Discussions that mention botox

Cerebral Palsy board


Has anyone heard of Botox being used for CP? Exactly how and where is it applied? Would anyone think this could be used instead of meds? I'm only referring to sporadic use of it, not daily. Anyone heard of such thing?
Hi Hope

If you go to the Scope website, under factsheets they have information on the botox injection. Hope this helps.

Shell x
Hope,

Our 3yo son's ortho doctor wanted him to have botox which would be injected directly into the affected muscles (thigh, etc.) while he was unconscious (general anesthesia). It would last 3 months or so, and would allow more progress in PT. We decided to have the SDR instead. I've heard that the botox can be helpful, but is not permanent.

Hope this helps and good luck!
Hope, Botox injections are only given every couple months, so you wouldn't have to worry about anything daily. I looked into it for my hamstrings, but they are already too weak, so I would not be able to walk if I had them injected with botox. The spasticity in those muscles is actually what holds me up right now. I know, however, that they are very painful because they use an electrically guided needle. Also, the injections wear off so you have to get them redone, and while they're effective you need to do tons of PT to reap the benefits.
My son received botox injections a few times in his calf and also once in his arm. We had great results. The botox acts to paralyze the muscle partially (it affects the muscle not the actual tendon), and thus reduces spasticity significantly. As a result, aggressive physical or, in the case of his arm, occupational therapy, produces much better results. After botox, his walking would be significantly improved for months. It's worth trying if your physician recommends it. The injections are painful, but the discomfort lasts only seconds and then it's over. The neurologist administered the injections.
Quote from bsjones:
Hope,

Our 3yo son's ortho doctor wanted him to have botox which would be injected directly into the affected muscles (thigh, etc.) while he was unconscious (general anesthesia). It would last 3 months or so, and would allow more progress in PT. We decided to have the SDR instead. I've heard that the botox can be helpful, but is not permanent.

Hope this helps and good luck!

My almost 7 yr old's dr has suggested botox to weaken the muscle on one side of her foot to allow the muscle on the other side to strengthen. Do you know of any long term affects that you've experienced with your child? Also, what is SDR? Also, when you did the botox was it several times or just once? thanks.
I had Botox in both adductors (inner thighs) and left gastrocnemius (calf) at 29 y/o. In my case it was not painful, it was like a normal shot, not electrically guided needle. The next day my calf was a bit numb and sore but the third day it subsided. For me Botox had zero effect but there are adults who say it helps.

My legs tighten up when I'm nervous too. I don't take any meds but you can give a try to muscle relaxers (Baclofen, e.g.).

Kat, spastic diplegic
[QUOTE=diparetic cp]I had Botox in both adductors (inner thighs) and left gastrocnemius (calf) at 29 y/o. In my case it was not painful, it was like a normal shot, not electrically guided needle. The next day my calf was a bit numb and sore but the third day it subsided. For me Botox had zero effect but there are adults who say it helps.

My legs tighten up when I'm nervous too. I don't take any meds but you can give a try to muscle relaxers (Baclofen, e.g.).

Kat, spastic diplegic

Can anyone suggest who I could see about those muscle relaxers? I don't have health insurance at the moment but I can afford paying for it.

I just don't want to show up on a doctor's doorstep and say, listen can you prescribe this and this? Unfortunately, the medical professionals are too into watching their own backs, and forgetting that they took a vow to heal & help. The last thing I want is a doctor to accuse me of coming to him "for drugs." Any advice?
"My almost 7 yr old's dr has suggested botox to weaken the muscle on one side of her foot to allow the muscle on the other side to strengthen. Do you know of any long term affects that you've experienced with your child? Also, what is SDR? Also, when you did the botox was it several times or just once? thanks."

kknoch, we never did any botox, but decided to do Selective Dorsal Rhizotomy (SDR) instead, which is a surgery that "dis-connects" some of the nerves causing the spaticity. See the separate thread by that name for more info. Best wishes !!
Zagreus, you said the botox results lasted months. How old is your son? Does this mean you re-did the botox after the affects wore off or are you seeing lasting results from all the pt and botox?