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Posted by gidget on August 12, 2000 at 01:04:26:

In Reply to: cerabal palsey posted by susan folse on June 26, 2000 at 23:22:40:

: my granddaughter was a premeie, she has seen doctors and was said to have a muscle problem but not given a label, she is 1 year old and you can tell her mucsles
: is not like it chould be. she choaks very easily sits up for a while by herself very stiff legs was born feet first 5 weeks premmie. when she was born she was coming out feet first so had a section. her little mind is there but the muscles aren't. should we ask the doctor to give us a label. they said she could catch up when she makes 2. she also has upper respitory problem when she gets sick she has trouble coughing up. does not put things to her mouth. i had 3 children myself and i know she is not doeing nearly what she suppose to. we bring her to theropy which h helped. her legs are very stiff. but has loseing up since we work with her. she has seen a neroligist and a nerosurgen. has been in the hospital 3 times this year, also at 1 year old a total of 6 visits. hi i have a three year old grandson who they would not label till last year he has cerable palsey also he chokes very easy and he does not sit up yet are crawel are walk yet. but we finally insited that they tell us what is wrong he was also a premie 3 months earley only 3lbs at brith he as a shunt in his head and a fessing tube witch they just put in last year he also as a lot of spastisty in his legs he is in the hospital all the time he wakes up all night long still and can hold a cup yet we do it all but they it is mild he goes in for botox this month for shots in the muscels to help in sit and crawel they need to be honest with you about it it is more enlikley mild cp she does a lot of what nicholas does and nick as a bite refelex he bites his fingers to the bone if we dont watch him god bless your butifull grandbabie they are a gift from god i know mine is the most loving little guy you have ever seen if you need to talk just email me ill right you back and help as much as i can hon signed a concerned grandma ginnie. my email is [email protected]

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