Discussions that mention cimetidine

Rare Disorders board

My son is almost 10 years old and has had these fevers for almost 3 1/2 years now. He had Kawasaki's Disease 3 1/2 years ago in which we almost lost him then. He went through 2 months in the hospital with that. He was very healthy up until this. Now after the Kakwasaki's, he's had these "rare" fevers. The doctors thought maybe he has Marshall's Syndrome, but now they think "no". We went to the NIH, in Behtesda Maryland where he has been tested for Traps, etc. The tests are still pending. For 3 1/2 years now, my son has known these fevers that keep coming back to haunt him. The fevers can spike at the snap of your finger and get up to 106.8 at times. He usually has no other problems except his eyes will turn red and yellowish-color, and his eyes will water and drip, and his ears will turn almost purple bwcause of the fever will get so high. He will also have a huge headache. He was tested for migraines and that came back negative. He does have an low IGg level in which the doctor's say that that is what is causing the fevers. But, he is labeled as a periodic fever patient. The last episode of fevers that he had about 3 weeks ago resulted in him losing consciousness. He was sent the hospital for a week. They thought he took a stroke. The EEG showed slowing of the left side of his brain. So, they think that maybe his fever just got to high, and he passed out. His temp was 106.4. But, that is usual for him. I don't know why he went unconscious this time. He does have speech problems in which he has had since a little guy, and is the L.D. classes at school. The teachers at school are starting to throw a fit that he has missed 27 days of school so far this year. But, what do you do? They don't understand how sick these kids actually get. I get to the point sometimes that I just sit and cry because it breaks my heart to see him so sick. He started on Cimetidine in January and it has helped him. The fevers aren't so close together. He will also be started on steroids next week. I would be happy to help anyone out there who has any questions. There are very few of us mothers who know what each of us are going through adn we've got to get a support group going or something.