Discussions that mention botox

Cerebral Palsy board


Hi there

Just wondering if anyone has used this type of AFO - at the moment we have tried quite a few different kinds for my son, along with the heavy boot over the top which definately gives my son the stablility to walk.

We currently have a fixed AFO that keeps his ankles at 90 degrees in a fixed position with a velcro strap that loops across his ankle, through a plastic clup and back around at the ankle pulled really tight (if it is not on tight enough because of the extremely high tone, his foot will push out of the AFO then rubbing and causing blisters on the heels.) (And I mean REALLY high tone - to the extent where we tried on 3 seperate occassions to cast his feet after botox and he managed to pull the cast off one of his feet, the other times the ankle did not stay in the correct position in the cast, even after the orthopaedic surgeon even tried to cast him!!!!)
We have tried the hinged AFO's but that made his crouch worse and then walked on tiptoes in these anyway.

A physio at another centre has suggested a DAFO. I am not sure what this is exactly.
Even with the fixed AFO and heavy boots we have now, he still manages to walk on his toes in his boots and this is post botox. Passive stretching works to get feet flat but as soon as the tone kicks in from him concentrating on walking, or standing etc the tiptoeing comes straight back.

Any advice or experience would be greatly appreciated
My daughter has an AFO that has a hinged ankle and so it OPENS and closes for stepping. Also, It has a screw in the back opening that the PT can adjust to actually keep her foot in flexion all the time. That is how she wears it..so that her high tone CAN"T "kick in' as easily. If you need to see a picture I can send you one..email me privately. [email][email protected][/email]

Faith


Just wondering if anyone has used this type of AFO - at the moment we have tried quite a few different kinds for my son, along with the heavy boot over the top which definately gives my son the stablility to walk.

We currently have a fixed AFO that keeps his ankles at 90 degrees in a fixed position with a velcro strap that loops across his ankle, through a plastic clup and back around at the ankle pulled really tight (if it is not on tight enough because of the extremely high tone, his foot will push out of the AFO then rubbing and causing blisters on the heels.) (And I mean REALLY high tone - to the extent where we tried on 3 seperate occassions to cast his feet after botox and he managed to pull the cast off one of his feet, the other times the ankle did not stay in the correct position in the cast, even after the orthopaedic surgeon even tried to cast him!!!!)
We have tried the hinged AFO's but that made his crouch worse and then walked on tiptoes in these anyway.

A physio at another centre has suggested a DAFO. I am not sure what this is exactly.
Even with the fixed AFO and heavy boots we have now, he still manages to walk on his toes in his boots and this is post botox. Passive stretching works to get feet flat but as soon as the tone kicks in from him concentrating on walking, or standing etc the tiptoeing comes straight back.

Any advice or experience would be greatly appreciated