I've been lucky and only needed surgery for the crohns once. I had a fistula but was so infected they couldn't look to see where it was so they did a temporary colostomy. I had just had a hysterectomy before that so they thought that was what went wrong, at that time they didn't realize I had crohns. I wasn't diagnosed for another 3 years after that. I also get terrible abdominal pains when its acting up. I've been on asacol, imuran and mega doses of steroids to control it. I just had a good colonoscopy a couple of months ago so the GI took me off all my crohns meds!! Its only a matter of time until it comes back with a vengeance. I'm lucky that the scar tissue I have doesn't bother me too much, just a bit of pulling once in awhile. What all crohns meds have you tried? I've now been diagnosed with osteopenia and osteoporosis so its going to be fun to find a med for that that won't upset my GI system!!