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  • Yeast, Lactobacillosis or Cytolytic Vaginosis???

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    Old 03-11-2011, 05:08 PM   #31
    mamacitas
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    @Sweetpea: I used preseed for about a week and a half before my period, then stopped when my period came. My period just ended a few days ago, and I'm using preseed again now. The interesting thing is, I got slightly itchy again during my period and afterwards until i started back up with the preseed treatments. I know blood is supposed to be alkaline, but it seems like preseed is the only thing that gives me almost total relief. The point im at now is that im not red or extremely itchy down there, but im still not %100 better. i use preseed every night, but only about 1/3 of an applicator full (to make it last and so its not messy in the morning). i go about my day feeling normal most of the time, but i do have occasional twinges or feelings of irritation. i dont have any discharge at all and the appearance of my vagina is totally normal, but i do experience a mild itch a few times throughout the day. So i dont feel totally cured, but Im a lot better then I was when i just did the baking soda douches.

    As far as my diet, im doing my best to alkalize my body. I'm trying to drink lots of water, and I add lemon or lime to it (lemons and limes are acidic, but your body metabolizes them as alkaline). I'm also taking calcium, vitamin c, and iron supplements every night to try to alkalize myself. calcium and iron are very alkaline. I don't drink soda and do my best to stay away from dark teas, caffeine, and coffee. i do still drink alcohol when i go out though.

    im hoping for a total cure, and that my body will eventually rebalance itself. i spent months doing treatments like boric acid and hydrogen peroxide because my doctors thought i had yeast or bv (even though my cultures were negative). now i know that those things only made the problem worse. so im hoping that by alkalizing my body, i can slowly but surely get better. i refuse to believe that hundreds or even thousands of women can have one vaginal issue and be out of whack for the rest of their lives. im trying to keep faith and tell myself that our bodies naturally want to be in balance, we just have to help them get back to that point.

    keep me updated everybody

     
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    Old 03-11-2011, 05:48 PM   #32
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    Mamacitas-
    I just had to let you know that your post today was the best thing I have read in a while. I have been feeling really down and pessimistic about all of this. Just seems like a lot of dead ends with no real light at the end of the tunnel. I am sure i will still have my bad moments each day, but I hope that I can catch some of your spirit and attitude towards things.
    I think you said it perfectly when you wrote "i refuse to believe that hundreds or even thousands of women can have one vaginal issue and be out of whack for the rest of their lives." I think we all need to have the same determination not to be "out of whack" any longer, nevermind the rest of our lives.
    Please continue to post on here ladies. It really does have an impact whether you believe it or not. I know it helps me and I can only hope that in some way I may help someone else.

     
    Old 03-12-2011, 08:45 AM   #33
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    Yes, I agree, this message board is very helpful. Especially that pre-seed recommendation. I ordered it from ****** and tried it last night - excellent. I've been using baking soda douches probably twice a week for what seems like years now (actually it has been years) and I really think this is a chronic acidity that I will just have to maintain for the rest of my life. I think the bright side of this situation is that I'll never get BV. As alkaline as I try to keep myself I always go back to acidic so the BV bacteria will never be able to grow in there. The pre-seed it pretty nice, I've only used it once, but so far I like it. Also, I would just like to say again that what started this problem was taking probiotics - so ladies, don't take probiotics if you can help it.

     
    Old 03-13-2011, 06:00 PM   #34
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    @Answerplz, thank you. believe me, i still have my dark moments too. but when i question why all of this had to happen to me, i try to tell myself that everything happens for a reason. the more we all share advice and raise awareness, the closer we are to getting a cure rather than a misdiagnosed condition. i would have been a lot better off physically and emotionally if someone had told me about CV in the first place, instead of me going through a year and a half of seeing gynos who either guessed or told me nothing was wrong.

    What I'm focusing on now is advice for women trying to conceive (TTC). There's hardly any info online about CV, but tons of sites dedicated to women TTC. the funny thing is, we have the same goal. they want to make their vaginas more alkaline, so that they are more friendly to sperm. i found out about Preseed on a message board for women trying to get pregnant, and it's helped a lot. something else that a lot of the TTC sites recommend is using egg whites (which have a ph of 9-10). some of these women swear by egg whites, because they're more alkaline than preseed and less expensive. sounds weird, i know. and there's a process you have to go through to make sure it's clean and safe. I'm going to stick with the preseed for now, but it's definitely something to think about. I'm also going to start drinking a glass of milk a day. I hate milk, but i read another woman with CV's advice on here and she recommends it to help with the alkalizing process.

    @Karmenlight: keep me updated on how the preseed works for you. also, I have a question i'm hoping you can answer. As a woman who has been managing CV, have you been able to have a sex life? and if so, do your fluids irritate your partner at all? I'm still a virgin, but I used to enjoy oral sex and other forms of non-penetrative contact before this whole ordeal started. I've been totally abstinent for 16 months now, and I'd really like to gain some of my sexual confidence back. But i'm concerned that the acidity of my fluids, which still slightly irritate me when I become aroused, could irritate my partner. of course if i had intercourse, i would use a condom. but im worried about the rubbing/touching of his genitals to mine, and the effect that my fluids may have on him. Any advice you or any other CV sufferers could give would be appreciated.

    stay strong ladies!

     
    Old 03-13-2011, 07:15 PM   #35
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    mamacitas i am very much on the same page with everything you've said. i've recently started to completely cut pop/coffee out of my diet, drink more lemon water, and i have noticed some positive improvement. quick question, have any of you opted for using tampons during the day to prevent the discharge from hitting your skin? this definitely helps me but i dont know if its inhibiting improvement in the long run by not allowing the vagina's natural cleansing process?

     
    Old 03-14-2011, 10:00 AM   #36
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    Just a question if anyone has used gentian violet or knows anything about it. I had several treatments of it a couple months ago for what my gyn thought was a severe internal and external yeast infection. It was sort of a last resort since traditional antibiotics and yeast meds had not worked prior. She had said that this would take care of any bacteria or yeast that may be present. Would this also have destroyed the Lactobacillosis then? I am just trying to get an understanding if CV is something I really could be dealing with. Thank you!

     
    Old 03-14-2011, 10:12 AM   #37
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    @jkarr123 - Personally I wouldn't use a tampon unless you were on your period, in fact, if you are having acidity problems I wouldn't use a tampon then either. Blood is alkaline and can lower the acidity if allowed to flow. When not on your period I think using a tampon might be damaging.

    @mamacitas - I have had the same partner for over 7 years now and a sex life with CV is a real challenge. Especially before I knew what to do about it. Even now, when I do everything possible to keep the acidity in check its a constant worry. I have had to have MANY uncomfortable conversations with my partner about how his poor penis feels after being exposed to lemon juice/battery acid vagina - not good. And then what am I supposed to tell him after I go to the doctor multiple times and they tell me nothing is wrong, that vaginas are supposed to be acidic! Which is true but not so acidic that its burning holes in your underwear i mean cmon! Many moments of despair. Its better now that I know what to do. Here is what I have learned:

    -Baking soda capsules are too strong, they take out lactobacillus but also the other bacteria that is supposed to balance it out.
    - Boric acid works in the short run but in the end will make it more acidic after you stop taking it.
    - amoxicillin antibiotic is a good thing to try, it may reset everything, but not for me.
    - baking soda douches are gentle enough to reset things on a daily basis.
    - test yourself everyday, if your acidic, bring it back to alkaline with baking soda or this pre-seed.

    good luck and take care ladies

     
    Old 03-14-2011, 10:16 AM   #38
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    I have not heard of gentian violet.

     
    Old 03-14-2011, 10:22 AM   #39
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    How were you ladies finally diagnosed with CV? I have had so many cultures, but could they have missed it or not looked for it? I was told my PH last time I was at the doctor was around 4 I believe, but that was right after I had tried RePhresh. This is just so frustrating. I want my "sister" back to normal!
    Karmen- lol @ burning holes in your underwear!

     
    Old 03-15-2011, 03:34 PM   #40
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    @ Answersplz: i've heard of gentian violet being used mostly as an antifungal for yeast, and occasionally as a catch all treatment for BV. My understanding is that it targets mainly yeast. i dont know a lot about it, but my guess would be that it wouldnt be an effective treatment for CV. Anything that kills yeast or possibly bad bacteria is going to further acidify rather than alkalize.

    I was diagnosed with CV by Dr. Richard Marvel at John Hopkins in baltimore. He specializes in complicated vaginitis. it can be diagnosed with a simple wet prep under a microscope, but unfortunately most gynos dont even know what it is. it isnt something that would show up in a culture or test if the doctor didnt know what to look for.

    @JKarr: ive tried wearing tampons in the past to deal with the discharge. it wasnt comfortable for me personally so i stopped, but i dont think it hurt either. i kind of figured since the good bacteria are aerobic and need oxygen to thrive, maybe a tampon would help block things a little lol. keep me updated on your progress with alkalizing. i'm going to start drinking milk too and see if that helps.

    @Karmenlight: i was worried about that. i tried boric acid too, it does thin your discharge but its also very acidic so it always made things worse for me. right now im using a little bit of preseed every night and a baking soda douche as needed. i really hope i can just get the symptom maintenance to the point that sex isnt an issue. as long as i keep doing my routine, i have no burning and almost no itch. the only thing i notice daily is increased discharge, but its thin and it doesnt seem to irritate me. im assuming that as long as i feel like this, my partner wont be bothered too much either. of course, id like to stop having to do all this stuff and just be rebalanced. but im hoping this means im making progress.

    ladies, any other experience u can offer about sexual contact with CV would be appreciated.

     
    Old 03-17-2011, 03:06 PM   #41
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    Just wanted to post a little update. I don't have huge news, but I have been having some relief and wanted to share what worked. Thanks to everyone's suggestions, I decided to try the baking soda in the bath each night for the last 4 nights. I figured that was the least likely to cause me any further problems at this rate. I am not sure if its coincidence or not, but the burning has seemed to subsided a great deal. I am able to go through most of the day without feeling completely awful! Unfortunately, I still have the horrible discharge that seems to be just as heavy as ever and I still see the redness down there. But I guess some relief is better than nothing. I would imagine it will be a gradual process in getting back to "normal" anyway if I do ever get there!

     
    Old 03-21-2011, 12:21 PM   #42
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    @Answersplz

    I'm really glad to hear that. Are things still improving? If the baking soda bath helps, you may want to go ahead and try the baking soda douche just to see if it makes things even better. If so, you may very well have CV. When my CV was at its worst, i had burning, thick white discharge, redness, and an on and off itch throughout the day. The sitz bath helped a little, but i found the baking soda douche the most soothing until i discovered preseed.

    an update on me: I think the calcium supplements and lemon water are helping. im still doing a little bit of preseed every night, which gets me through the day with hardly any symptoms. My period is due in about a week (usually i would be miserable by this time). So, im trying to keep up hope that the things im doing are working, and that im gradually rebalancing myself each month. hopefully my period won't throw things off too much

     
    Old 03-23-2011, 07:54 PM   #43
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    It's been about a weeks worth of baths at night with the baking soda and still about the same. Less burning, but it hasn't ceased completely. The perineum area actually still seems to be the most red and raw when everything else is ok. Discharge has lessened again some, but that is for now... may be back. I have yet to pinpoint the cycle and/or see if it is around my period. I am sticking with this for now so I can be somewhat functional at least. Going to the specialist next week (finally) and going to ask all these questions and see if this CV treatment is really working or it's just a coincidence. I REALLY hope I get some better answers this time. And if not answers, drugs! I have been talking with a lot of women who have similar experiences and been diagnosed with vulvodynia. If that's what it is, anti-depressants may help with both the symptoms and the mental drain all of this puts on a person.
    Mamacitas, I hope that you are still doing a little better each day. I think having had these issues for so long, it certainly will take some time to balance out. I just hope that that day will be sooner than later for us all.

     
    Old 04-29-2011, 08:25 PM   #44
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    I read in one of the studies about LBosis and CV that said to discontinue use of tampons as they can exacerbate the situation. Basically they advocated letting everything flow so as to cleanse the vagina.

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    Old 04-29-2011, 08:36 PM   #45
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    Re: Yeast, Lactobacillosis or Cytolytic Vaginosis???

    @mamacitas - I have had the same partner for over 7 years now and a sex life with CV is a real challenge. Especially before I knew what to do about it. Even now, when I do everything possible to keep the acidity in check its a constant worry. I have had to have MANY uncomfortable conversations with my partner about how his poor penis feels after being exposed to lemon juice/battery acid vagina - not good.

    Omigosh! This explains so much too. I hadn't even thought about this before... But my partner also complains about his penis feeling "raw" afterward - but he attributed it to dryness. I always thought that didn't make much sense, because, well, it sure felt wet enough to me!

    This makes me wonder how long this too-acid environment can go on before it really starts to present symptoms (discharge, burning, etc). He complained about that some time before my vagina started b*tching at me 3 months ago. :P

     
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