Discussions that mention botox

Cerebral Palsy board

My son is 34 mo old and his pediatric neuro rehab doctor has suggested botox injections for his spastic legs.

Any experience (positive/negative) with Botox injections?

Any experience from someone who also has hydrocephalus? Profound cognitive delays?

Thank you for any input!
Hello I have a 3 1/2 year old son with cp and he has had botox 2x. We had his legs done about 4 months ago and I really liked it. We are able to streach his mucels so much easer now and are making good improvement. The botox will only last about 6 mo or so but I will do it again if he needs it. Now the first time was done in his hands and I dont think I would do that again really didnt see improvement in the hands.
Our son has gotten Botox in his legs every 3-4 months for the past 3 years. It helps enormously.

The doctor who administers the shots prescribes Versed (I might have that spelling wrong, but it is basically a generic form of liquid Valium) to calm him down. He takes it about 20 minutes before the shots, which are extremely painful for him. The Versed also helps him forget about the experience so he does not live in constant fear of it. I highly recommend it.

Going for Botox with our son is one of the toughest things we have to do as parents. It is truly miserable. Holding him down for two minutes while the doctor gives him very painful shots is terrible for all of us. We would not do it if the results were not so dramatic.