Discussions that mention arimidex

Reflex Sympathetic Dystrophy (RSD) (CRPS) board


Hi All,
It has been a bizaare two days. I had an appointment at the oncologist yesterday for my 3 month check. She had wanted to put me on something called arimidex which is supposed to
block estrogen dependent tumors from recurring-- One problem it has this little side effect of increasing joint aches and pains and bone pain and perhaps contribute to osteoporosis and fractures-about a 35to 40 % chance. I wanted to go on a newer drug without 5 years of trials called femara, but she had been refusing to give it to me all along. not enough published longterm studies. Still a chance of bone pain but lower. I wound up crying in her office that I couldnt take any more pain, but I didn't want to be without any coverage-- At this point she asks me -am I refusing the arimedex treatment--were these the magic words- Is this what she wanted me to say? Well I did and suddenly the Femara became available--- :bouncing
Why do we have to beg?
Now today , I had my first ganglion block. The block itself went very smoothly, but the versed anesthesia or should I say anesthesiologist was having a bad day to say the least.
man had to have stuck me ten times . the surgeon was ready for me and still couldn't get it in. And then he hit something in my wrist and got muttered oh no. You should see the wrist tonight. black and blue does not do it justice. So he says he's giving me and himself a 20 minute break. Mind you this is in an arm that is not supposed to have bloodwork (my good arm) because it can cause lymphadema. He comes back and starts on both my feet. No luck. Now we are getting me a bit nervous and my sister is asking politely is there anyone who specializes in tough veins. He says its him.
Next i am almost upside down and he is going for my exterior
jugular --oh joy-- but eureeka --he finally has it !- and the rest of it is duck soup . Now I have another one of these things in 2 weeks.....Do I tell them to go right for the exterior jugular or give him a few tries? Of the procedure all I remember is someone putting a paper cloth over my face and telling me not to talk. That was fine with me. Did'nt want to know what was going on. My hand got very warm and my eye burned and nose stuffed up. Thumb and pad below thumb are numb tonight but I think the nail is a tiny bit more touchable.
How do you know if this is working? And does the relief come right away or does it take a few days if its going to work at all? Also, how many sympathetic ganglion blocks on the average do people get ?

Linda- Did you get your third block yesterday? How did it go ? Are you getting longer relief with each block?

Pam- How did your block go? Was it today?
I hope all of us get relief soon.
:wave:
Sure glad its Friday tomorow.
Hugs, Susie L
Quote from saluki:
Hi All,
It has been a bizaare two days. I had an appointment at the oncologist yesterday for my 3 month check. She had wanted to put me on something called arimidex which is supposed to
block estrogen dependent tumors from recurring-- One problem it has this little side effect of increasing joint aches and pains and bone pain and perhaps contribute to osteoporosis and fractures-about a 35to 40 % chance. I wanted to go on a newer drug without 5 years of trials called femara, but she had been refusing to give it to me all along. not enough published longterm studies. Still a chance of bone pain but lower. I wound up crying in her office that I couldnt take any more pain, but I didn't want to be without any coverage-- At this point she asks me -am I refusing the arimedex treatment--were these the magic words- Is this what she wanted me to say? Well I did and suddenly the Femara became available--- :bouncing
Why do we have to beg?
Now today , I had my first ganglion block. The block itself went very smoothly, but the versed anesthesia or should I say anesthesiologist was having a bad day to say the least.
man had to have stuck me ten times . the surgeon was ready for me and still couldn't get it in. And then he hit something in my wrist and got muttered oh no. You should see the wrist tonight. black and blue does not do it justice. So he says he's giving me and himself a 20 minute break. Mind you this is in an arm that is not supposed to have bloodwork (my good arm) because it can cause lymphadema. He comes back and starts on both my feet. No luck. Now we are getting me a bit nervous and my sister is asking politely is there anyone who specializes in tough veins. He says its him.
Next i am almost upside down and he is going for my exterior
jugular --oh joy-- but eureeka --he finally has it !- and the rest of it is duck soup . Now I have another one of these things in 2 weeks.....Do I tell them to go right for the exterior jugular or give him a few tries? Of the procedure all I remember is someone putting a paper cloth over my face and telling me not to talk. That was fine with me. Did'nt want to know what was going on. My hand got very warm and my eye burned and nose stuffed up. Thumb and pad below thumb are numb tonight but I think the nail is a tiny bit more touchable.
How do you know if this is working? And does the relief come right away or does it take a few days if its going to work at all? Also, how many sympathetic ganglion blocks on the average do people get ?

Linda- Did you get your third block yesterday? How did it go ? Are you getting longer relief with each block?

Pam- How did your block go? Was it today?
I hope all of us get relief soon.
:wave:
Sure glad its Friday tomorow.
Hugs, Susie L


Hi Susie
Yes I had my block yesterday too but, after about a min my arm was waming up I could spread my fingers(something that I havn`t been able to do in 6 months) in facted I start to cry because I thought I would never be able to to that again. I was soooo happy.My nose was stuffed up like your. I ask the nurse about it and she didn`t know why. I didn`t feel any needle at all, just pressure on the neck.(they did not cover my face) Today I have a little pain but it`s not that bad.
My doctor told me to get a book and keep track of the pain from 0-10 And bring the book with me for the next visit.I go back Mon for another block.(I`m ready)All I wanted to do yesterday was sleep, and again today.Maybe making up for lost time.
Have a good weekend

Pam