Okay here's what happened before I joined boards.
After a very uncomfortable sigmoidoscopy in around 1998 I was diagnosed with distal UC. I was prescribed Asacol and later Rowasa along with it.
Taking meds was VERY sporadic for me and I had even stopped taking the Asacol for about two years without telling my doctor. Consequently, I would have very loose or formless watery stools,small caliber stools with blood, and yes DRIPPING blood. I would find myself having an urgency during the middle of the day sometimes and that was a rough one espicially if I was out shopping or at a gig.
In Late January I saw my doctor and told him about this. He advised going back on the ASACOL and not missing my Rowasa....also he said I should take Iron suppliments for my anemia. I started taking all meds again but then about 7-10 days later things began to get real bad and I went through that monster flare-up where I was going to the bathroom 10 or more times a day....I came back and that's when he wanted me to take Prednisone.
Well...I was afraid of the Prednisone and after going through hell...with the ER visits and losing so much water weight..(and freaking myself out) I decided to change my diet and take ALL my meds religiously.
After about a week...things tamed down. I saw a lot less blood in my toilet (no more dripping bowls of blood) and my stools were starting to form a little.
STILL HAD DISTENDED BELLY. Sometimes it would be harder and more sensitive to the touch and sometimes it would go down a little.
I started getting my strength back and gained my weight back..or most of it.
My appetite for food is normal but now I am frustrated that I can't seem to go any further with my "recovery".
I have NEVER had a colonoscopy ( issues about being drugged and more)...and my doctor feels he's treating me with his hands tied behind his back and in a way I can't blame him.
Right now...I am feeling low because I just visited the bathroom twice in about a half an hour and found that my stools were very very small...semi formed and not very dense. ALSO...I feel that everytyime I go...as of the last two weeks, I can't seem to get enoough gas behind me stools to completely eject them and feel emptied. In other words....It seems as if there is some stool at the very opening or the anus and I have to dig out with baby wipes to clean myself. outside of that..I don't get middle of the day urgencies as a rule now...and I see very little blood. So that has improved.
What is scaring me...is the small caliber stoools...the feeling of not getting it ALL out and the worry that something is partially blocking my stool from exiting my bowel.
So..in my worried head...I think about the "c" word....because what else could it mean?
My doctor FWIW...sincerely believes that there is no cause for worry about cancer but on the other hand I think he's just saying that.
He DID tell my girlfriend on the telephone about a month ago that "If only he would LET me do a colonoscopy I could PROVE to him that he doesn't have cancer"
Well,on WhAT basis can he say that?
I have many symptoms of it..and why is HE saying that to us?
Is he trying to stop me from worrying?
I dunno...I'm all messed up right now.
If ONLY I could have a NORMAL HEALTHY bowel movement that was large and formed and so forth....I would have hope....but as of late I am starting to lose hope.
I made an appointment to go back and report changes to the doctor in late April (he was double booked) and see him for at LEAST one more time.
Maybe I need a doctor who is willing to treat me as a patient and not as a bundle of symptoms.