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Posted by Kristin Buckingham on August 08, 2000 at 22:48:59:

In Reply to: sever gastroparesis [non-diebetic] posted by BB on January 14, 2000 at 00:37:57:

: I would like to here from anyone who has this disorder. I have dropped 35 pounds in the last 4-5months.I only weigh 108 and am 5'6" female.I have a variety of other problems such as migraines,joint pains,allergies,severe constipation,fatigue, weakness in lower extremeties,severe pain in left flank mostly after eating or drinking,severe nausea,
: leg muscle pain,left shoulder pain.I have had alot of test and no real diagnosis other than gastroparesis.My drug list consist of zofran,premarin,claritin,lortab elixer,imitrex,and I am alergic to the traditional drugs used for this disorder [reglan and propulsid] Eurythromiacin doesn't help either.I also have freguent upper respiratory infections and urinary tract infections.Looking for any info.Thanks
My name is Kristin and I was diagnosed with Gastroparesis two years ago at the age of 25. My first doctor didn't believe me and I went undiagnosed for almost six months. Since that time I have tried every drug available. I strongly urge agaisnt giving the children I have read about on this site the drug Reglan. The feeling it gave me was horrible. I actually felt crazy, like I was not in control. I have a very severe case of this illness and I am happy to say I have gained some control but it is not easy. You must change your diet. There is a Gastroparesis diet on the site Jackson gastroenterology. Follow it starting at stage one to gain control and work up. You have to be very dedicated to the diet. The slightest devience will case an episode. The second step is to take a trip to Canada and get the drug Domperidone. I was lucky enough to get in a study here but that is no longer an option as it has not been appoved by the FDA. I am now able to live a semi-normal life. This disorder can be very difficult I have gone through denial deppression, a sort of anorexia(which is enevitable when you CAN'T eat) and it has changed my life. But I will get better and they will figure something out. I'm still looking for a better answer. People and these kinds of website postings will help! Kristin

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