain had always felt like it was in my Urethra, but it had spread. Anyhow, the specialist’s approach to solving the tightness was not useful…. said it could be fixed with surgery... by CUTTING! She did not link this to my Urtheral pain….

    What's occurred to me now (6 months later) is this is not coincidental. The muscles are tight, and that could be the reason I don't feel better.... Pain makes you tighten your muscles, and tight muscles lead to pain which leads to more tight muscles. It’s an unconscious cycle of tension and pain. I also have an anal fissure and I think this is another sign of having muscle issues. After 9 weeks of anti-biotics, I'm ready to try something new. I'm about to buy a book called "A Headache in the Pelvis" by David Wise, Ph.D. It deals with healing chronic pelvic pain without meds or herbal remedies.... They try to break the cycle of muscle tension so your body can heal. It all seems reasonable since I can feel the pain release a bit when I focus on relaxing the muscles. Has anyone here read this book? I’d like to hear about it.

    Also, I'm using a Calcium Citrate supplement, which takes away a lot of the burn from urinating and seems to help with the "relaxing" because the pain is not so bad. I prefer this to taking Phenazo/Pyridium. See my other post in "Can a UTI cause interstitial cystitis?" if you want more details about that.

    In the meantime, I'm still waiting for a referral to see a different Urologist... so I may actually get to see someone in another year at this rate. Canadian Healthcare at it's best!

    Last edited by Ottawa77; 02-05-2009 at 07:49 AM.

     
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    Old 09-09-2010, 08:01 PM   #2
    gwtx2
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    Re: My Pelvic Headache: How my UTI turned into a tight, painful muscle issue.

    Quote:
    Originally Posted by Ottawa77 View Post
    I had a UTI over a year ago (Oct 2007), but I continued to have symptoms after the fact even when the cultures came back negative. I’ve read many posts from people about this so far, so I know I’m not the only one, but it took me 6 months to realize I needed to educate myself because my doctors did not seem to have the answers.

    At first, it felt like the pain and burning was mainly in my Urethra, but that grew to a more general pain around my pelvic bone. My family doctor had sent me for an Utrasound to see if I had a cyst since we could fell a small mass behind the urethra after months of treating the first UTI. It turns out there was a small cyst… only 1.2cm, but that’s more then I wanted. Apparently cysts can form if the glands behind the uretha (para-urethral) get infected. I was finally referred to a Urogynecologist but I don’t believe she was educated enough about the problem. I mentioned infected glands and she said she had never heard of this before! Anyhow, despite a painful cystoscopy (the urethra was VERY sensitive) she said I had a healthy bladder, which I was relieved to hear (I think that was a pun )… She then wanted to look for a diverticulum, which incidentally, can form if a cyst ruptures. They did a voiding cysto-urethrography, which is where they place a contrast material in your bladder so they can x-ray before, during and after you urinate. They found nothing wrong. The Urogynecologist told me she had no more ideas. I asked for an MRI… but I’m still waiting for this. My family doctors agreed to treat the cyst as the cause of my symptoms and that’s how I ended up taking cipro for 9 weeks. Cipro is tissue penetrating and good at fighting e.coli (the original UTI was this), but in order to penetrate the gland wall, you need many weeks of treatment. I finished the antibiotics after the cyst felt like it was gone, but my symptoms remained relatively unchanged.

    The one useful insight I got from the specialist I saw was she noticed I had tight muscles. My hyminal ring was really tight, and that was causing some of my pain, which I noticed most often (but not only) during and after intercourse. This was new since I had my annual physical done previously in the same year, and my muscles seemed normal then. The pain had always felt like it was in my Urethra, but it had spread. Anyhow, the specialist’s approach to solving the tightness was not useful…. said it could be fixed with surgery... by CUTTING! She did not link this to my Urtheral pain….

    What's occurred to me now (6 months later) is this is not coincidental. The muscles are tight, and that could be the reason I don't feel better.... Pain makes you tighten your muscles, and tight muscles lead to pain which leads to more tight muscles. It’s an unconscious cycle of tension and pain. I also have an anal fissure and I think this is another sign of having muscle issues. After 9 weeks of anti-biotics, I'm ready to try something new. I'm about to buy a book called "A Headache in the Pelvis" by David Wise, Ph.D. It deals with healing chronic pelvic pain without meds or herbal remedies.... They try to break the cycle of muscle tension so your body can heal. It all seems reasonable since I can feel the pain release a bit when I focus on relaxing the muscles. Has anyone here read this book? I’d like to hear about it.

    Also, I'm using a Calcium Citrate supplement, which takes away a lot of the burn from urinating and seems to help with the "relaxing" because the pain is not so bad. I prefer this to taking Phenazo/Pyridium. See my other post in "Can a UTI cause interstitial cystitis?" if you want more details about that.

    In the meantime, I'm still waiting for a referral to see a different Urologist... so I may actually get to see someone in another year at this rate. Canadian Healthcare at it's best!
    Excellent post. It is very true that pelvic muscle tension can cause a host of symptoms which mimic a UTI, bladder infection, prostrate infection, or even a sense that something is wrong with the rectum. It takes a little time for one to learn they are tensing pelvic muscles and to stop doing so when they notice such. This technique is good for any area of the body such as abdominal muscles, neck, back, etc. Look up progressive muscle relaxation.

    Last edited by gwtx2; 09-09-2010 at 08:02 PM. Reason: spelling

     
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