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Posted by KayGigi on March 25, 2000 at 08:56:23:

In Reply to: ds baby to arive posted by Norma on March 22, 2000 at 10:44:22:

: I have a daughter-in-law that is going to have a Downs Syndrom baby. I would like to know what to expect. What will we need to do special for this little one.
: I know that all the love in the world won't be all that he needs, but I know nothing at all about the problems that he will have. She is now about 24 weeks along. Please I need help in finding out where to get information on this subject so We can all be prepared for Jessie's birth. He is already filling our harts now we are ready for him to fill our arms.
: Thank you for your help
: Norma
: (please e-mail me )

Norma, my sixth child was born with DS and we didn't know until she came. My husband and I were thinking with #6 we would have it made with all our previous experience. Then here was our little one with a whole new set of rules. We were reeling. I was devastated--feeling totally inadequate to deal with the possibilities. Then after we brought her home we noticed that our other 5 children treated her just like they had each other child as he/she had been brought into the family. As my husband and I watched them talk to her in her infant seat and kiss her and play around her, we decided to lose the uncertainty we were feeling. We took our cue from them and decided to treat her like we had treated each other child. As my husband said, if we don't expect her to do everything the others did, then we limit her before she gets a chance to try. If I could have looked into the future and seen her today all those years ago, I wouldn't have worried for one second. She has added a dimension to our family that is impossible to place a value on. Unfortunately, even though our children with DS have that condition in common, it's impossible for anyone to predict their individual futures--or what challenges they can present. There is plenty of technical information these days on where to get things for our children with DS so I'm just offering moral support. When our daughter was born, every professional we consulted said it was good we had a large family since that would provide our daughter with constant stimulation which seems to be good for their future development. I've run too long, but feel free to Email me. I would love to provide encouragement for anyone who feels overwhelmed with the knowledge they will have a child with DS in the family. It's really quite a wonderful gift.

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