Discussions that mention asacol

Bowel Disorders board


hello all,

in brief i have been very ill for two years now.


first diagnosed lupus wrong





ok im 30 female london. my symptons have had evyone confused.

i had bad joint pains then i got inflammtion of spine was in agonising pain given sulfasalazine at time i had highish temperatures sulfasalazine helped a little but then i got infection of waterworks was on two months of antibiotics stopped the sulfa as felt allergic to it. whn i was ill with this i had red eye and loking back on it funny stools like large great sloppy cow pats sorry!


anyway carried on getting sicker went to see a gastro private they thought my kineys were gone wrong for a while mainly kept getting infections or protein or blood leaked but kid docs said no signifigant kidney disease. so went to see a gastro mainly cause i was wondering about my liver. i had an enlarged liver sometime ago but dont drink now i thinbk they think i do!!!
hr looked at my tests he said inflammtion of my spine b12 and iron anemia very unusual in someone my age and was sure i had chrons if not tb.


i could not affoerd to go back and see him carried on getting sicker funny stools orangey mucasy and then not going. wlked into my kitchen once and threw up evywhere. more infections funnily enough with bowel conataminants like ecoli. saw my rheumatologist not convinced about chrons did not even mention it. he felt my stomach and said you dont feel good your loaded. did some blood tets anemic agaian still no one had given me supplements after almost one year and a half. asked and felt my joint inflmmtion even down to my achilles heel being tender and siad if you dont have chrons i will give you a gun to shoot yourself. he put me on asacol stayed on it for a while but was still getting complications. ecoli infection in bladder again. then i had adrenal tests and i have hypoadrenalism. took the hydrocortisone got real sick stopped it and right now have ended up with bronchitus on 2000mg antibiotics a day.
developed an anl fistula in last month or so. i have dermatitis and horrible rashes on my faceplus the eye problem. since xmas i became almost entirely constipated three xrays at a and e showed stool with up ward gas i ended up seeing a horrid gastro did a colonoscopy told me eye and spine problems and anemia have nothing to do with chrons.
the colonoscopy man said there was stricture by my liver.

i have ulcers aroumd my mouth and the anal teear happened since then. lus this gastro sent me out with the food poisening.
carried on at home to dizzy to get around. then in last two weeks pain unbelievable down my left illiac fossa and then radiating to RIGHT. my dad called the ambulance but i did not want to go back to the hospital that treated me so badly nowhere to go really.put myself back ona sacol felt a litllle better had a shillings test my body not absorbing b12 iron or folic acid given supplements. went to my docotr every day this week until he listened to my chest his eyes jumped out of his head and he promptly prescriped the high dose antibiotics for my chest. i am asthmatic especially with allergies to.

anyhow i have lost so much weight and my face looks so ugly now. but who cares i need to be well.

two days ago i had too lots of blACK RUNNY STOOLS IN THE TOILET. WHEN I EAT I WANT TO SICK UP. IM SO SCARED AND IN SO MUCH PAIN I SEE THE OLD GASTRO ON FRIDAY WHO I ORIGINALLY SAW ANY IDEAS ANYONE.

ZOE