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Posted by Ruth P. on June 26, 2000 at 22:37:03:

In Reply to: Just a little update and a lot of venting. posted by Maggie C. on June 25, 2000 at 02:52:58:

: I have posted to this board before about my mother who was dx with SCLC on April 5, 2000 and opted for no treatment. Mom has been having to take more and more pain meds in the last couple of weeks. She sleeps most of the time and gets sick and vomits every day. I just wish she didn't have to go through this. One of the reasons she opted not to take treatments was because she didn't want to spend her remaining days being sick. Mom is 74 years old and said she has lived a full life and is not afraid to die. But why, if she chose not to have the chemo because she didn't want to have the sickness, is she so sick anyway? It is so hard to watch her dying this way. Her quaility of life is non exsistant. She is on pain patches, taking Oxycontin every twelve hours, and has to take the breakthrough pain meds several times a day. The Hospice nurse says she will talk to the doctor and he will probalby up her patch to two at a time and still have her on the Oxycontin every tweleve hours. Isn't this a lot of pain meds? It took us nearly 3 weeks of practically begging the Hospice to get her something for the vomitting. Oh they had gotten her some pills for it, but they didn't work, so they told me to give them to her rectally. Well that didn't work either. Finally I told her nurse something had to be done before she dehydrates. So finally they got her something else. Some times I get real discouraged with the way Hospice is handling mom's case. They claim to have full family support, but where is it? Just call they say, but when do I have time for that? I guess I am just worn out and needing to gripe. I get little or no help from my sisters either. They just don't seem to have any more time to help than Hospice does. The only good thing about Hospice that I can see is they pay for all this high priced medicine that doesn't work. Forgive my venting, I just needed to let off a little steam. Maggie

Hi Maggie,
I have been thinking of your mom and you. Good to hear from you and read your post.Maggie you can get morphine meds in a pill form, and yes your mom needs a brain scan or MRI.Also Maggie there are good meds out there for vomiting and nausea.Maggie when or if the cancer spreads to the brain, there are so many unexpected things that can happen to your mom.You need someone with you at all times. You do not need to be alone, I know what can happen Maggie, because my sister also died of lung cancer and the first place it goes to is the brain.Hospice was not called in for my sister until a few days before she died. Your mom needs an IV drip to keep her from getting dehydrated.Call your moms Dr. and tell him/her just what you think your mom needs, demand it, thats the only way they will listen. Maggie my heart goes out to you and your mom. I've been there. My prayers are with you and your family.>>> Ruth

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