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Possible Misdiagnosis of Vaginal Septum...Where to Go From Here?

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Old 02-24-2010, 01:51 PM   #1
Join Date: Feb 2010
Posts: 3
tneal123 HB User
Possible Misdiagnosis of Vaginal Septum...Where to Go From Here?

Sorry this is kind of lengthy!

So, I'm only 18 years old, and this previous November I went in for an annual gynecological checkup, and was seen by a midwife who was covering my doctor for the day. After having two previous annuals, nothing strange had been noticed, however the midwife told me this time that she saw that I had a longitudinal vaginal septum, and thought it was very interesting (and asked if she could look again!). She told me to wait for my next annual for a checkup, but I was freaked out and scheduled another appointment in December with my regular doctor. My normal doctor saw it too, and upon examination said she could see two cervixes. She told me I should consider surgery to remove the septum, but first to get a better understanding of what was actually going on.

I then was sent for MRIs to see where the two cervixes led to, and whether or not I had two uteruses, or other reproductive anomalies. My doctor took a month to respond to my messages looking for results, and finally told me the scans were inconclusive. She took the scans to another specialist to read, and they said they only saw one cervix, and no abnormalities. CONFUSING. So my mother and I found the best gynecologist in the area (according to a few sources), and when he did a normal exam, he said he didn't see anything wrong, except swelling on one side of my cervix (he only saw one) that he couldn't see past. He said its possible there could be something else past there such as another cervix, but didn't see any reason for surgeries, and didn't see a septum at all. He said he would review the MRI scans again for me with another specialist, just to double-check.

He called me back and told me nothing showed up in the scans, and offered for me to get a hysterosonogram to check for sure that nothing funny was going on. I heard the procedure can be really uncomfortable, and am not sure if I should or not. Is it possible that my first two doctors could not have really seen a septum? Or is the new one just missing it entirely? I'm not worried yet about getting pregnant, but if this could be an issue in the future I'd rather get everything fixed now so I wouldn't have to be concerned with it later.


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Old 04-02-2010, 05:32 PM   #2
Join Date: Apr 2010
Posts: 2
StripySocks HB User
Re: Possible Misdiagnosis of Vaginal Septum...Where to Go From Here?

Hey, I don't know if I'm too late and you have had it sorted but I have had similar problems to you- ive waited months and months now for an MRI and ultrasound to see if i have a vaginal septum (no one seems to be too sure) and no one seems to understand that it is a big deal!!I've seen countless doctors over the years complaining of painful intercourse and have had numerous internal examinations, but it's taken until now (I'm 20) for anyone to notice the septum.
My advice is to keep pestering until you get a definitive answer. I hear hysterosonograms aren't as bad as you think. I recently had a cystoscopy and i was dreading it,but once I got over being embarrassed it wasn't that bad at all. and if it sets your mind at rest then what's a little discomfort?? hope this helps and good luck!

Old 12-01-2010, 01:53 PM   #3
Join Date: Feb 2010
Posts: 3
tneal123 HB User
Re: Possible Misdiagnosis of Vaginal Septum...Where to Go From Here?

After a longggg search I ended up finding a wonderful doctor who was actually interested in solving my questions/problem. It turns out I have a partial vaginal septum (doesn't reach the opening or my cervix) - its laying perfectly in the middle. It took an ultrasound while having a pelvic exam to find it. My doctor was horrified about hearing my struggle to find someone who believed me, at only 18!

My doctor discussed having surgery to remove the septum. It's never really bothered me before but with my new boyfriend, its starting to be a problem. I think I'm going to wait until the summer so it doesn't get in the way of college...I heard the recovery is 3 wks - possibly 1 month? Has anyone had this procedure done? Any advice would be great.

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