Discussions that mention botox

Cerebral Palsy board


Hi there,
I am a newbie here for posts, although I have been reading the threads for some months, which I find very informative and inspiring.
Briefly - I am a 30yo female with right side hemiplegia. I was only given a firm diagnosis earlier this year!!!! A bit late in life but I am getting my head around it now although I still feel scared at times and feel a lot of things makes sense now.
I have lots of questions but most prominent at the moment is Botox:
My doc has again put me on diazepam for the muscle spasams - this is the 5/6th time this year. Becasue I seem to be needing it more and more often he has now refered me to a clinic for botox, which I think will be down the right side of my back/arm, not sure where else till I have seen the clinic. I am doing some research on it but would love to hear from other adults what there thoughts are about it and any experiences they have had. What is it like, how do you feel after, are there questions I should ask etc etc.

Many thanks, and I look forward to been a reqular here and getting to know you all.
Shell B
xxxx
Hey!

I am 41 with L spastic CP. I take gabapentin for spasticity/tremor/nerve pain issues, and zanaflex for a muscle relaxant. I also get botox in my lower left extremities in several locations.
My CP is less affected than others, I walk with just a cane for balance and I work full time most of which involves a lot of standing and walking. I also am a Mom to a 9 year old daughter. So Botox was started for me because the weakness in my left side was causing me to trip and fall a lot. The tightness in the muscles was causing a LOT of fatigue as well. I have been getting shots for 3 years now at 3 month intervals. The botox is a temporary treatment and it has varying results with each person.
It usually takes 3-10 days to start showing full effect. The shots will essentially weaken the area treated to relieve the spasticity and to allow other surrounding muscle groups to work more effectively. I have had really good luck with my shots. I just got a round a couple of days ago and right off the bat I can tell you that i was having trouble laying in bed with my leg stretched out because of the spasticity. I would also get pain in my hip from having the leg always in a bent position. Today I woke up with my leg extended and no hip pain.
They do give botox for arm spasticity, although I have very minor involvement with my arm. The weird thing for me is that I have Left sided involvement, but somehow managed to be a left handed person which is very rare.

Lastramy