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  • Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

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    Old 03-10-2011, 06:29 PM   #61
    SweetPea143
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Yeah, I agree. And those meds she put me on for it made me feel awful. Thank you and same to you! I will keep you all updated. Best wishes.

     
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    Old 03-16-2011, 07:55 AM   #62
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Hiya ladies well here is my update.

    I went to have that colopscopy and it turns out they decided on the spot to burn away my erosion (techincal name : diathermy, I think) and also do a biopsy too. I'm not going to lie, it was awful and I was very shaken up and tearful during and after. I'd never even had a smear before because I am 20 so it was kind of everything in one go. I have 6 weeks of aftercare, no baths, no tampons etc. I'm really hoping that is is the answer for me. I hope nothing bad shows up on the biopsy... I just hope the rid of the erosion alone is going to help. They were starting to think perhaps the excess discharge from that is was what is irritating me. It may not be though. If this is my answer, perhaps looking at the cervix is something any of you could consider.

    Last edited by Grizabella; 03-16-2011 at 07:56 AM.

     
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    Old 03-16-2011, 08:45 PM   #63
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Grizz- I hope you are doing ok after your procedures today. Sounds like a lot to deal with in one visit to the doctor. I hope that everything turns out ok with the colposcopy and biopsy, I am sure they will! I am also thinking positive for you that things with your cervix may help with your discharge. It seems like anything could possibly be causing this, so with any luck, maybe you found what will help you. Again, wishing you the best. Feel better!!!

     
    Old 03-31-2011, 08:28 AM   #64
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Hey ladies. Wanted to give you my latest update and see how you were doing.... Sweetpea, how were all the appointments at the gynos? Get any new ideas? Grizz, hope you are feeling better and things are starting to improve after your procedure.

    Yesterday I had an appointment with a specialist at the Cleveland Clinic. This was the first time I felt like someone was actually listening to me and seeing my issues as real problems. The nurse was great, very comforting and said that the majority of the patients they see have the same sort of problems, so not to feel so alone. She took a very thorough history and was patient as I went through my whole saga of doctors and meds. The doctor was just as wonderful. Again she was patient and tried to understand my story. I left feeling good, but still hoping that I had covered all my bases and that she knew exactly how much I was suffering. I have been so exhausted by all this, sometimes I can't even think straight! But she seemed to get what I was going through and started me on some meds. I have tried just about everything else, so I didn't mind a prescription that was going to attempt to try a different angle. As usual, she didn't see anything under the scope and didn't do any cultures since I "had a million" as she said. She also did the q-tip test for vulvodynia, but that did not seem to affect me. It is the burning/stinging/discharge still. To stop the burning, she gave me lidocaine jelly and Gabapentin. She said she wanted to address that first before the discharge. Only thing that makes me worry/wonder about that is the discharge seems to make the irritation worse. But she is the expert, so I am hoping this provides some relief...

    Please let me know what's going in with you ladies. I like the updates and knowing how everyone is doing.

     
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    Old 04-02-2011, 11:32 AM   #65
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Hi Answersplz, glad you are getting some things to try! Lidocaine jelly and Gabapentin is something I may need to look into!

    My update is this: As I said before I had abnormal cells removed from my cervix and I assume you all know that it is caused by the HPV virus. I'm upset that I have the virus but apparently 80% of us will pick it up at some point but will probably show no symptoms, no method of birth control can stop us catching it, sometimes you can pick it up without sex (it has been seen in children) however our immune systems do eventually chuck it out. It looks as though my body just isn't getting rid of it quick enough. I went back to the gyno two weeks after my operation and she was shocked to hear that my initial problem has not gone, and she put me on strong antibiotics incase I have some bacterial problem that doesn't show on tests (I've not tried oral antibiotics before so was pleased, and was hoping so bad that it worked, but like the yeast medicine, it just made it worse...). So I'm desperately running out of options.

    Anyway after doing some research into HPV I didn't realise that genital warts are a direct symptom but most of us won't show any. All the doctors who have looked at me says everything looks fine, I do not have warts and have never had one, however, I guess it kind of feels like I do but without seeing any, does that sound weird? I was saying before I thought it was a skin problem and now I'm starting to think that the virus is manifesting under my skin rather than on top of my skin. My internet research has told me that you CAN get warts that you can't see with the naked eye. I have no lumps or bumps, just sore itchy points! And sometimes the veins appear raised when I have a bad flare up. All this wart buisness is making me feel horrible to be honest. This could also explain why I get irritation in the rectal area too. I am going to the doctor next week to put that to them and see if I can get treated in the same way warts are treated (they use anti-viral creams I think) to see if my skin responds to it. I think they use some sort of special vinegar to show up any warts on the skin, they did this on my cervix.

    Also, when your body is coping with HPV, you can get an increase in white discharge and it's basically just extra white blood cells. This probably explains my discharge that tests negative for just about everything ( they can't pick up HPV in discharge swabs, they only found out because they looked at my cervix. Sorry if I sound patronizing and you know all this, it's just I didn't have a clue about HPV until recently!!).

    I am now pretty convinced that all my problems have some relation to the HPV virus, it'd be too much of a coincidence for it not to be. Sadly, unless it is an invisible wart problem that can be treated, there's not a lot else that can be done about it but the body is SUPPOSED to dispose of this virus within two years and lay dormant in the body after that, so I guess that's a bit of hope... even though I don't fancy having this for a further 16 months... I will have to work out an immune system boosting eating plan/herbal/vitamin plan to help me get rid of it as quickly as possible.

    I will let you know how I get on next week, but I'd just like to throw HPV out there because with all the research I've done on my problem since August, HPV has hardly been mentioned and it certainly never crossed my mind, it's never mentioned in the possible causes list of vulvodynia either. However now when I'm looking up HPV I am seeing some of the symptoms that I have been having and what some of you are having (burning/itchiness/increased discharge/normal swab results) It's at least something my fellow sufferers can explore when you feel there is nothing left to explore.

    Last edited by Grizabella; 04-03-2011 at 02:39 PM.

     
    Old 04-02-2011, 03:03 PM   #66
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Hi a friend of mine had vulvodynia but now I cannot contact her to tell her that I read that oxalic acid may be a trouble maker for vulvodynia sufferers.

     
    Old 04-04-2011, 12:44 AM   #67
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Hey Ladies!

    Just wanted to update you on my status and I have pretty good news! I went back to Dr. Stewart for another appt. but this time I was seen by a NP who specializes in complicated vaginitis. She was great! So sweet, comforting and smart. After testing me, as usual I was negative for everything but she did notice the strange "yellowish" discharge I was talking about and she said that I look very red and inflammed. She said that she wanted to put me on a steroid ointment and if it doesn't help the next step may be to do a biopsy which I am so terrified of doing.

    I've been using the ointment for around 2 weeks now, and I feel some relief!! Every time I out it on, it feels so soothing. I am not symptom free but my itching and burning went down a whole lot. I am trying not to get too excited because there were times in the past where I felt relief but then did not reach a cure. BUT I am being very optimistic and I feel great! I plan to continue to use this steroid ointment in hopes that this is the answer. It looks way better down there, not as inflamed and I don't see any strange discharge which are good signs of course.

    I am thinking now that this is probably a skin disorder. I've been doing some more research and it is possible that I may have some sort of skin disorder like Lichen Planus, Lichen Schlerosus, Desquamative inflammatory vaginitis or something as simple as Vaginal Eczema (which I read is pretty common but often over looked).

    Lichen Planus really stood out to me because I read that it can attack different parts of the body including the mouth. In the mouth it can take the form of painful ulcers and I remember I kept getting ulcers randomly in my mouth for a while back in 2008 (a year before this nightmare started). I never knew the cause and they just randomly stopped coming. I was thinking, what if I had Lichen Planus and it first was in my mouth and now in my genital area. I have no idea, just a thought. Nonetheless, I am excited to be feeling a little better with this ointment and I am praying that I am moving closer to a cure. Best wishes ladies.

     
    Old 04-04-2011, 12:46 AM   #68
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    For a while I did not want to believe that this may be a skin condition but you never know. If we keep testing negative, perhaps we should consider skin conditions as possibilities. Ive learned that there are a lot of skin conditions that are not visible but can cause extreme discomfort especially itching and burning....

     
    Old 04-04-2011, 12:49 AM   #69
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Also, I read that Vaginal Eczema can either be genetic or can be caused by an allergic reaction such as from a soap, douche, detergent etc. I found this interesting, because my condition began right after I left a tampon in for a while and used a new scented soap afterwards. After this, all hell broke loose.

     
    Old 04-04-2011, 06:44 AM   #70
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Hi Grizabella I suppose a culture or the way a culture is done has the potential to miss low levels of toxic shock syndrome from a tampon or other problems since Candida is also missed by culture.

     
    Old 04-04-2011, 07:13 AM   #71
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Sweatpea-
    Very glad to hear that you are getting some relief! That is great news. It would be wonderful if after everything you've been through you can finally get an idea if what you had, and especially something that seems like it is manageable. If the cream is working both to sooth your skin and the discharge has lessened, then perhaps it is a skin condition. What steroid are you taking, clobestol? Did the doctor say there was any limit to how long you should be using it as well since it is a steroid?

    I had been prescribed a steroid/anti-fungal at one point and it seemed to make it worse so I had to stop using it. Made my skin even more red and inflamed. So I am not sure a skin condition is my problem or if i just had a bad reaction to the steroid cream. I have heard on other forums that women have had good luck with it though and if it seems to be working for you, then that's great!

    Thanks for giving us your update. Hopefully your next one will be as positive. We need to keep the good posts coming

     
    Old 04-04-2011, 07:27 AM   #72
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Grizz-
    Seems like we have all branched off from our original ideas and now are all on completely different paths to hopefully recovering. The HPV theory is definitely another thing for us all to think about though. Were you first diagnosed with the virus through a pap? I would be curious as to what the doctors would say about your idea of having the warts under your skin and that being the cause of your discomfort and also HPV being the cause of your discharge. Sounds feasible.

    So, if it is HPV that is plaguing you, you just have to wait for your body to get rid of it right? As far as I understood about the virus, it is fairly common and most people will encounter it at some point in their life. I know I had an abnormal pap once a few years back and it was or could be HPV... I don't even know for sure what they told me because it was such a non-issue with my gyno. She made it seem like it was not anything to worry about at all. I was just told to come back for more tests every three months for a year or so to make sure it was gone and it was. All my paps since have been normal so it was never brought up again. I am curious if the pap can miss it and maybe it's still something I should be worrying about still?! May be something I have to bring up again with the specialist if I have to go back...

    Thanks for sharing Grizz. Let us know what the doc says this week...

     
    Old 04-06-2011, 12:07 AM   #73
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    Wink Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Hey!!!!!
    I read your problem,This is really irritate you ,I want to know that how can you say that you have no infection problem.You have to consult to a good gynecologist, and do a ultrasound of your uterus.I am sure that you will really got a solution of your problem and one more thing take some precaution like don't eat spicy food..............

     
    Old 04-06-2011, 10:05 AM   #74
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    Hi Griz I agree with Nurpur12 spices can also cause a burning pain in ovaries especially at menses and if the vaginal area has a few broken blood vessels from slight trauma originating from relations or other difficulties I suppose it possible for tissues to feel like they burn more by virtue of the fact that these spices are hot.

     
    Old 04-07-2011, 01:42 AM   #75
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    Re: Burning vagina, NO infection, NO yeast but lots of discharge, please help!!

    You are both right - it did get a bit worse yesterday after eating a hot thai curry! I do notice it gets worse when I eat spicy food.

    I am feeling pretty rubbish at the moment. I went back to my GP and put forward my virus under the skin thing and she said they can only treat what they can see and that my irritation is probably just the discharge, and that the discharge should have stopped because of my operation and if it doesn't stop they will have to re-do it! Um...!

    She told me to put Sudocrem on as a barrier. So I slapped that all on, and guess what, I've never felt so sore and irritated ever! I couldn't even walk very far! And when I took it off, the bottom half of my vulva is now red raw sore and even a bit swollen. Thanks doc!

    Really really running out of options. I just want some relief. I bought some Apple Cider Vinegar with Mother in it but I'm too scared to use it - will it help?

    I am back to the gyno in about 2 weeks time but to be honest I don't think she can help me any further.

     
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