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Posted by Robin on December 27, 1999 at 21:41:23:

In Reply to: puberty&muscle spasms posted by Lynn on October 27, 1999 at 13:59:17:

: I have an 11 year old daughter with spastic diplegia and am having two new problems that I am unsure how to help her with. The first is muscle spasms in her legs. Her doc says that these are not due to her CP and is ordering aseries of tests to try to find the cause. He has put her on Zalatan. Does any one
: else have any experience with the spasms or the medicine? The next problem is puberty!!! I am prepared for the emotional rollercoaster but she has started feeling really sad for herself. Shes told her sister that it is her fault that she cant walk, she is just nasty& negative. My mother calls it a big ole pity party,
: tho I dont like the words it is a fairly accurate description. I dont know how much of this new attitude is due to puberty or should I have been expecting this all along? How do I help her understand that the blame and pity arent going to help her?I am afraid that if it continues she'll turn bitter& resentful. I guess Im
: not sure if this is "normal" or not!! Any ideas, suggestions, or help would be wonderful before the sisters kill each other or I go nuts!! Thanks

Hi, I'm new to this board and this is why I'm responding so late. To your first concern I know this child who has cerebral palsy, that was going through puberty and his spasticity seemed to get worse as he was going through it. Before he went through it he was very flexible and floppy, now he is more ridgit and spastic. His doctor feels this is because his brain can't comprehand what is happening so this is what is happening. The second part with your daughters moodiness and feeling sorry for herself. I have cp myself and I'm also wheelchair bound. I'm 39 years old now and when I was about your daughter's age I had the same exact feelings I wondered why me, and why can't I do what the other nondisabled kids do? After I got older I learned that people accepted me the way I am and that I should concentrate on the things that I can do and not the things that I can't do. I feel as though your daughter will find this out in her own way and time. I hope I didn't ramble on to long and I hope I was some help to you and your daughter. Good luck! Robin

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