Discussions that mention baclofen

Rare Disorders board


Hi,

My husband has Transvers Myelitis. Last June he started having chest pains and went to the hospital. Within two hours he was paralyzed from the waist down. He went through two months of hospitals and rehab. He came home in a wheel chair and we had our house handicapped accessible. He was 44 at the time and very determined to get out of the wheel chair. He finally did after 4 months and is now walking w/a limp. He had a set back just a few weeks ago; legs burning and couldn't take it anymore. He went to the hospital and they ran all kinds of tests and said that nothing had changed since June of 05. They have ruled out MS. The steriods they gave him for 5 days seemed to help. He is walking a bit better. The doctor's don't have a clue as to why his legs were burning. They told him it wasn't a re-occurence. They doubled his baclofen when he was in the hospital.

I know that it is very frustrating for him. He was very active and loved life. He can't do some of the things he used to do, but he is trying to deal. He has a great attitude and just keeps plugging along. He did go back to work (he is a heavy equipment operator) in Nov. 05.

He is signing up for SS in case he needs it at some point. We have both come to terms w/ the fact that he may not be able to work until he retires.
It's sad because staying at home day after day stinks. Although, he does like to fish, so that will be an asset for him.

This disease is very frustrating and I don't think the doctor's know a whole lot about it.

Good luck to you all suffering from this!

Judy