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    Old 12-19-2013, 09:15 AM   #1
    spacecadet236
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    Question ca125 for ovarian cysts?????

    I went in for a routine pelvic ultrasound and my doctor called the next day to say she wanted me to have blood work for cysts she discovered on my ovaries. When I went to have the blood work it said CA125 on the paperwork. She was very vague about why she wanted me to have this done and I read that most cysts are benign so why would she want me to have blood work done? Do you think she sees something and is not telling me? I have to wait 2 weeks for the test results and I'm going crazy...I have 2 small boys and I don't want to die. I am only 34 with absolutely NO history at all of ovarian or breast cancer in my family. I mean NO ONE. I am also a very healthy eater and a healthy weight. I also have no symptoms of anything wrong such as pain or anything at all. Is this just a routine test when someone is diagnosed with ovarian cysts???

     
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    Old 12-19-2013, 10:00 AM   #2
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    Re: ca125 for ovarian cysts?????

    Hi, I believe your doctor is giving you the c125 test is a matter of routine and not for a confirmation of a diagnosis as the test itself is a poor instrument for diagnosis as only 3% of af women with an elevated c125 test actually have cancer. As a man I routinely get a PSA test (protein specific antigen) for prostate cancer screening and I do not freak out because it is routine and not as a confirmation of a doctors suspicion. So relax as you are correct as most cysts are benign. The c125 test as I said before is a matter of routine but its' best use is with women who have the cancer already undergoing treatment to gauge their progress. Take care....

     
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    Old 12-19-2013, 10:15 AM   #3
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    Re: ca125 for ovarian cysts?????

    Hey there...I see that this is your first post, but you've been a member since 2007? Wow=)

    First of all...breathe deeply, sweetie. Calm down because it's going to be okay. I have a CA125 on a yearly basis because I have a history of SEVERE endometriosis. Your doctor is most likely taking the test as a precautionary measure to determine the cause of the cysts. She SHOULD HAVE explained the tests to you and reassured you. However, in today's world of medical "care", the "care" is sorely lacking. I truly feel your anxiety, especially as you wait for results. The stress is sickening.

    Try to distract (immerse yourself in Christmas to-do lists) I know you're frightened by the unknown, but it's going to be okay. Cysts are common and most often benign.

    I've spent the past 3 months seeing specialists and having "scary" tests done. I waited and waited, as my doctor "oops" let it fall through the cracks, saying "sorry". The good news is that I'm going to live (although in constant pain 20 yrs. post hysterectomy for stage 4 endometriosis, massive bone loss, and joints that are disappearing as I type).

    I can say first hand that no matter what your results are, you will look back and wish you hadn't let the worry ruin your holidays with your kids=) It's gonna be okay...

    Last edited by WhistleDixie; 12-19-2013 at 10:18 AM.

     
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    Old 12-19-2013, 03:09 PM   #4
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    Re: ca125 for ovarian cysts?????

    Thank you so much for your wonderful reply!

     
    Old 12-19-2013, 08:12 PM   #5
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    Re: ca125 for ovarian cysts?????

    Sorry you are dealing with this especially during the holidays. As the others said, most ovarian cysts (even suspicious looking ones) are benign. And the CA125 test is not accurate in diagnosing OC. It's more useful in gauging OC treatment effectiveness. In fact, it seems I read recently that in most cases, it's a waste of money to even do the test.

    I had a 9cm suspicious looking cyst and was over-treated by a gyn I had respected for many years. Even though the cyst was proven benign while I was under anesthesia, my gynecologist removed all my sex organs anyway. I have been suffering the adverse effects ever since. I wish I had known just a smidgen of what I have since learned about the gross overuse of female organ removal. I would have done things very differently. Just listening to my intuition would have probably saved me from losing my healthy organs.

    Please try not to let worry spoil your holiday. Let us know when you get more info.

     
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    Old 12-22-2013, 04:21 AM   #6
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    Re: ca125 for ovarian cysts?????

    Been there. Done that (well in the process of doing it!). I went to the doctor thinking I was describing a gluten intolerance and she did this test on me a see ll without telling me! It cam back raised which panicked me no end! I have had an ultrasound and it turns out I have three large cysts on my ovaries which is enough to raise this reading. I see another doctor tomorrow to discuss what to do, if anything, with them. The main thing is they appear to be benign.

    Hope everything works out for you.

     
    Old 12-22-2013, 12:15 PM   #7
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    Re: ca125 for ovarian cysts?????

    rayon...Do you have any history of endometriosis?

     
    Old 12-22-2013, 02:12 PM   #8
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    Re: ca125 for ovarian cysts?????

    I have often wondered if I have it but when I asked at the ultrasound if I did the doctor said no. I saw three large clear cysts and that was it.

     
    Old 12-22-2013, 02:32 PM   #9
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    Re: ca125 for ovarian cysts?????

    Not to project, but MOST doctors don't identify the disease until it's affected other organs. It can only be definitively diagnosed through laproscopy. Unfortunately, GYNs often scoff at the symptoms and blame "heavy periods". They don't investigate the type of cysts or the possibility of endometriosis until the pain and symptoms progress.

    Forgive me, but I am ever-vigilant 33 years post LAVH, LASO for stage 4. I hope you get better results=)

     
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