Discussions that mention botox

Cerebral Palsy board


Nwmom, Kaitlynsmom, MagsMom,

It is so great to hear Noah, Keityn, Magie are doing well, especially congratulations for their great progress.

Selena is 6 years old now, and was found mild CP when she was 2 years old. As all you have done, she has been going through PTs for years.

She is able to stand by herself with wearing Brace, also she is able to stand with bare foot but not very stable. Walker is her primary mean in school, and she prefer walk without walker in house, instead using wall and furniture as help. Selena also can walk ten or 20 steps (not stable) independently. Her feet are pretty much inward.

We have realized that some of her capability degrades, for instance she is not able to stand by herself without help, but she could stand by herself when she was 3 years old. I wonder if it is standard for CP since her muscle does not getting stronger enough in terms of proportional to her weight etc.

Selena also tried Botox in Wake forest hospital in Winston Salem, it did not last long, just 3-4 weeks. In fact we wasn’t ware the SDR option until a couple of month ago when we visited Dr. Alexandre in UNC. Plus Dr. Campion (Orthopedics) also recommends Dr. Perry in UNC health center SDR for Selena.

Then We have met with Dr. Perry in Nov. It bother me a little is that he still need large cut and remove 5 to 6 back bones for surgery. I found in website Dr. Park has modifed procedure and remove only a couple of back bones, I am not sure if it true.

We have an appointment with Dr. Perry’s PT for video-taping Selena, anything we need to pay more attention? I also hope that this video tape can also be used to Dr. Park for evaluation in case we decide to go see Dr. Park. So far we have not decided if we do SDR in UNC or see Dr. Park. I lean to Dr. Park since all you have visited him and very positive.

Thanks,

Selena's Dad
[QUOTE=SelenaDad;3333074]Nwmom, Kaitlynsmom, MagsMom,

It is so great to hear Noah, Keityn, Magie are doing well, especially congratulations for their great progress.

Selena is 6 years old now, and was found mild CP when she was 2 years old. As all you have done, she has been going through PTs for years.

She is able to stand by herself with wearing Brace, also she is able to stand with bare foot but not very stable. Walker is her primary mean in school, and she prefer walk without walker in house, instead using wall and furniture as help. Selena also can walk ten or 20 steps (not stable) independently. Her feet are pretty much inward.

We have realized that some of her capability degrades, for instance she is not able to stand by herself without help, but she could stand by herself when she was 3 years old. I wonder if it is standard for CP since her muscle does not getting stronger enough in terms of proportional to her weight etc.

Selena also tried Botox in Wake forest hospital in Winston Salem, it did not last long, just 3-4 weeks. In fact we wasn’t ware the SDR option until a couple of month ago when we visited Dr. Alexandre in UNC. Plus Dr. Campion (Orthopedics) also recommends Dr. Perry in UNC health center SDR for Selena.

Then We have met with Dr. Perry in Nov. It bother me a little is that he still need large cut and remove 5 to 6 back bones for surgery. I found in website Dr. Park has modifed procedure and remove only a couple of back bones, I am not sure if it true.

We have an appointment with Dr. Perry’s PT for video-taping Selena, anything we need to pay more attention? I also hope that this video tape can also be used to Dr. Park for evaluation in case we decide to go see Dr. Park. So far we have not decided if we do SDR in UNC or see Dr. Park. I lean to Dr. Park since all you have visited him and very positive.

Thanks,

Selena's Dad

If I may ask, what type of CP does your child have? My son has CP diplegia. He is 3 years old(a twin), and he is going to preschool 3 times a week. He also has a walker, but the school and I have decided that we do not want him to use the walker. He really wants to use it all the time, but I have taken it away from him, forcing him to go without it. His walking has improved so much because of it. He walks very, very slow, but with pretty good balance. He falls alot, and has really mastered it. HE scissors badly when he uses the walker because he supporst himself too much with his upper body, that is why I have taken it away from him. When I go to a store, or his doctors appts. I put him in a stroller. To all of his therapies, or school, I make him walk. I know that he will greatly benefit from this.
Sometimes we have to do things that the child does not like, but in the long run, it is much better for them......