Discussions that mention bentyl

Digestive Disorders board


Hi everyone. I haven't posted on this board in a while but I used to, back in the beginning of my symptoms. I have been having terrible stomach pains since October of 07, so almost one year now. I went several months recently without any stomach pain, and now I'm having it several times per week again.

The pain typically comes on at night. I used to think it was entirely related to fatty foods, or very spicy foods, but now I'm not certain (this week it seems to be unrelated to what I eat). The pain is epigastric. Right smack dab in the center of the very upper portion of my stomach just beneath the breast bone. It's a terrible burning sensation, that won't let up for several hours. Nothing alleviates it. I can take antacids, Carafate, Bentyl, a Darvocet or some Codeine, with no relief whatsoever. When the pain comes, I basically have to just deal with it. The only thing that has alleviated the pain was IV pain medication at the ER. However, who wants to pay a $100 copay just to get pain meds, and have to take the next day off from work, and be out all night in the hospital? It is not practical. And anyway, the ER docs that saw me 4 times in about 2 months probably think I am a drug seeker, which is far from the truth.

The problem is, this pain is debilitating. When I experience this pain, I cannot speak, walk, move. I am paralyzed with what I consider to be the worst pain I have ever experienced in my life. It lasts several hours and is unrelenting.

Starting in November of 07, I went through the entire gamut of medical tests. I've had 2 HIDA Scans with EFs of 36% and then 79% several months later. The first HIDA scan (at 36%) recreated the epigastric burning sensation. The second scan caused queasiness only. I've had an upper endoscopy that showed some very minor irriation but not signifiant enough to be gastritis. No ulcers. I don't have celiac. No cancers. No H.Pylori infection found in the bloodwork or biopsy. It's not IBS because there's no relation to my bowels. Protonix made no difference after several months of taking twice the maximum recommended daily dosage. Same with Nexium.

I have found the most relief by taking Carafate 4 times per day and Bentyl 30 minutes before eating. In addition, my diet is very, very low in fat. It's also on the bland side. I have gone from a healthy 120 pounds in October of 2007 to 97 pounds in March of 2008. At that time I started on the Carafate/bentyl combo and have been able to increase my fat a tiny amount. I have been steady at about 103 pounds for four months or so.

Last night I awoke at 2 am with terrible epigastric burning. I had taken some Nyquil at bedtime, around 9:30 pm. I am wondering if the alcohol somehow caused the pain? Prior to bed I had a bowl of lowfat cereal with skim milk so it seems unlikely that the milk caused my symptoms.

If anyone suffers from this condition, please talk to me. How do you cope? I find it so difficult to eat anywhere but my own home. I am discouraged. And truly, every day around 5 or 6 pm I start having some pretty strong anxiety about whether or not I will be in pain tonight or not. I know that stress can play a big role in NUD, so is it possible I'm exacerbating my own symptoms with my fear?

What meds have you found that work? Anything? Does anyone take an antidepressant or antianxiety medicine?

I'm getting married on October 11th. More than anything, he and I would like to start a family as soon as possible. How in the world would I ever have a healthy pregnancy if I cannot tolerate eating more than about 5 grams of fat in a sitting? I can't imagine that it would be possible for me.

I'm discouraged, honestly.