Discussions that mention arimidex

Cancer: Breast board


does anyone have joint pain from arimidex (or from loss of hormones/hysterectomy)? and if so, what do you do for it? Friend has severe body pain especially in her neck after hysterectomy
My sister-in-law said that Arimidex does indeed cause muscle and joint pain and is extremely hard on the bones and joints but that it has fewer side effects than does the other two meds of choice; she was placed on it because it was less likely to cause blood clots. She takes pain pills, hot baths, etc. for the aches and discomfort.
Hope this helps.
hi. i entered this site to see if anyone was experiencing the joint/muscle pain that i have also had. i began taking arimidex in october 2005. my oncologist tells me that for the first six months the pain will progressively get worse. and, it has. my joints hurt if i don't move a lot. i have a hard time getting to sleep then wake up a lot and have to toss, turn, get up & walk to loosten up again. my hands are swollen & claw like in the mornings. i haev to stand up & walk around at least every 10 minutes while at my desk at work. i hate to complain ---and my oncologist says the arimidex salesman says that arimidex doesn't cause pain but my doctor has found that it certainly does. i have always tried to exercise & stay fit. i seem to feel better if i do walk daily. i am taking naproxin (an anti inflamitory) for the pain but i'm not sure that it helps much. i am hopeful someone can lend some helpful information - or at least share symptoms with me. thanks.
Hi Bonnie, I have been on Arimidex since July 2004. I had my ovaries removed 2005. All of my friends on arimidex have severe joint pain and walk like 95 year old ladies. I was on Norco for the pain for the last 2 years. This is a narcotic and i felt i was addicted so i finally got off 2 weeks ago and all the pain is back in my whole body. I had still had some pain while on the norco so my oncoligist had me go off arimidex for 6 weeks to see if my pain would get any better but it did not. My one friend has decided to go off arimidex and take tamoxifen and she feels much better. I'm stage 3 and i feel that i need to take the best anti-cancer drug out there. of course tamoxifen has been around for 20 years and is very successful but i feel arimidex (and it could all be in my head) has better statistic rates. i have tried taking mobic,ultracet,ibuprofen,glucosamine. i am very worried about daily living with all this pain. it is really effecting my attitude and zest for life. i am afraid that after the 5 years on arimidex who knows what permanant damage it may have done. i am going to talk to my oncoligist about tamoxifen, i know the percentages for blood clots, uterine cancer are very low. I am sorry i have no answers,it seems like lots of us survivors are in the same boat with the pain. i am still searching for answers. I will keep you posted. Regards, shelley :angel:
thanks for responding to my e-mail. i had uterus & ovaries taken out last august. no cancer in the uterus as they thought. hooray! it was a year on january 20th since i had the mastectomy. i do think arimidex is proving to be better than tamoxifen. stage 3, huh. i'm sorry. mine was stage 2. i did not have chemotherapy other than zoladex shots. so, i feel i really need to continue with the best pill. but, will i be able to walk after 5 years on arimidex???? it was interesting to hear that you still had the pain after being off of it for 6 weeks. what about your fingernails, have they been peeling and splitting, like mine? how have you been without the norco? was it addictive enough that it was agony to quit taking it? are you going to start again? does your oncologist recognize that the pain is real? mine said that the arimidex salesman says that it does not cause pain. i wondered if it was just me until i found this site. thanks. misery loves company, i guess. i will have to discuss switching back to tamoxifen also - but i know my oncologist strongly feels that arimidex is better... and i don't want more cancer. tough decisions. take care. thanks again for sharing. bon
HI BONNIE, HEY WHY DID YOU NOT HAVE CHEMO? WHAT IS ZOLADEX? IT MUST BE A FORM OF CHEMO SINCE MOST ALL STAGE 2 PEOPLE GET CHEMO THESE DAYS. I HAD MY OVARIES REMOVED BECAUSE ALL OF A SUDDEN I STARTED GETTING PERIODS BACK AFTER CHEMO AND IF YOU HAVE PERIOD ARIMIDEX IS GOOD FOR NOTHING. SO AT 48 I HAD THEM REMOVED. THE NORCO WITHDRAWAL HAS BEEN TORTUE AND I AM ACTUALLY GETTING LOTS OF HELP FROM THESE BOARDS ON ADDICTION. FOR YOUR DOCTOR TO SAY THAT THERE IS NO PAIN WITH ARIMIDEX IS CRAZY. EVERY RESEARCH INFORMATION STATES THE 1ST MAIN SIDE EFFECT IS JOINT PAIN. MY GOAL IS TO GET OFF NARCOTIC AND GO TO PAIN MANAGEMENT DOCTOR AND SEE IF THERE IS SOMETHING ELSE TO HELP ME. YES, AFTER 5 YEARS WILL WE BE CRIPPLED DUE TO THE ARIMIDEX? THAT IS A GOOD QUESTION THAT NO ONE CAN ANSWER. I AM ALL OVER WITH MY RESPONSES TO YOU SORRY! YOU ARE RIGHT, AFTER 6 WEEKS OFF OF ARIMIDEX MY PAIN DID NOT GET ANY BETTER WHICH MIGHT LEAD ME TO BELIEVE THAT THE PAIN IS FROM THE AGRESSIVE TYPE OF CHEMO DRUGS THEY USED ON ME. I HAD TAXOL AND TAXOTERE ALONG CYTOXAN AND ADRIMYIACYM (BAD SPELLING) . IT IS SO WEIRD THAT YOU MENTION THE NAILS. MY WERE CHIPPING AND BREAKING AND SOMEONE MENTIONED THAT HAD TO DO WITH YOUR LIVER. WHO KNOWS. OH MY GOD, I AM SO SELF OBSESSED, I'VE GONE ON FOREVER. STAY IN TOUCH AND BE WELL. SHELLEY :angel:
hi shelley
to set it straight... the drug sales rep for arimidex is the one who says it doesn't cause pain (not my doc). sorry to mislead you. i've been in florida the past couple of weeks to welcome a new grandson. it was nice to be warm but the plane ride was miserable. i need to keep moving so that i don't hurt so much. bedtime is rough, too. do you take anything to help you sleep? i realllllllly missed my bed. air bed at my daughter's house wasn't good! :o
i'm 51 yrs old. are we about the same age?
hope you are doing better with norco withdrawal.
thanks for your helps. it's still good to know that i'm not the only one experiencing these things.
stay well, yourself!
bonnie
Hi everyone, I thought I may as well chime in on the Arimidex question. There is definitely pain. Pain that makes you walk like an OLD,OLD lady. There is also other side effects, such as blood clots, eye problems, painful and swollen hands, not to mention an itchey rash. There's not much information yet on side effects that you can find. I had my breast cancer in late 2001, and a heart attack in Nov. 2004. My oncologist says Arimidex had nothing to do w/ my heart attack.He was upset that I wanted to quit it. So I didn't at the time, however now my eyes are starting to be extremely irritated and dry. My eye pressure went to 33 in each eye and I had to see a specialist. You see, the lacrimal glands use estrogen, and Arimidex negates estrogen. I'm not really sure of the cause of my eye problems and that's why I'm on this board. I wanted to get some input from others about their experience with Arimidex. At the moment I've stopped taking it. I'd appreciate your comments .
hi mishtina
since i last posted to this thread, i have visited my oncologist twice. i have stopped taking arimidex and am back on tamoxifen. the pain began to subside after about 3 days and after two weeks it was almost completely gone. i slept almost straight for a week after i started feeling better. i was very sleep deprived from the pain. but, every person with breast cancer needs their own individual plan. a good oncologist will know how to direct you. the added benefits of arimidex were not sufficient for me to continue - considering the pain i was having. i am happy to report that the tamoxifen side effects are not too bad. some memory loss and a little joint pain but NOTHING like the other. i did not have eye problems with arimidex. i hope you get that figured out soon. tamoxifen also negates the estrogen but in a different way. and, there are some brand new meds out that may be even better!
the muscles around my heart hurt while taking arimidex - actually, every muscle & bone hurt. i don't know if arimidex could cause a heart attack but it definitely causes pain & stress to add to the chances. i feel so much better after being off for six weeks that i am actually hiking again and i ran-yes ran across the parking lot yesterday at walmart! not bad for an old lady! it is awesome to be feeling good again. good luck with your treatment plans. let us know how it goes. :wave:
I have been on Arimidex with monthly zolodex shots for 3 years now. I do get bone ache (and thankfully it's just an ache, not that terrible). I was amazed to find that taking a daily calcium with vitamin D tablet works wonders for me. It takes a couple of weeks before I see an improvement, and if I stop taking them I start to feel the ache again after a couple of weeks. This may not help with your severe bone pain but it may be work a try.
4 days ago I stopped taking Arimidex after 1 year of increasing bone pain. Talk about walking like an old lady.....I'm only 49 but walked alot worse than my grandmother did. The pain to my feet, thighs, hands just got to be too much. I'm waiting to see if/when the pain subsides and I pray it does. The comment about it causing eye problems is interesting as I have dryness for which I've had to get prescription drops for. I wasn't aware of Arimidex being the possible cause---thanks for the info.
I had a lumpectomy and I am to start radiation this coming week. My medical oncologist has mentioned that I will be put on arimidex because I had a stroke six years ago and there is less chance of blood clots with arimidex. I already have osteoarthritis and after reading these posts, I am petrified about taking arimidex. Is there anyone out there that did not experience joint pain while taking this med?
hi - just a note that the lack of estrogen (which is blocked by arimidex and tamoxifen) can cause dry eyes. it's all quite a game figuring out what is best for us individually. i have my life back now that i have been off of arimidex for 3 1/2 months. hooray the pain has almost completely subsided! good luck to you.
Quote from bharkins:
I already have osteoarthritis and after reading these posts, I am petrified about taking arimidex. Is there anyone out there that did not experience joint pain while taking this med?

Has your doctor talked with you about the side effects? Be sure to ask alot of questions and most of all have faith in your physicians to do what's best for you and keep a positive outlook for your future. Please don't let what you're reading here scare you into not giving yourself the best chances to prevent reoccurance of cancer.You may very well not have any side effects at all, or they may be just "nagging" aches that you can tolerate well. To be sure, my aches were not crippling or to the point where I couldn't work 40+ hours a week. It just got too uncomfortable on a day to day basis and I was taking Tylenol and Motrin around the clock. If my cancer had been anything other than DCIS, I could just have well continued taking the Arimidex and put up with the side effects. But that's me.....you will know what's right for your body.
Quote from bonniemarie:
hi. i entered this site to see if anyone was experiencing the joint/muscle pain that i have also had. i began taking arimidex in october 2005. my oncologist tells me that for the first six months the pain will progressively get worse. and, it has. my joints hurt if i don't move a lot. i have a hard time getting to sleep then wake up a lot and have to toss, turn, get up & walk to loosten up again. my hands are swollen & claw like in the mornings. i haev to stand up & walk around at least every 10 minutes while at my desk at work. i hate to complain ---and my oncologist says the arimidex salesman says that arimidex doesn't cause pain but my doctor has found that it certainly does. i have always tried to exercise & stay fit. i seem to feel better if i do walk daily. i am taking naproxin (an anti inflamitory) for the pain but i'm not sure that it helps much. i am hopeful someone can lend some helpful information - or at least share symptoms with me. thanks.

I entered this site not really expecting to find much about Arimidex. I was pleasantly surprized.I had breast cancer surgery in late 2001,hormone positive invasive ductal, and followed up with chemo and then radiation in 2002. Started Tamoxifen and for whatever reason, switched to Arimidex. I've had super intense pain in my hips and upper arms to the point of hardly being able to walk. But the real reason why I've stopped my Arimidex is because with out previous problems,I suffered a very serious heart attack in Nov. 2004. Oncologist insisted Arimidex wasn't the culprit. And he was not pleased that I quit it. Made an effort to scare me . I felt torn, and got no help except through the computer! Perhaps someone else has been through something similiar? I might add, though I'm off Arimidex for about 6 weeks; the joint pain remains, though not as bad as previously stated.Thanks for any input anyone has on this subject.
Quote from pa5762:
4 days ago I stopped taking Arimidex after 1 year of increasing bone pain. Talk about walking like an old lady.....I'm only 49 but walked alot worse than my grandmother did. The pain to my feet, thighs, hands just got to be too much. I'm waiting to see if/when the pain subsides and I pray it does. The comment about it causing eye problems is interesting as I have dryness for which I've had to get prescription drops for. I wasn't aware of Arimidex being the possible cause---thanks for the info.

Hi, Yes, that's another thing. My eyes have become so dry and intensely irritatedthat I had to visit my doctor. I'd rubbed so much , my pressure went sky high in both eyes, Scared me to death !Doc tried treating me with meds for glaucoma, but it turned out that wasn't the problem. I use an ointment and drops for dry eyes. My cataracts are very bad. Oncologist said no, Arimidex has nothing to do with it!
Pain in hips when I get out of bed or up from a chair. I walk like a VERY old lady.Upper arms hurt when I'm lying down. I would say arthritis, If I'd ever complained of it before. I've not~~~Good luck in your journey to stay well. Not easy when taking all these wonder drugs. LOL