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Incontinence board


This is my first posting so first a bit of background then I have questions.

Record of PSA prior to operation: Sept 99 – 6.5, July 02 – 8.5, April 05 – 11, Oct 06 – 13.
Biopsy done by an urologist in a distant city: 23 Dec 06. Gleason score was
3+4=7/10.

First report from family doctor following biopsy was benign, I didn’t have cancer. About three weeks later I started thinking this couldn’t be all, there must be some treatment for an obvious prostrate problem. I returned to my family doctor and another doctor temporarily filling in said he would check with the urologist. When he called me back in a couple of days later he told me I did have cancer and the urologist said I was a good candidate for nerve sparing RRP. This doctor had the same operation three years earlier so he was able to explain a lot for me; although like most doctor he tended to generalize.

I had the operation 04 May 07. Post-op pathology: Urologist said if you imagine the prostrate looking like an orange, the cancer had just shown through in one spot on the skin. Did not get a Gleason score.
The operation/hospital stay also didn’t go as well as it could have. I did as recommended in literature. I got up the next morning and walked and walked; the same the next day. By night my urine was red again and the flow from the catheter stopped. I emptied seven medium sized paper cups of liquid from the stomach cavity suction drain. I was taken to another hospital where a scan could be done. The treatment for this problem was traction on the catheter. I anticipated a three day stay in the hospital. I was released after seven days. I would recommend that this business of getting up and walking be done in moderation. On the other hand I could have had a poor stitch job, or both.
I did not pursue either of the latter two issues nor did I question why my pre-op PSAs didn’t raise some concern earlier; I took it as s_ _ _ happens.
My catheter was to be in for 21 days. The balloon broke and it came out itself on the 14th day. I leaked a lot for the first couple of months, never at night, and then it tapered off to where I quit using even the lighter pads. I still leak a few drops with the slightest cough or stretch movement or if making a fast move. I was taking this as pretty positive progress but in the past month I have experienced several setback periods of a few days where I would leak enough to warrant the use of a couple of light pads per day. This may be related to any combination of increased periods of stress, fatigue and maybe at the same time neglect of kegels.
I should mention the following here because it likely has and will have a bearing on my progress and recovery from side effects. About one month post-op my wife of 13 years walked leaving me with a five year old son and a two year old daughter. I did not see it coming. Our relationship seemed exceptional good including the sex part right up till days before my operation. I still can’t figure it. Regardless, these two wonderful little people provide purpose to my life. Also I had dropped out of the workforce about two years ago to care for our infant daughter with full intentions of seeking new employment about now. One other factor; at my age (69) most of my life-long friends and similar age group relatives are gone. I have four grown children in their late 30s from a previous marriage but they live in distant places. I have not lived in this area where I live for long, at least not long enough to build a new circle of friends. When... I have not unloaded that much personal information in a long long time.
Regarding ED I know I can have orgasms at about the same rate as pre-op. I have tried viagra and cialis but the high cost has discouraged me from doing it systematically. I have half heartedly tried the ErecAid System. Have a real difficult time with any of this without a partner or the prospects of one. I get a sense from reading a couple of these threads here earlier that the writers have an impression that 40s and 50s make up an exclusive group but believe me this stuff has as much impact on men at any age. Anyway on to questions.

I would really appreciate hearing from people who have/had or know of similar medical background conditions along with experience of longer duration.
What are the stats on/odds of regaining complete continence; that is no leakage at all; can cough freely again and no spurts with orgasms?
With my background what are my chances of obtaining erections at some future date as before the operation or possibly assisted with viagra or cialis? I cannot envision using a pump etc.
Somewhere in these threads I was reading where the question was raise: are leakage/spurts harmful to a female partner during intercourse. I lost track of the thread before I could find feedback. Does anyone have an opinion on this?
Has anyone else experienced similar setbacks as I have regarding incontinence?
These questions are all very important to me. Sorry for using so much space but any less info might not have been enough to portray the whole picture.

hugh02
[QUOTE=Kemahsabe;3452685]Wow! You've been on quite a journey. And to think some people in the US want a Canadian style single-payer healthcare system. :confused:

All I can do is relate my experiences. I had a robotic-assisted RP on 30 July 2007, which was about two months before yours. My pre-op PSA was 10.1 and my Gleason was 7.

The catheter came out on day 7. I had moderate leakage that decreased in steps and stopped 8 weeks later. The only time I have a few drops leakage now is in conjunction with gas or a bowel movement. I can tell you that things are still 'changing' down there even after six months. I have less of the bowel-related leakage than I did two months ago. Hopefully you can expect the same kind of gradual improvement.

At my 3 month post-op checkup I asked what to expect by way of ED improvement. The doc said not to expect full function until at least 9 months post-op. Here we are at 6 1/2 months and things are improving very, very slowly. But they're improving. Again, hopefully you can expect the same kind of gradual improvement.

I wish you luck and continued improvement. As I initally typed in the wrong operation date my info was misleading regarding progress. I am coming up to 10 months post-op. With either viagar or cialis or the vacum pump without bands, I am about half way there. without using or doing anything for 4 or 5 days I sometimes wake up with all the old natural feelings. A check by feeling in that area is still disappointing though.
Bfred1:
Your continence issues may be more severe due to the extensive surgery Dr. Partin needed to do to clear all cancer. Be that as it may, your extincts to give it as much time as it takes to regain control before considering any surgical options are logical and sound since you're not facing a life threatening or health threatening problem. While I was fortunate enough not to have had to deal with this issue, I was exchanging emails with a young man in his early fifties shortly after I had my RRP over 6 years ago. His continence problem was similiar to yours and eventually after exhausting all other means, he underwent surgery to have an artificial sphincter implanted. He was very pleased with the result although its a highly specialised procedure that should only be performed by a thoroughly experienced surgeon /urologist who has done many implants.

I agree that its probably a last resort that one doesn't rush into but its a viable option should it become necessary. Best of luck.
Bob