It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Women's Health Message Board

VIN III/HPV/Disorders of the Vulva

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 10-22-2009, 02:52 PM   #1
Join Date: Oct 2009
Location: Virginia
Posts: 7
OlliesYaya HB User
Thumbs up VIN III/HPV/Disorders of the Vulva

I'm home now, into my 3d week of recovery from a vulvectomy due to something called VIN III w/HPV effect. When my saga started 2 months ago, I had no idea how little information there is about this sort of thing. I've spent God-knows how many hours on the web researching diseases of the vulva.

I had, what I thought was a hair bump that simply would not heal. When I asked my husband to look at it, he said I was starting to lose pigment along w/a lesion. A few weeks later, after getting no relief, he looked again & said it appeared to be getting larger.

My PCP thought I had lichen sclerosis but sent me to a GYN for a biopsy; 7 days later, I got a call while shopping to say that the biopsy wasn't clean and I needed to get in to see an oncologist who specialized in GYN cancers pronto. Three days later, she took a look at me and said, "I'm not convinced that you don't have cancer already but the only way to find out is surgery." THAT was a very sobering moment--my emotions kept veering from steely resolve to paralyzing fear!

I had surgery 2 weeks later. From her description, she made the procedure seem like a piece of cake...I honestly expected to be in and out of there in 2 hours! When I finally woke up, it was 6 1/2 hours later. Once she start cutting, she found a lot more diseased tissue which led us to believe that this "problem" started a lot sooner than 6-months ago which I thought. That part I don't understand because I have GYN exams like clockwork every year.

Even though I had to come home w/a catheter, the pain didn't really kick in until 2 days later--the sensation alternated between feeling as if my flesh was on fire and feeling like it had been thru a meat grinder. I took Percodan & anti-nausea meds every 4 hours like clockwork--we were sleep deprived & exhausted for several days--anyone who has an infant knows what I mean.

Thankfully we had sitz baths & disposable waterproof pads on-hand. The doc warned me that urinating was going to be painful, but using a spray bottle w/warm water and a warm, moist face-towel worked wonders. I slept on a waterproof pad with 1 bag of frozen vegetables (wrapped in a cotton diaper) under my public area & 1 on top. After every void, I let the area air-dry (I was stitched up both sides of my public area and half-way up my bottom) then my husband applied a mixture of lidocaine/Neosporin and sometimes A&D.

My stitches came out about 2 weeks later--agony! The upside is, the swelling has gone down; at its worst, it made walking very difficult and painful. I still can't stay on my feet for too long or else I'll start swelling and sitting on hard surfaces is a no-no.

Am not sure if this is likely to recur or if it makes me susceptible to other types of female cancers. That's probably my biggest fear. It took me 2 weeks to get up the courage to even look at the site. The doctor says I must have exams every 3 months for the next 2 years and then it'll go to every 6 months. My official diagnosis was something called carcinoma in situ.

For anyone who is going thru this or is scheduled to, you have my prayers and sympathy. It's a difficult thing to explain to others but for someone who is dealing with it...please know that you are not alone.

The following user gives a hug of support to OlliesYaya:
Silentsam (08-31-2011)
Sponsors Lightbulb
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Dysplasia on vulva??? Haley1234 Cancer: Cervical & Ovarian 32 08-08-2008 12:16 PM
Vulva chronic inflammation keva23 Women's Health 4 05-25-2008 08:47 AM
vulva cancer? brookiebear21 Sexual Health - Women 0 07-17-2005 11:26 AM
Vulva Biopsy daiseysue Cancer: Cervical & Ovarian 13 10-05-2004 06:17 PM
Skin irritation, "cuts" inside vulva lips Drury18 Sexual Health - Women 18 06-19-2004 07:34 PM
Vulva pain/problems. Anyone else? Help! Juliebrat Sexual Health - Women 23 02-28-2004 11:39 AM
irritated vulva ashpie Women's Health 1 10-28-2003 08:22 AM
Vulva Atrophy I'm scared snowflake42 Menopause 2 09-12-2001 05:41 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 11:14 PM.

Site owned and operated by™
© 1998-2018™ All rights reserved.
Do not copy or redistribute in any form!