It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Message Board

Re: Caregiving of a spouse

Re: Caregiving of a spouse

[ Back to Messages ]


Posted by Cindy on July 26, 2000 at 00:43:31:

In Reply to: Re: Caregiving of a spouse posted by Betty on June 30, 2000 at 14:34:30:

: : : I am a caregiver for my husband, he is now incompetant and physically disabled due to a brain tumor removal. I am looking for anyone who is taking care of a wife or husband 24 hours a day. I have found sites and support groups for the caregiver of a child or parent, sites for the disabled person but none for me. Please if there is anyone in my situation and need to share contact me. Everyone can feel sorry and feel bad for you but no one truly understands.

: : I am also a wife, who is a caregiver and i
: : truly understand your situation, but my husband
: : does great some days, and others, he sleeps a lot,
: : and he has tongue cancer, with a feeding tube,
: : so it is stressful, with 3 times a day, i give
: : him Ensure (2 cans) at a time, and it seems
: : i can't keep up with him, and i have an ll year
: : old little girl, and have to take her places,
: : and we try to eat out a lot, because i hate
: : to have food around him, he had the tubing put
: : in Feb. diagnosed in Jan, and this is really
: : stressful, i know how you feel, write to me
: : anytime if you like, we at least can talk about
: : our life, and i read a lot of books, just to
: : help my attitude. Glad to meet you,
: : God Bless you,
: : Joni
: : SidingCom
: I, too, take care of my husband 24/7 without any help. My children are in different states. My husband has PD and dementia. We have two monsters to contend with. The dementia seems to be progressing faster than the PD. He is still ambulatory, but is very slow. He has been diagnosed for approx.7 years, but went 2 years to neuroligists trying to find out just what was wrong. Would be happy to keep in touch with you ladies. Blessings, Betty D.

I don't know if this is where I post,but I am going to try it.
My mother also has PD and dementia. I don't know what would be best to say when I am talking with her. She does remember me. She is hard to understand most of the time, but I can catch some words and she does understand me. Hallucinations and anxiety and much misperception of thins around her. Today she said they were moving her and asked me to "come and get her".
She is in a care center and I am an hour away.
If this gets to you I hope you can help. Or e-mail me. I will check back here tho to see if there is any response. Thanks in advance. Cindy

Follow Ups

All times are GMT -7. The time now is 06:31 PM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!