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  • Increasing pain,nothing seems to help (possible endo)

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    Old 10-11-2005, 12:55 PM   #31
    JenRas05
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    Re: Increasing pain,nothing seems to help (possible endo)

    Do you have pain around your belly button too? or farthur down in your pelvis area? i remember reading that endo can grow on your digestive organs as well as your reproductive organs so maybe thats what it is for me. They called me back and told me i have an appointment November 30 with the gastro doctor in Duluth. That was the soonest appt. but atleast its sooner than December. I'll keep you posted on anything new, hope to hear from you again soon. Jenny

     
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    Old 10-11-2005, 01:08 PM   #32
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    Re: Increasing pain,nothing seems to help (possible endo)

    No, my pain is lower and to my left, right above the pubic hairline. That's why they think it could be adhesions too, because I had my son by C-section and that's where part of the scar is located. I've had back pain on and off too, but the real severe pain is in my pelvic area. I think that's why I started out at the OB/GYN, because they wanted to check my ovaries and other female organs for tumors, etc. The problem is, I've had everything done gynecologically that I can without surgery to look for a diagnosis. If the surgery doesn't turn up anything, I'll probably have to go to the gastroenterologist next, and then the last would be a urologist. Each specialist checks only the areas they specialize in, so this diagnosis could take a long time. But like you, I have been really educating myself and I really think that I'm headed in the right direction. At least I hope I am

    Last edited by SRMom; 10-11-2005 at 01:09 PM.

     
    Old 10-11-2005, 01:14 PM   #33
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    Re: Increasing pain,nothing seems to help (possible endo)

    Jenny, I wanted to add that I'm sure, based on the symptoms you've told your doctor, that you are headed in the right direction too. Since you are young and probably haven't had any abdominal surgery yet, I think what your gynecologist said about checking out your tummy first is the correct way to proceed. I don't want you to get discouraged, and at least now you have good pain medication to get you through until your next appointment.

    Last edited by SRMom; 10-11-2005 at 01:25 PM.

     
    Old 10-11-2005, 09:59 PM   #34
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    Re: Increasing pain,nothing seems to help (possible endo)

    Hi Jen
    I had a doctor tell me that all my pain was from ibs . I do have ibs, but it is related to my Endo. He even got a book out to try and explain why I didn't have it. Anyway who knows where I would be with my treatment if I believed that doctor. I get angry thinking about it! I also had another doctor tell me my pain wasn't like the Endo pattern for pain. So I had a similar experience like yours. I have heard it is very common for doctors to tell woman there female pain is caused from gastro problems. I always new I had Endo. You know your body better than a doctor. Its really good that you have read up so much. Seems like you know more than the doctors. Keep pushing them until your happy! Glad the pain meds are working better for you. I wish you well.

     
    Old 10-12-2005, 06:59 AM   #35
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    Re: Increasing pain,nothing seems to help (possible endo)

    Ohhh wow I feeel so bad for you.I can not imagine the pain you are in.I have Fibroids.I do not think it's as painfulll as what you are going through.But my fibroid(I think at least one of them)is out-side of uterous.It is in my darn ribs and it does go into my bladder and bowels.Today I finally go for my Pelvic ultrasound.In about one more hr I need to drink 5 big glassses of water.I willl have 5 done within half an hr.My appointment is at 12:30pm.I can not wait to get this over with.I'm in so much pain right now.It's my left side that keeeps buggging me.Welll I wish you luck.Take care.Pamela

     
    Old 10-12-2005, 08:08 AM   #36
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    Re: Increasing pain,nothing seems to help (possible endo)

    well, i guess i just have to wait till my gastro doctor appointment. I don't really care if they check my stomach, i just still feel i have endo. The digestive part wouldn't explain the severe back pain, severe menstrual cramps, and the pain radiating down my leg. Plus the back pain is the worst anyways. I want to get rid of that the most. I'll have a talk with my gyn about that, the possiblity of having both digestive and endo. i'd like to see what she says....i'll explain your story and how your ibs is caused from your endo. Thanks again,
    p.s. good luck pamela in your pelvic ultrasound, hope they can help you to ease your pain. wish you all the best of luck!

     
    Old 10-12-2005, 11:39 AM   #37
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    Re: Increasing pain,nothing seems to help (possible endo)

    this just keeps getting more frustrating, today i ran out of the vicodin and so i called to see if they could refill it, they told me that the ER doctors can't prescribe refills and then they told me to contact my doctor. So i called my pediatrician's nurse since i haven't transfered doctors yet and they asked my pediatrician if he could prescribe me the refill and he said he can't prescribe narcotic drugs......i even told them that those were the only pain pills that helped....still they told me i have to see a family practition doctor to get a refill. oh, just great.....now i have to go see another doctor who doesn't even know anything about my circumstances and try to convince him to prescribe me narcotic pain pills. that shall be fun.....i go in today at 3:45, i need to get them today because i have to work tonight and the pain is really bad....i don't know what i'll do if he doesn't prescribe them for me!

     
    Old 10-12-2005, 11:47 AM   #38
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    Re: Increasing pain,nothing seems to help (possible endo)

    Oh sweetie...do you have a heating pad you could use until work? Maybe you could buy some of those adhesive heat patches for back pain to use at work?

    It is just unbelievable what these doctors/nurse practitioners are telling you. A nurse practioner cannot prescribe any meds, to my knowledge, they usually call in the scripts under the license of the doctor they work for. There shouldn't be a problem getting pain medication from a pediatrician either...I'm sure they give narcotics to children...what about codeine cough medicine for one example?? Anyway, it sounds like you are getting the run around. Anything your parents can do for you? Maybe make a call to the doctor for you? My heart goes out to you...I know what you are going through!

     
    Old 10-12-2005, 12:14 PM   #39
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    Re: Increasing pain,nothing seems to help (possible endo)

    Hey Jen...one more thing...if you are able to get another prescription for painkillers, try to only take them when absolutely necessary (like when you have to work). That way you won't run out too fast and the doctors won't be as hesitant to refill, because they will see you are using them responsibly.

    I guess you could go back to the ER again today if you really need the medication, or maybe you'll have to call in sick?

     
    Old 10-12-2005, 01:26 PM   #40
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    Re: Increasing pain,nothing seems to help (possible endo)

    i guess it wasen't that he couldn't prescribe them it was just that he said he wouldn't
    i'll tell you how the doctors goes today, i got to go right now, talk to you soon

     
    Old 10-12-2005, 03:16 PM   #41
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    Re: Increasing pain,nothing seems to help (possible endo)

    I went to see the on-call doctor, Dr. Miracle (lol) that was his real name. Anyways he checked my back like all the rest of the doctors and had me have x-rays of my back. The x-rays turned out normal so he said I probably have a strain in the sacra area of the back near the tail bone. "sure".....he wants me to do physical therapy too so i made an appt. for that on Monday(don't know if it will help but it can't hurt me). The one really good thing is he did prescribe me a refill of the vicodin. He said though that those probably aren't the best for long term use because they can be habit forming and cause habituations. He gave me a note for work so i don't have to go in tonight. There are 40 pills in the bottle so i'll have to make those last through till the end of November. Try to take them when i really need them, except the pain comes back after 6 hours of taking the pill. It's always really strong too. Don't know....

     
    Old 10-12-2005, 04:08 PM   #42
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    Re: Increasing pain,nothing seems to help (possible endo)

    Hi Jenny:

    Good news on the refill. On my prescription receipt it says how many days worth there are in the bottle. 30 pills is 5 days, but I don't take it that often...maybe one per day, more if it's really bad like right before my period, so 30 lasts almost a month. When I don't have any refills left, I take the empty bottle to the pharmacy and they fax my doctor for a refill request. I haven't been denied yet, I'm assuming because my doctor knows I'm careful. I can tell I'm building a tolerance though and I'm really careful not to give in to taking more. If you save them for really bad times, they'll work better.

    Have a great night off (what a relief)

    -SRMom

     
    Old 10-12-2005, 04:30 PM   #43
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    Re: Increasing pain,nothing seems to help (possible endo)

    I don't think this doctor i saw will give me any more refills, but i'm going to switch doctors soon and he wants me to go in again in another 2-3 weeks if i still have the pain. I'll try to only take one a day....see how it goes,...i'm glad i have them now though, i now have some relief!

     
    Old 10-12-2005, 05:59 PM   #44
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    Re: Increasing pain,nothing seems to help (possible endo)

    I took the vicodin at 5:00 and it seemed to help a lot at first but now its about 8:00 and the pain seems to be coming back, almost as strong as it was before but not with the edge. I know i can't take anymore pills today though. I'm not going to abuse them I just need them for the pain.....its so hard dealing with all this....i break down crying so much...my bf hates seeing me in pain too.....really hope i can get this figured out....i just have to be strong and hold out till my gastro appt.,

     
    Old 10-12-2005, 07:28 PM   #45
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    Re: Increasing pain,nothing seems to help (possible endo)

    All your support is really appreciated!...Thank you so much!,...it feels so good to talk with people who know the pain and trouble ur going through!

     
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