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Posted by Robyn on April 08, 2000 at 00:17:45:

In Reply to: Re: Spastic Diplegia posted by Cheryl on February 21, 2000 at 18:46:51:

: : I am the mother of a two year old girl who has been diagnosed with spastis diplegia. Although we have given her a lot of physio and exercises her leg muscles still remain very tense.
: : This therefore causes her legs to scissor when she stands and also her hips to move outwards. We have been told by orthopaedic surgeons that if her abductor muscles are not released they will eventually pop her hips out. This would mean major problems later in life.
: : We are wanting to know whether anybody out there has had a child with similar problems and can tell us of their experiences.
: : We are unsure whether surgery is the best option or should we be looking at other alternatives first.

: Hi Carolyn:
: Please read my posting of Feb. 18, Hyperbaric Oxygen Therapy. My daughter also has spastic diplegia. I personally think that surgery is the last resort. We tried the Hyperbaric treatments and had results. There are also things like botox. I just feel that the surgery creates scar tissue.
: Hope this has been of some help to you. Take care.
: Cheryl

Hi Carolyn,

My daughter is 4 years old and has spastic diplegia. When she was two years old she had the abductor release on one leg. A year later she started walking without assistance. The incision is small. It's about 3/4 of an inch long and is inside the panty line by the groin area. The hard part is the Spika Cast. After the operation in order to stretch the tendons,a spika cast (A leg cast from thigh to foot on each leg with a broomstick piece in the middle to keep the legs stretched) must be placed on the child for six weeks. My daughter was surprisingly good about it. I did lots of creative things to keep her hands and mind busy.

Currently she swims and does therapeutic horse back riding, which has really helped. Her gait is not perfect, but she is happy and very mobile.

My cousin's son had the botox injections (he is 4 and also has spastic diplegia). Botox did help loosen him up but it did not last long.

Feel free to ask me questions.


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